On Tuesday, December 1, 2015, The National Scoliosis Foundation is participating in #GivingTuesday, a global day dedicated to giving. Last year, more than 30,000 organizations in 68 countries came together to celebrate in this philanthropic campaign.

We invite you to join the movement through your donation to support our mission which was born in 1976 out of a labor of love and assistance for Atlabachew Tedla, an Ethiopian teenager with a severe 145 ° spinal curve.

In 2016, we celebrate our 40th Anniversary of compassionate service to help people in need, and our dedicated awareness/screening/advocacy campaigns for preventive measures to minimize the impact scoliosis may have in their life.

We have accomplished much; however, we cannot rest until all children, regardless of race, creed, residence and/or socioeconomic condition, have access to early detection, diagnosis, and optimal treatment. Your donation on this#GivingTuesday will make a positive difference in someone’s life.

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USPSTF Public Comment Deadline is October 28, 2015

The US Preventive Services Task Force has published it’s draft research plan on Screening for Adolescent Idiopathic (AIS). To comment on the USPSTF draft plan please click here.

Draft: Proposed Key Questions to Be Systematically Reviewed

  1. Does screening for adolescent idiopathic scoliosis improve: a) health outcomes and b) the degree of abnormal curve in childhood or adulthood?
  2. What is the accuracy of screening for adolescent idiopathic scoliosis?
  3. Does treatment of adolescent idiopathic scoliosis with a Cobb angle of less than 50° at diagnosis improve: a) health outcomes and b) the degree of spinal curve in childhood or adulthood?
  4. What is the association between Cobb angle measurement in adolescence and health outcomes in adulthood?
  5. What are the harms of screening for adolescent idiopathic scoliosis?
  6. What are the harms of treatment of adolescent idiopathic scoliosis with a Cobb angle of less than 50° at diagnosis?

Draft: Proposed Research Approach

The proposed Research Approach identifies the study characteristics and criteria that the Evidence-based Practice Center will use to search for publications and to determine whether identified studies should be included or excluded from the Evidence Review. Criteria are overarching as well as specific to each of the key questions (KQs).

Include Exclude
Populations KQs 1, 2, 5: Asymptomatic children and adolescents ages 10 to 18 years

KQs 3, 6: Persons with adolescent idiopathic scoliosis diagnosed at ages 10 to 18 years with a Cobb angle of 10° to 50° detected through screening

KQ 4: Persons with adolescent idiopathic scoliosis diagnosed at ages 10 to 18 years with a Cobb angle of 10° to 50°

Persons with scoliosis of:

  • Neuromuscular etiology (e.g., cerebral palsy, myelomeningocele, muscular dystrophy, spinal muscular atrophy, spina bifida, spinal cord injuries)
  • Congenital etiology (e.g., hemivertebrae, failure of segmentation)
  • Mesenchymal/syndromic etiology (e.g., Marfan syndrome, mucopolysaccharidosis, osteogenesis imperfecta, inflammatory diseases, postoperative)
  • Early-onset idiopathic etiology (infantile [ages 0 to 3 years] or juvenile [ages 4 to 9 years])
Settings
  • Primary care or generalizable to primary care
  • School-based screening programs
  • Countries categorized as “High” on the Human Development Index (as defined by the United Nations Development Programme)
Specialty care (e.g., surgical clinics and clinics for conditions known to be associated with scoliosis) and other settings with a symptomatic population
Screening tests KQs 1, 2, 5: Forward bend test (with or without scoliometer/inclinometer), surface topography, or other methods (e.g., back-contour device), followed by x-ray for confirmation

KQ 2: Studies with a reference standard

KQs 1, 2, 5:

  • X-ray alone
  • Selective screening
Treatments KQs 3, 6:

  • Surgery
  • Nonoperative treatment, including but not limited to: bracing, physical therapy/exercise therapy, and electrical muscle stimulation
Comparison KQs 1, 2, 5: Usual care

KQs 3, 6: Observation, usual care

KQs 1, 2, 5: Studies with no comparator

KQs 3, 6: Comparative effectiveness studies

Harms KQ 5: Any screening harms, including but not limited to: labeling, radiation exposure

KQ 6: Any treatment harms, including but not limited to: psychosocial harms, physiological harms, functioning, or pain

KQs 5, 6: Studies with no comparator
Outcomes Intermediate outcomes: Cobb angle measurement

Health outcomes:

  • Morbidity (e.g., pulmonary symptoms, hypertension, lumbar radiculopathy)
  • Quality of life
  • Functional outcomes (e.g., pain, musculoskeletal function, activity restriction)
  • Mortality
Study design KQs 1–4: Randomized, controlled trials; controlled trials; cohort studies

KQs 5, 6: Randomized, controlled trials; controlled trials; cohort studies; case series

All KQs: Studies rated as poor quality

KQs 1–4: Case series, cost-effectiveness studies, qualitative study designs

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Fond Memories of Herb Homer

On this anniversary of 9/11 we express our gratitude for everyone who keeps us safe and protects our freedom in our daily lives. We also remember the people and families greatly impacted by this terrible tragedy, especially for our friend and fellow Board Member, Herb Homer, who was aboard United Flight 175. May he forever rest in peace.

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Medical Device Patient Labeling

The Food and Drug Administration (FDA) is announcing a public workshop entitled “Medical Device Patient Labeling”. The purpose of the public workshop is to discuss issues associated with the development and use of medical device patient labeling including content, testing, use, access, human factors, emerging media formats, and promotion and advertising. The Center for Devices and Radiological Health (CRDH) is seeking input about these topics from patients and advocacy groups, academic and professional organizations, industry, standards organizations, and governmental agencies.

This workshop will be available by webcast. CDRH encourages patients and patient advocates/organizations to participate.

For additional information and registration, please see:

http://www.fda.gov/MedicalDevices/NewsEvents/WorkshopsConferences/ucm455361.htm

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You can make a difference! Your input is welcomed!

The is building a new website to mark our 40th year of service to the community. And, we’d love to have your input!

For four decades we have generated scoliosis awareness, provided patient education/support/communication, trained screeners, facilitated/funded research (cause, prevention & cure), and advocated for early detection and treatment to minimize the physical, emotional and financial burdens affecting patients, and families, living with abnormal curvatures of the .

Your input to our site design effort is important and appreciated. What do you suggest we include on our new website? What information or resources would you like to see to better help you, your family, the greater scoliosis community and/or our mission? What should we add to ease the scoliosis patient journey and improve the quality of life for all?

We are planning some exciting new features, but we value your thoughts and are eager to listen to your needs. No idea is too big or too small. Please email your input to nsf@scoliosis.org.

Thank you in advance for your help!

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June is Scoliosis Awareness Month!

Thank you to all the doctors, clinicians, nurses, healthcare/government officials and patients & family members who are working to spread the scoliosis awareness campaign throughout the U.S. and to many countries around the globe, from Canada, to the U.K. and as far reaching as Turkey.

We need a strong collective voice advocating for early detection and treatment to ensure that children and families receive the optimal care they deserve. A special thank you to our local policy makers, providers, and school nurses for their continual support for more than thirty years.

 

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Scoliosis Awareness Day Proclamation Ceremony in Canada

OTTAWA, May 27, 2015 /CNW/ – Join the Curvy Girls Ottawa at the Scoliosis Awareness Day Proclamation Ceremony at City Hall! This event is open to the public and begins at 8:45 a.m. on Monday June 1, 2015.

Curvy Girls Ottawa is a peer-lead support group for teens with scoliosis. Scoliosis is a medical condition resulting in a curvature of the spine. Many Canadians are affected by this condition and more awareness is needed! June 1st is also Scoliosis Awareness Day in Ottawa.

Mayor Jim Watson will present the proclamation to the Curvy Girls at City Hall. The Curvy Girls invite the public, as well as local media to attend the ceremony to raise awareness for scoliosis. To show your support, wear pink or green!

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SRS VP Kenneth Cheung, MD Running in London Marathon

We applaud Kenneth Cheung, MD, Vice President of the Scoliosis Research Society (SRS), who is running in the London Marathon on April 26, 2015 to raise funds for scoliosis. Funds raised will be split between the SRS and the British Scoliosis Research Foundation. To read more and donate to support Dr. Cheung please go to his fundraising page at  http://uk.virginmoneygiving.com/team/SRS

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Scolioscreen – A New Alternative to the Scoliometer!

We are pleased to offer the new Scolioscreen device which in combination with the Scolioscreen APP, (available at iTunes) allows for the early detection of scoliosis, and also enables patients and families to track the status of an abnormal spinal curve at home. Scolioscreen won the Best New Technology Award and is today’s innovative modern alternative for yesterday’s scoliometer! Scolioscreen is designed to fit all smartphones, with or without a protective case.

To learn more about this product, or to purchase, go to Scolioscreen in our store.

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