By Stephan Lehman

Community members have rallied behind Marais Steyn Park resident, Leigh Stephens, in her quest to raise funds for a life-changing spinal surgery.

Today, August 23, Leigh will undergo a 10-hour life-altering operation at a local hospital.

27-year-old Leigh said when she was a teenager she was diagnosed with Scoliosis and, until two months ago, had lived a normal life.

One Saturday morning in June this all changed, however.

The Edenvale mother of two said her legs just collapsed and she couldn’t get back up.

After going to the hospital where she underwent MRI scans and X-rays, Leigh was told her lower back was degenerating and was diagnosed with Kyphoscoliosis.

“I couldn’t understand it because for most of my life I had lived with Scoliosis. When in pain, I would take painkillers,” said Leigh.

Leigh explained that a spine is meant to be straight but hers is skewed.

She described the pain as having a constantly knotted back.

“It’s as if you have a pulled muscle – permanently.”

Leigh said her spinal disks are degenerating and her nerves are being compressed because of Scoliosis.

The intense pain requires Leigh to do simple tasks – which people take for granted – in short bursts.

Unfortunately, nothing can be done to assist Leigh besides intrusive surgery.

Leigh explained that in order to straighten her spine two metal rods, 22 screws and a base plate will be attached to her spine.

She said in order to attach the base plate, the surgeon will have to go through the front of her abdomen.

All in all the surgery will take 10 hours.

Although Leigh does have medical aid, the shortfall for the operation is R70 000.

If she doesn’t get the surgery Leigh could be paralysed by the age of 30 or 40.

For the mother of two this is not an option.

“To a parent children are the most important people in his or her life. I’m not doing the surgery for myself but for my two boys,” said Leigh.

She explained that although she can spend time playing with her sons, the Scoliosis limits the amount of time she spends with them.

She can only stay in one position for about 20 minutes before she has to change it.

In order to get funds to cover the shortfall on her medical costs, Leigh’s mother began a fund-raising initiative on Go Get Funding.

Leigh said the community of Edenvale has come to her assistance.

One of her sons attends Elma Park Pre-Primary School which has also stepped up its support by arranging fund-raising drives.

“People from the school are concerned and make an effort to treat me like a family member,” said Leigh.

Principal of the school, Elizabeth Human who is also known as Teacher Lizzie, said the school hosted a week-long fundraiser till August 18 for Leigh’s surgery.

“When there is a family member of the school in crisis, we help,” said Teacher Lizzie.

She said although the donation drive has ended, any further donations would go towards Leigh’s medical costs.

Elizabeth explained that the school always comes to the assistance of its family because supporting the family enhances a child’s ability to learn.

Leigh said she is excited about her surgery as it will give her the opportunity to spend more time with her children.

The surgery will be done on August 23.

To get in touch with Leigh, send her an email on: leighspineoperation@gmail.com

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POSTED 11:32 PM, AUGUST 22, 2017, BY LINDA WAGAR

LONE JACK, Mo. — Madison Bruce is an active 14-year-old. She’d like to stay that way.

“It’s hard to run and sometimes I can’t sleep,” said Madison, who is in constant battle with her body.

Two years ago, she was diagnosed with scoliosis. Her spine is curving abnormally. You can clearly see it an X-ray of her spine and the curve can even be visible through clothing. Left untreated, her condition could eventually compress her lungs, making it difficult for her to breathe.

To help relieve the pain and pressure, Madison works with a chiropractor and straps herself into a vibrating machine every day to keep her spine flexible. But the only permanent solution is surgery. The typical surgery involves fusing a steel rod to the spine. That can leave patients with limited movement, which is hard to accept when you are only 14 years old.

That’s why University of Missouri Orthopedic Surgeon Dan Hoerschemeyer told Madison about a much newer procedure – vertebral body tethering – which uses ropes and pulleys to train the spine back into normal alignment.

Dr. Hoerschemeyer shared before and after photos of young patients who had the surgery. To the untrained eye, their backs looked normal afterwards. But Dr. Hoerschemeyer said the best part is that the young patients feel normal because they can move freely.

“I think the huge benefit is the preservation of motion,” the doctor said.

Madison and her mother Lori Bruce were thrilled to learn about the procedure and felt confident their insurance would cover the $150,000 price tag.

“The procedure is considered experimental for scoliosis, but Blue Cross Blue Shield in other states had paid for it,” Bruce said.

But a week before Madison’s surgery, Blue Cross Blue Shield denied her coverage.

“It was like hitting a brick wall,” Madison’s mom said.

Plus, Madison was running out of time. Surgery candidates must be young enough to still have growth and flexibility left in their spine, Dr. Hoerschemeyer said.

Madison’s mom refused to give up.

“I told somebody I would live in my car and eat Ramen noodles every day if I thought I could get her a straight spine,” Lori Bruce said with tears welling in her eyes. “If you knew how much I hate Ramen noodles you’d know how much that means. “

The mother of three, tracked down a doctor in Germany who would do the surgery for about $44,000. That’s less than a third of what it would have cost in the United States.

But it still hasn’t been easy to come up with the money. The family has maxed out their credit cards and cleaned out a retirement account. Even that wasn’t enough, which is why they contacted FOX 4 Problem Solvers. The hope is that with the public’s help, Madison can have the surgery that she needs. They’ve set up you caring account, but time is running out.

“We live in America the greatest country in the world,” Lori Bruce said. “How do I have to take my daughter to Germany for surgery? It’s hard.”

But if there is anything she has learned from watching her daughter, it is not to give up.

 

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westfaironline.com /92226/cutting-edge-treatment-for-scoliosis-brings-a-surgeon-and-his-patients-magneticresults/

A pediatric orthopedic surgeon at Maria Fareri Children’s Hospital in Valhalla is using a new technology-aided surgical procedure to spare young patients the pain, physiological risks and social setbacks of traditional treatment for scoliosis, a curvature of the spine that affects an estimated 6 million to 9 million people in the U.S., most of them children.

Dr. Damon DelBello, an attending orthopedic surgeon at Westchester Medical Center and the children’s hospital on the WMC campus, has introduced a less invasive procedure to correct the spinal condition that requires fewer surgeries and less exposure to anesthesia for children, minimizes the risk of infection and reduces anxiety in his patients.

In traditional treatment for pre-adolescents with early-onset scoliosis, surgeons insert “growing rods” in the patient that are attached to the spine with adjustable screws above and below the spinal curve. As the child grows, surgeries are needed every six months to lengthen the rods.

At Maria Fareri, DelBello has made use of a medical device, Magnetic Expansion Control Rods, part of a magnetictechnology treatment system that spares growing children multiple follow-up invasive surgeries once the MAGEC rods are implanted. Instead, the magnetically controlled rods are lengthened every three months by the surgeon using an external remote controller.

“The end result of the two procedures is the same from a mechanical point of view, but from the patients’ point of view, they don’t suffer the same physiological risks,” DelBello said. “I had several kids who were very upset and anxious about their traditional growth rods and when we changed them to the MAGEC rods the negative physiological effects ended.”

Reaching adolescence and skeletal maturity, patients receiving either the traditional or magnetic rod procedure typically undergo a spinal fusion surgery to permanently correct the spine with a titanium rod.

The MAGEC spinal bracing system was approved three years ago by the U.S. Food and Drug Administration for use in pre-adolescents with severe progressive spinal deformities. Newburgh resident Grace Ramos, whose 12-year-old son, Miguel, is a patient of DelBello’s, said her family is “very blessed” that the new technology was approved for use and adopted by Miguel’s pediatric surgeon.

Ramos was in her 23rd week of pregnancy with Miguel when a sonogram led to a diagnosis of infantile scoliosis in her unborn child. Miguel in infancy wore a brace 23 hours a day to stop or slow the progression of the spinal curve, but it had little effect. “The brace works for some kids with minor scoliosis, but when you have 40, 50 or 60 degrees of curvature, you need more than a brace to correct it,” his mother said.

“Miguel is very blessed that these new rods were available at the time that they were or else he would have been one of the children using the painful old procedure,” Ramos said. Dr. Delbello, she said, had his eye on the new procedure that had not yet been approved by the FDA and suggested the Ramos family wait until it became available.

“It pains me that there are children that have to endure painful extending procedures,” Miguel’s mother said.
“Children under the old procedure have to go to the emergency room and go under anesthesia to extend the rods.
The child is heavily medicated and has to stay over in the hospital one to two nights after each surgery. There is no attending school during this time and their lives are put on hold. Just as these children are feeling better again, they go back for another one.”

“Miguel sees Dr. DelBello every three months to extend the rods,” said Ramos. “The beauty of these rods is that we schedule an office visit instead of a hospital visit, he is not under anesthesia and it’s noninvasive.”

DelBello said his checkups for patients using the MAGEC rods “are six minutes, compared to an hour and a half procedure followed by an overnight stay with the traditional growth rods.”

The doctor and his just-turned-12 patient have formed a strong bond during those checkups and rod adjustments.  “Miguel talks with Dr. DelBello about basketball, sailing and baseball as he turns on a magnetic device that takes 30 seconds to extend each side,” Grace Ramos said.

“I talk to children in a straightforward manner and in an adult way,” said DelBello. “I don’t baby them in any way.
They get the same information their parents get. They understand more than we give them credit for.”

Miguel Ramos understands: “I am the luckiest scoliosis patient thanks to Dr. DelBello,” he said.

“We feel that although Miguel was born with scoliosis, our family is very blessed,” said Grace Ramos. “As a mother, I want it to be my mission to show every child with scoliosis these MAGEC rods.”

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DUBAI: Scoliosis—the condition wherein the spine curves due to genetic and environmental factors that may be diagnosed from early childhood to adolescence—must be immediately addressed, according to a paediatric orthopaedic surgeon in the past 18 years.

Interviewed, Dr. Zaid Al Aubaidi added: “I also believe that all congenital deformities like all spinal problems and issues and not only scoliosis must be included in health insurance policies. Idiopathic scoliosis appears after the age of 13.

“It is unethical not to because these are life-threatening to any individual, especially to the young who undergo and experience and will continually experience physical, psychological, emotional and social problems.”

He said global, regional and UAE records show that scoliosis is determined in three per cent of the population while there are other spinal deformities such as kyphosis (hunchback) and generally it is the girls or women who suffer the most.

Twenty-five years in the medical field, Al Aubaidi decided to become a paediatric orthopaedic surgeon because he saw the need.

He explained that orthopaedic surgery is all about helping the young,  analysed with spinal abnormalities, to become the “Straight Child” in order that their skeletal and muscular systems function well.

Saying “the head must be balanced with the pelvis,” Al Aubaidi reasoned that any spinal mis-alignment impacts on the vital organs.

“It is difficult when they get older,” he said, pointing out that with aging come stiffness and the inability to flex that consequently leads to muscle and skeletal strains that will affect the “ability to see.”

Al Aubaidi attends to between two and three young to teen-age scoliotic patients every week at his clinic in Burjeel Hospital for Advanced Surgery in Dubai, coming from across the UAE, Oman, Kuwait and Jordan.

The youngest on record is aged three while the eldest is 17 years old.

For these patients, he uses the Magec Rods or the Magnetic Expansion Control Technology, a 2012 invention and which he introduced in the country in 2014 after it got the clearance from the European Medicine Agency.

US hospitals started using the technology in 2015 after it was approved by the Food and Drug Administration.

Al Aubaidi said that with the technology, rods are embedded on the deformed spine through surgery.

The aim is to ease the burden of periodic surgeries on young scoliotic patients.

Once embedded, the rods are lengthened from time to time which may last for several minutes only per session.

Al Aubaidi said, “I just had a patient for that a while ago.”

 

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The ApiFix system represents a breakthrough treatment for Adolescent Idiopathic Scoliosis (AIS) as it is a minimally invasive, non-fusion spinal implant system which dramatically improves the quality of life of patients who undergo scoliosis surgery.  Additionally, it saves hospitalization and OR time, and is considerably more cost-effective than current scoliosis surgery.
“Incorporating the ApiFix system into our portfolio of products fits our mission to bring exceptional, unique, state-of the-art orthopedic products into the Australasian market. The ApiFix system provides game-changing technology for AIS patients and surgeons alike and we’re proud to include them in our suite of products,” commented Sam Scott-Young , Managing Director of Orthotech.
Standard scoliosis surgical correction is a highly invasive, lengthy procedure involving a long recovery period, and resulting in a rigid spine due to fusion of the vertebrae. The ApiFix approach brings an ingenious solution with its minimally invasive, non-fusion spinal implant system, inserted in a short procedure, followed by a brief recovery period, and maintains spine flexibility.
ApiFix CEO Eran Feldhay, M.D. remarked: “The certification for the ApiFix product by the TGA through our distribution partnership with Orthotech allows us to expand our reach and provide treatment for AIS patients in Australia too. We look forward to working with a company like Orthotech who are committed to innovative orthopaedic solutions for their customers.”

About ApiFix
ApiFix is an innovation-driven medical device company focused on providing less invasive solutions for scoliosis patients. ApiFix’s leading product for non-fusion treatment of adolescent idiopathic scoliosis (AIS) is used today in Europe. ApiFix is led by a team of highly-regarded spine surgeons and veteran spine specialists. The company has CE clearance and is marketed in Germany, Italy, Greece, The Netherlands, Spain and Israel.
ApiFix principals will attend the annual meeting of the Scoliosis Research Society, (SRS) in Philadelphia, USA on September 5-8 to present the ApiFix system, clinical cases and their follow-up to potential users from all over the world.

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Although surgical techniques continually improve over the years, conservative approaches are gaining steam.
“In looking at how the field has evolved over the last decade or two, it’s obvious that the opportunity for conservative management of scoliosis has evolved dramatically, more dramatically than opportunities for surgical management,” says Michael Vitale, MD, chief of the pediatric spine and scoliosis service at NewYork-Presbyterian Morgan Stanley Children’s Hospital.
Treating adolescent idiopathic scoliosis requires a unified approach, demanding a multidisciplinary, cross-functional team.
Despite significant opportunity for conservative scoliosis management, dissemination of the technique’s benefits has fallen behind that of surgical techniques. Dr. Vitale and other leaders in the field are, therefore, focusing their efforts on establishing best practices in scoliosis
conservative management and funneling the information into the mainstream discussion.
Actively involved on the board of the Pediatric Orthopaedic Society of North America, Dr. Vitale says the organization and others are dedicated to improving non-operative management of children with scoliosis.
The first step is early recognition of spinal deformity through screening. If spinal deformity is identified early, adolescents should first try scoliosis-specific physical therapy, says Dr. Vitale.
A specialized method for scoliosis, the Schroth method focuses on postural correction and breathing. The therapy puts patients in touch with their curve, so they understand how to alter their posture and stand in a braced position.
“In a growing child, the straighter you are when you’re growing, the straighter [your spine] will be,” explains Dr. Vitale. He and his colleagues investigated patient compliance’s impact on Schroth therapy. The subset of patients with high compliance had much lower rates of curve
progression, explains Dr. Vitale, a finding recently presented at a large international scoliosis meeting.
“Just like taking blood pressure medicine, compliance is key to success for bracing and scoliosis-specific physical therapy. Bracing doesn’t work if you don’t do it,” says Dr. Vitale.
Since compliance is so critical to scoliosis conservative treatment, Dr. Vitale is helping develop an app “to get into the kids’ heads.” The app allows children to share their physical therapy progress via a fun platform — online.
“We are also developing a seven-minute Schroth app, using the natural proclivity for electronics to get [the children] to do stuff,” he explains.
Dr. Vitale also serves as CMO for Wellinks, a wearable health technology company, unveiling Cinch — smart straps for scoliosis — this year. Cinch is connected to a compliance app that tracks information on how tightly and long a child wears the brace.
“Now it’s not just we’re prescribing a brace, but we have tools to track brace wear with a parental version, a patient version and a physical therapy version,” Dr. Vitale says. “The smart brace is a really interesting opportunity to use technology for patients in a way that is productive for their
health and in their best interest.”
Dr. Vitale urges the population to get on board to prevent progression toward surgery for adolescent idiopathic scoliosis. He actively tweets about non-operative resources available for AIS using the hashtag #cureAIS.
“Our aspiration is that, by working together and employing the full array of treatment options, together we can #cureAIS,” says Dr. Vitale.

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How is congenital scoliosis diagnosed?
Congenital scoliosis is usually diagnosed by doing an exam and taking a complete medical history.
Your child’s clinician may also order x-rays or EOS imaging.

x-rays
magnetic resonance imaging (MRI)
CT scan
ultrasound
pulmonary function tests
chromosomal analysis
EOS imaging

What are the treatment options for congenital scoliosis?
The treatment options for your child’s condition will depend on the severity of his or her
condition.
Some children with smaller curves may only require close monitoring during growth spurts.
Some curves are minor enough to be followed and measured without any treatment.
Children with congenital scoliosis who do need treatment usually require surgery. Bracing
and other types of non-surgical treatments are generally not effective for treating the curves
of congenital scoliosis, which are usually rigid and inflexible.
The surgical options for treating congenital scoliosis are similar to those for other types of
scoliosis.

What is the long-term outlook for congenital scoliosis?
The outlook for congenital scoliosis is dependent upon the nature and severity as well as any
other accompanying conditions. But with successful spine surgery and attentive postoperative
care, your child can have a spine that grows as normally as possible, with a
greater torso length than if left untreated.

 

 

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After surgery to correct her scoliosis, Sydney Sill wasn’t sure what she’d be able to do.
Titanium rods fused her spine and doctors told her not to participate in any physical activity for a year, which
was tough for such an active pre-teen.
“That was hard,” she told The Greenville News. “I was 12 and I wanted to be a cheerleader in middle school,
but I couldn’t.”
Once that year was over, though, Sill, now 21, was able to return to dancing, hiking, cheerleading and other
activities she enjoys.
This past June, the Duncan woman even became first runner up in the Miss South Carolina pageant.
And she credits Shriners Hospital for Children in Greenville for her restored health.
“I’m able to live a normal life,” she says. “I can never repay the Shriners Hospital for what they did, not only in healing me, but in giving me this platform where I can inspire other people.”

Pain and deformity
Scoliosis is a curvature of the spine that can lead to life-long pain and deformity, according to Shiners, which
provides specialty orthopedic care for children regardless of ability to pay. At its worst, it can prevent lungs from
developing normally and makes breathing difficult.
Because the condition, which afflicts as many as 9 million people in the United States, is not initially obvious,
children may not be diagnosed until the curvature is severe, the hospital reports.
Sill, a senior at Clemson University studying communications and nonprofit leadership, was diagnosed at age 7.
At that point, her spine was curved 28 degrees.
She spent the next four years in an uncomfortable back brace in an attempt to prevent it from getting worse. But
it progressed to 36 degrees and then to 54 degrees when she hit a growth spurt in 2007.
“I would get winded when I ran up the stairs because my rib cage was compressing my lungs,” she said. “That’s
why I had to have an operation.”
The spinal fusion surgery was done two days after her 12th birthday.
Sill is able to live a normal life — except for jumping on trampolines, she quips. And she’s learned to adjust to her
limited spinal flexibility.

Overcoming obstacles
“Most people think that when you have fusion, it makes you straight again and normal like any other person,” she said. “But they can only correct to about half of what the degree was. Mine is about 32 degrees now.”
In 2012, Sill won the Miss South Carolina Teen contest, tap dancing for the talent portion and using as her platform, “If you can believe it you can achieve it — Overcoming life’s obstacles.”
For the Miss South Carolina pageant this year, she tweaked her platform a little to “I’m possible — perseverance into possibilities.”
“I want to help other children through whatever obstacle, whether it’s being a patient in a hospital or having a bad home life,” she said. “And let them
know that if you persevere and have determination, you can overcome it.”
She still has a special place in her heart for Shriners. She’s done volunteer work there, comforting other children undergoing surgery. And she’s looking forward to an upcoming internship at the hospital as well.
“I’m doing really well now,” she said. “They really changed my life.”

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Scoliosis, or curvature of the spine, is a condition that afflicts between 6 million and 9 million Americans, including up to 10 percent of adolescents.
Often, it’s not noticed until it’s advanced.
But now parents can use a free app on their SmartPhones to determine whether their children suffer from the muskuloskeletal condition.
Developed by Shriners Hospitals for Children, the app works by simply placing the phone against the child’s spine, said Dr. J. Michael Wattenbarger, an orthopedic surgeon with Shriners in Greenville.
There, it measures the amount of curvature, he said, and recommends a child be seen by a doctor if it reaches a certain level.
“Scoliosis happens quickly in kids, often during adolescent growth spurts,” he said. “Parents will often say, ‘I saw him at the beach last summer and didn’t see anything, and all of a sudden he has a curved spine.’ ”
Wattenbarger said screening is recommended yearly because if caught early, there may be some medical interventions such as bracing that can prevent the need for surgery down the line.
Scoliosis leaves the spine resembling a ‘C’ or ‘S,’ according to Shriners, which provides specialty orthopedic care for children regardless of ability to pay.
It can lead to life-long pain and deformity, at its worst preventing lungs from developing normally and making breathing difficult.
While it can run in families, 85 percent of cases have no known cause. And it often appears during periods of rapid growth with children typically
diagnosed between the ages of 10 and 15.
Signs of scoliosis include uneven shoulders and hips, a body or head that leans to one side, and ribs sticking up on one side, according to Shriners.
Designed to be an intitial home check device for parents, the SpineScreen app, which is free on the App Store and Google Play, could also be beneficial
for family physicians and nurse practitioners, he said.
Simple to use, the app includes a brief video about scoliosis, Wattenbarger said, as well as a reminder to check for scoliosis every year.
“The best time to think about screening kids is when they start school and at Christmas break,” he said. “If it reaches a 15-20 degree curve, it’s worth
being seen by a specialist.”

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By Stephanie Turner sturner@aikenstandard.com Jun 25, 2017 Updated 23 hrs ago

When Leah Stoltz, 24, was diagnosed with scoliosis, she was in middle school and said she felt alone.

In order to connect with others in her situation, the New Yorker began a support group.

What started as a meeting with four girls in 2006 has exploded to an organization with chapters across the world. That organization is known as Curvy Girls and is based in Long Island.

In addition to chapters around the United States, there has been groups in Canada, Brazil, Australia, Mexico, Turkey, Spain and Kenya. Elisabeth Harkins, 18, of North Augusta, began the Curvy Girls Ga/SC-Scoliosis Support Group in 2011 and still serves as its leader.

June is National Scoliosis Awareness Month.

More about scoliosis

Scoliosis is a condition in which the spine curves to the side; it affects millions of people in America alone, according to the American Association of Neurological Surgeons.

The onset of the condition usually happens between the ages of 10 and 15.

Abigail Mullins, an 18-year-old from Grovetown, was 14 when she was diagnosed.

“I went into the doctor thinking I had a pulled muscle, which turned out to be the day I got diagnosed with adolescent idiopathic scoliosis,” she said.

Stoltz was diagnosed with the same condition.

Both women wore back braces at first but inevitably needed surgery.

“I tried a hard cast brace for almost a year back when I first got diagnosed, but then we found out that the brace wasn’t going to do much because my body was almost done growing. So I tried to wait it out to see if my curve would stop increasing. By my senior year, my curve had gotten … bad,” Mullins said.

Mullins’ operation occurred in December. Two rods and 17 screws were put into her spine.

“(They are) not only holding it straight but keeping it together to where it doesn’t start to curve again. … I was left with barely a scar,” Mullins said. “The surgery has helped me in so many ways. My clothes finally fit correctly because my hips and shoulders are aligned now. I can stand for longer periods of time without the back pain forcing me to sit down. The surgery has made certain pains stop like in my lower back and neck. On rough days, living with scoliosis even made it painful to breathe because my rib cage was shifting so much.”

Stoltz would try to avoid wearing her brace by hiding it in her locker, according to the Curvy Girls’ website. Her surgery happened in 2006. She had two titanium rods and 22 screws placed in her spine.

“My biggest concern was that I wouldn’t be able to dance for a year,” Stoltz said on the Curvy Girls’ website.

Years have past since her operation, and Stoltz said she is still able to go about her regular activities.

“I live a very, very normal life. It’s sometimes funny for me to remember that other people can bend their back even though I can’t. … I still do everything.  I play golf.  I dance. … I go to the gym.  I work out.  I just have really good posture,” Stoltz said, in a lighthearted manner.

More about Curvy Girls

While Stoltz has survived her adolescence with scoliosis, she knows that girls around the world still struggle with their own experiences with the condition.

“The No. 1 thing I’ve heard from everybody is that, when they are diagnosed, they feel so alone, Stoltz said. “It’s really hard to find someone else with it. It’s not very visible on most people, so people feel very alone, and that’s exactly how I felt. I felt very alone when I was wearing my brace and didn’t have anyone to talk to, so a lot of times, the first time that a girl will come to the meeting, is the very first time that they are meeting anybody else that has scoliosis. So it’s just this feeling about not being alone anymore.”

Stoltz won the Teen Nick HALO Award for starting the support group when she was a senior in high school.   HALO stands for Helping and Leading Others.

The Curvy Girls founder acknowledged that the award boosted attention to the organization.

“It’s absolutely amazing. It’s so crazy to think about that it’s become such a huge thing, but I recognize that the reason it has taken a life of its own because of this pay-it-forward aspect,” Stoltz said.

Through her work with the local chapter, Harkins has seen the impact it has had on girls here.

“It has connected girls in different stages of scoliosis so they can learn from each other,” she said. “Some girls have gotten more confident and become better advocates. I think we have all learned that just because we have scoliosis doesn’t mean we can’t do things. We might just have to find a different way to do some things.”

Curvy Girls has members from ages 6 to 22, with the leaders being at least 11.

Harkins also has gotten proclamations passed the last few years, and this year is no exception.

The state proclamation from S.C. Gov. Henry McMaster’s office declares June as Scoliosis Awareness Month, while the City of North Augusta’s proclamation from Mayor Bob Pettit and North Augusta City Council proclaims the month as Scoliosis Early Detection Awareness Month.

For more information on Curvy Girls, visit www.curvygirlsscoliosis.com.

For more information on how to join Curvy Girls Ga/SC-Scoliosis Support Group, message Harkins or the group through Facebook, call 803-270-1182 or email lisharkins@gmail.com.

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