Awareness - National Scoliosis Foundation

Oregon has officially proclaimed June 2024 as National Scoliosis Awareness Month

June 26, 2024 National Scoliosis Foundation Awareness, Education, NSF News

Thank You Heidi Christian!

Governor Tina Kotek of Oregon has officially proclaimed June 2024 as National Scoliosis Awareness Month due to the incredible efforts of Heidi Christian, whose heartfelt letter to the Governor served as the catalyst for this important proclamation. Heidi’s personal journey with scoliosis is a living example of why early detection is so crucial and why further research is needed. Her dedication to raising awareness and advocating for the scoliosis community has truly made a difference. Her passion and commitment inspire us all to continue our efforts in advocacy, education, and public awareness. Thank you, Heidi, for your unwavering support and advocacy!

Read Heidi’s letter to the Governor:

Governor Tina Kotek
Oregon State Capitol
Salem OR

Dear Governor Kotek:

As a constituent and a person living with Scoliosis, I am writing to ask you to please declare June 2024 to be National Scoliosis Awareness Month in Oregon and sign the attached proclamation request.

National Scoliosis Awareness Month is observed in June to disseminate information about Scoliosis and highlight the need for education, early detection, and public awareness of the physical, emotional, and economic impact of this condition. With recent studies showing the benefits of bracing, early detection is more important than ever, as is increased public awareness.

Currently Oregon has no screening mandate for Scoliosis in public schools. I am hopeful, as you look toward improving the outlook for Oregon’s children, Governor Kotek, you will consider Scoliosis screening, too.

Scoliosis has affected my life. First diagnosed as a junior high student in 1974, I was prescribed a Milwaukee brace. My “S” curves which were stabilized, yet not corrected, held steady from the time of treatment through a routine x-ray taken in 2008. However, by 2012, those curves made a surprising progression to demand an eight-level (T9-L4) anterior and posterior fusion surgery at age 52.

This 8-hour surgery involved two procedures to lessen the Scoliosis curves and correct the twist with two twelve-inch titanium rods, fourteen pedicle screws, and a discectomy with PEEK cage placement. It required six days in OHSU Hospital, four months of convalescence at home in a TLSO brace, physical therapy, and one full year of gradual healing; it cost $180,000 in 2013 just for the surgery and hospital stay, plus more for doctor visits, radiology, medication, etc.; it meant a change in career for me, too.

By officially signing the National Scoliosis Awareness Month proclamation for Oregon, you will help highlight the need for education, early detection, and awareness of Scoliosis. The goal is for every state to officially declare, by proclamation, their observance of National Scoliosis Awareness Month during the month of June and I am hoping our State of Oregon will again join in!

Thank you for your consideration.

Sincerely,

Heidi Christian

The Official Proclamation from the State or Oregon

A New Alternative Treatment for Idiopathic Scoliosis

July 1, 2015 National Scoliosis Foundation Awareness, Medical Updates, Parents, Patients, Treatment

“During a recent school screening, it was determined that your son/daughter may have a condition called scoliosis, or curvature of the spine. Please consult your physician for further information and available treatment options.”

For most parents, this news can be both alarming and confusing, especially when a child appears to be both healthy and active at the time of diagnosis. Clearly, routine spinal screenings have done much to increase the population’s awareness of scoliosis in general, but serious questions rarely arise until a parent discovers that his or her child may have the disorder.

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Outcome of Spinal Screening

June 23, 2015 National Scoliosis Foundation Awareness, Children, Education, Parents

As many of our readers know, the Scoliosis Research Society, the American Academy of Orthopaedic Surgeons, and over 23 states suggest or require school screening for abnormal spinal curvatures. In September of 1992, Dr. William P. Bunnell, Professor and Chairperson, Loma Linda University Medical Center, presented his paper, “Outcome of Spinal Screening” to members of the Scoliosis Research Society; his findings will also be published in an upcoming issue of Spine. Dr. Bunnell is a developer of the Scoliometer, a hand-held device used in assisting spinal screening programs across the country. What follows are excerpts from an interview that the NSF conducted with Dr. Bunnell about his study:

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Let’s Get The Terms Straight

June 22, 2015 National Scoliosis Foundation Awareness, Medical Updates, Parents, Patients

On January 5, 1990, at our request Ann Landers reprinted a 1983 letter from NSF’s Vice President, Kenneth Love. As a result of that letter appearing in her syndicated column, we’ve received numerous letters and phone calls concerning a variety of subjects, including infantile, juvenile and adolescent idiopathic scoliosis, not to mention kyphosis and kypho-scoliosis. In order to clarify these and other terms, we interviewed Dr. John B. Emans, of Children’s Hospital Medical Center in Boston, Massachusetts. We thank him for helping us “get the terms straight.”

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Early Onset Scoliosis

June 22, 2015 National Scoliosis Foundation Awareness, Children, Parents, Patients, Resources

From time to time, the National Scoliosis Foundation receives questions from parents about early onset or infantile scoliosis. To find out more about this spinal abnormality, we asked Nancy Schommer, author of Stopping Scoliosis, to interview Dr. Ronald Moskovich, who is Assistant Professor of Orthopedic Surgery at New York University as well as a practicing specialist in spinal disorders at the Hospital for Joint Diseases Orthopaedic Institute in New York City. What follows are excerpts from the interview.

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