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Recent news and upcoming events

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January 7, 2016

USPSTF's Final Research Plan for AIS Screening

The U.S. Preventive Services Task Force (USPSTF) posted today a final research plan on Screening for Adolescent Idiopathic Scoliosis. The draft research plan for this topic was posted for public comment from October 1, 2015 to October 28, 2015. The Task Force reviewed all of the comments that were submitted and took them into consideration as it finalized the research plan.

To view the final research plan, please go to http://www.uspreventiveservicestaskforce.org/Page/Document/final-research-plan/adolescent-idiopathic-scoliosis-screening1.

December 31, 2015


Happy New Year! Thank you to all our donors and volunteers for your support this past year. We wish everyone joy and good health in 2016, as we celebrate our 40th Anniversary! 

November 30, 2015


The National Scoliosis Foundation Joins the Global #GivingTuesday Movement to Raise Funds for the Early Detection & Prevention of Progressive Spinal Deformity

On Tuesday, December 1, 2015, The National Scoliosis Foundation is participating in #GivingTuesday, a global day dedicated to giving. Last year, more than 30,000 organizations in 68 countries came together to celebrate in this philanthropic campaign.

We invite you to join the movement through your donation to support our mission which was born in 1976 out of a labor of love and assistance for Atlabachew Tedla, an Ethiopian teenager with a severe 145 ° spinal curve.

In 2016, we celebrate our 40th Anniversary of compassionate service to help people in need, and our dedicated awareness/screening/advocacy campaigns for preventive measures to minimize the impact scoliosis may have in their life. 

We have accomplished much; however, we cannot rest until all children, regardless of race, creed, residence and/or socioeconomic condition, have access to early detection, diagnosis, and optimal treatment. Your donation on this #GivingTuesday will make a positive difference in someone’s life.

October 14, 2015

USPSTF Public Comment Deadline is October 28, 2015

The US Preventive Services Task Force has published it's draft research plan on Screening for Adolescent Idiopathic Scoliosis (AIS). To comment on the USPSTF draft plan please click here.

Draft: Proposed Key Questions to Be Systematically Reviewed

  1. Does screening for adolescent idiopathic scoliosis improve: a) health outcomes and b) the degree of abnormal spinal curve in childhood or adulthood?
  2. What is the accuracy of screening for adolescent idiopathic scoliosis?
  3. Does treatment of adolescent idiopathic scoliosis with a Cobb angle of less than 50° at diagnosis improve: a) health outcomes and b) the degree of spinal curve in childhood or adulthood?
  4. What is the association between Cobb angle measurement in adolescence and health outcomes in adulthood?
  5. What are the harms of screening for adolescent idiopathic scoliosis?
  6. What are the harms of treatment of adolescent idiopathic scoliosis with a Cobb angle of less than 50° at diagnosis?

Draft: Proposed Research Approach

The proposed Research Approach identifies the study characteristics and criteria that the Evidence-based Practice Center will use to search for publications and to determine whether identified studies should be included or excluded from the Evidence Review. Criteria are overarching as well as specific to each of the key questions (KQs).





KQs 1, 2, 5: Asymptomatic children and adolescents ages 10 to 18 years

KQs 3, 6: Persons with adolescent idiopathic scoliosis diagnosed at ages 10 to 18 years with a Cobb angle of 10° to 50° detected through screening

KQ 4: Persons with adolescent idiopathic scoliosis diagnosed at ages 10 to 18 years with a Cobb angle of 10° to 50°

Persons with scoliosis of:

  • Neuromuscular etiology (e.g., cerebral palsy, myelomeningocele, muscular dystrophy, spinal muscular atrophy, spina bifida, spinal cord injuries)
  • Congenital etiology (e.g., hemivertebrae, failure of segmentation)
  • Mesenchymal/syndromic etiology (e.g., Marfan syndrome, mucopolysaccharidosis, osteogenesis imperfecta, inflammatory diseases, postoperative)
  • Early-onset idiopathic etiology (infantile [ages 0 to 3 years] or juvenile [ages 4 to 9 years])


  • Primary care or generalizable to primary care
  • School-based screening programs
  • Countries categorized as “High” on the Human Development Index (as defined by the United Nations Development Programme)

Specialty care (e.g., surgical clinics and clinics for conditions known to be associated with scoliosis) and other settings with a symptomatic population

Screening tests

KQs 1, 2, 5: Forward bend test (with or without scoliometer/inclinometer), surface topography, or other methods (e.g., back-contour device), followed by x-ray for confirmation  

KQ 2: Studies with a reference standard

KQs 1, 2, 5:

  • X-ray alone
  • Selective screening


KQs 3, 6:

  • Surgery
  • Nonoperative treatment, including but not limited to: bracing, physical therapy/exercise therapy, and electrical muscle stimulation



KQs 1, 2, 5: Usual care

KQs 3, 6: Observation, usual care

KQs 1, 2, 5: Studies with no comparator

KQs 3, 6: Comparative effectiveness studies


KQ 5: Any screening harms, including but not limited to: labeling, radiation exposure

KQ 6: Any treatment harms, including but not limited to: psychosocial harms, physiological harms, functioning, or pain

KQs 5, 6: Studies with no comparator


Intermediate outcomes: Cobb angle measurement

Health outcomes:

  • Morbidity (e.g., pulmonary symptoms, hypertension, lumbar radiculopathy)
  • Quality of life
  • Functional outcomes (e.g., pain, musculoskeletal function, activity restriction)
  • Mortality


Study design

KQs 1–4: Randomized, controlled trials; controlled trials; cohort studies

KQs 5, 6: Randomized, controlled trials; controlled trials; cohort studies; case series

All KQs: Studies rated as poor quality

KQs 1–4: Case series, cost-effectiveness studies, qualitative study designs

September 30, 2015

U.S. Preventive Services Task Force to Review Scoliosis Screening

The National Scoliosis Foundation is pleased to report that the U.S. Preventive Services Task Force will be reviewing screening for scoliosis. We encourage everyone to sign up per the notification below to follow this very important effort, which we hope will lead to an evidence based decision to replace their 2004 statement with a posiitve recommendation for early detection of AIS.

“Soon, the U.S. Preventive Services Task Force (USPSTF, Task Force) will be posting for public comment our draft research plan on screening for adolescent idiopathic scoliosis on our Web site. We thought that you and members of your organization might be interested in providing feedback on this draft research plan and receiving periodic updates on this topic. As such, I invite you to sign up for the USPSTF email list to receive announcements and updates on this and other Task Force recommendations about clinical preventive services. The USPSTF email list is open to anyone with interest in our work, so please let members of your organization know about this opportunity to offer comments on our research plan and the ability to sign up to receive updates from the Task Force. 

As you may know, the Task Force is an independent, volunteer panel of national experts in prevention and evidence-based medicine. Our mission is to improve the health of all Americans by making evidence-based recommendations about clinical preventive services such as screenings, counseling services, and preventive medications. The Task Force believes that the recommendation development process should be clear and transparent and, in an effort to ensure this, has implemented public comment periods throughout the recommendation process. The purpose of the public comment process is to seek feedback from organizations like yours, along with the general public, at each stage of development. The Task Force believes that our recommendations are ultimately improved when groups who care about and are knowledgeable about particular topics share their expertise. We solicit outside input to ensure that final recommendations are valid, reliable, and useful to health professionals, patients, and family members.

Individuals who sign up for the USPSTF email list will be alerted about opportunities to provide public comment on draft materials for screening for adolescent idiopathic scoliosis and other Task Force topics. Email alerts will also be sent when final materials are posted or published, including the release of final recommendation statements. For each topic, an email announcement will be sent at the following stages of the recommendation development process:

  • Posting of the draft research plan for public comment
  • Posting of the final research plan
  • Posting of the draft recommendation statement and draft evidence review for public comment
  • Publication and posting of the final recommendation statement and the evidence summary

We hope that you will widely disseminate the final recommendation statement, following the rigorous, evidence-based recommendation development process and public comment periods, among your membership and encourage your members to implement it once it becomes available.

As I noted earlier, the USPSTF email list is open to all interested organizations and individuals. If you know of any other national or local organizations, subject matter experts, or individuals who are interested in learning about Task Force recommendations, like screening for adolescent idiopathic scoliosis, public comment opportunities, and other Task Force activities, please encourage them to sign up as well.

To learn more about the Task Force, you can view a Task Force 101 slideshow or visit our Web site.

Together, we can work to improve the health of all Americans.                          


Albert L. Siu, M.D., M.S.P.H.

Chair, U.S. Preventive Services Task Force”

September 11, 2015


On this anniversary of 9/11 we express our gratitude for everyone who keeps us safe and protects our freedom in our daily lives. We also remember the people and families greatly impacted by this terrible tragedy, especially for our friend and fellow Board Member, Herb Homer, who was aboard United Flight 175. May he forever rest in peace.



September 2, 2015

The Food and Drug Administration (FDA) is announcing a public workshop entitled “Medical Device Patient Labeling”. The purpose of the public workshop is to discuss issues associated with the development and use of medical device patient labeling including content, testing, use, access, human factors, emerging media formats, and promotion and advertising. The Center for Devices and Radiological Health (CRDH) is seeking input about these topics from patients and advocacy groups, academic and professional organizations, industry, standards organizations, and governmental agencies.

This workshop will be available by webcast. CDRH encourages patients and patient advocates/organizations to participate.

For additional information and registration, please see:


July 23, 2015

You can make a difference! Your input is welcomed!

The National Scoliosis Foundation is building a new website to mark our 40th year of service to the scoliosis community. And, we’d love to have your input!

For four decades we have generated scoliosis awareness, provided patient education/support/communication, trained screeners, facilitated/funded research (cause, prevention & cure), and advocated for early detection and treatment to minimize the physical, emotional and financial burdens affecting patients, and families, living with abnormal curvatures of the spine.

Your input to our site design effort is important and appreciated. What do you suggest we include on our new website? What information or resources would you like to see to better help you, your family, the greater scoliosis community and/or our mission? What should we add to ease the scoliosis patient journey and improve the quality of life for all?

We are planning some exciting new features, but we value your thoughts and are eager to listen to your needs. No idea is too big or too small. Please email your input to nsf@scoliosis.org.

Thank you in advance for your help!

June 1, 2015


June is Scoliosis Awareness Month!

Thank you to all the doctors, clinicians, nurses, healthcare/government officials and patients & family members who are working to spread the scoliosis awareness campaign throughout the U.S. and to many countries around the globe, from Canada, to the U.K. and as far reaching as Turkey. 

We need a strong collective voice advocating for early detection and treatment to ensure that children and families receive the optimal care they deserve. A special thank you to our local policy makers, providers, and school nurses for their continual support for more than thirty years.



May 27, 2015

Scoliosis Awareness Day Proclamation Ceremony in Canada

OTTAWA, May 27, 2015 /CNW/ - Join the Curvy Girls Ottawa at the Scoliosis Awareness Day Proclamation Ceremony at City Hall! This event is open to the public and begins at 8:45 a.m. on Monday June 1, 2015.

Curvy Girls Ottawa is a peer-lead support group for teens with scoliosis. Scoliosis is a medical condition resulting in a curvature of the spine. Many Canadians are affected by this condition and more awareness is needed! June 1st is also Scoliosis Awareness Day in Ottawa.

Mayor Jim Watson will present the proclamation to the Curvy Girls at City Hall. The Curvy Girls invite the public, as well as local media to attend the ceremony to raise awareness for scoliosis. To show your support, wear pink or green!

February 26, 2015


SRS VP Kenneth Cheung, MD Running in London Marathon

We applaud Kenneth Cheung, MD, Vice President of the Scoliosis Research Society (SRS), who is running in the London Marathon on April 26, 2015 to raise funds for scoliosis. Funds raised will be split between the SRS and the British Scoliosis Research Foundation. To read more and donate to support Dr. Cheung please go to his fundraising page at  http://uk.virginmoneygiving.com/team/SRS

January 30, 2015


Scolioscreen – A New Alternative to the Scoliometer!



We are pleased to offer the new Scolioscreen device which in combination with the Scolioscreen APP, (available at iTunes) allows for the early detection of scoliosis, and also enables patients and families to track the status of an abnormal spinal curve at home. Scolioscreen won the Best New Technology Award and is today’s innovative modern alternative for yesterday’s scoliometer! Scolioscreen is designed to fit all smartphones, with or without a protective case.

To learn more about this product, or to purchase, go to Scolioscreen in our store.


January 29, 2015


January 26, 2015

A population-based cohort study of 394,401 children followed for ten years exhibits sustained effectiveness of scoliosis screening.

Fong DY1, Cheung KM2, Wong YW2, Wan YY3, Lee CF4, Lam TP5, Cheng JC5, Ng BK6, Luk KD7.

The value of scoliosis screening has been recently shown in a multicentre randomised controlled trial. However, the long-term sustainability of the clinical effectiveness of scoliosis screening as a routine health service remains unknown.

To assess the sustainability of the clinical effectiveness of school scoliosis screening.

A large population-based cohort study with a ten-year follow-up.

Three hundred ninety-four thousand four hundred and one students who were in fifth grade during the five academic years from 1995/1996 to 1999/2000 formed five consecutive annual cohorts. The students were eligible for the Hong Kong scoliosis screening programme, with their screening history and medical records until their nineteenth birthdays being assessed.

Development of adolescent idiopathic scoliosis by the 19 years of age and the Cobb angle.

The clinical effectiveness of scoliosis screening was assessed by referral rate for radiographic diagnosis, sensitivity, specificity, and predictive values. Funding Source: Central Policy Unit of the Government of the Hong Kong Special Administrative Region and the Research Grants Council of the Hong Kong Special Administrative Region, China (Project No.: HKU 7003-PPR-09). Potential Conflict of interest-associated biases: Nothing to disclose.

A total of 306,144 (78%) students participated in scoliosis screening, which used a two-tier system. The prevalence of curves ≥ 20° was 1.8% (95% confidence interval [CI] 1.7%-1.8%), while the referral rates for radiography, the sensitivity, and the positive predictive value (PPV) for curves ≥ 20° were 4.1% (95% CI 4.0%-4.2%), 91% (95% CI 90%-92%), and 40% (95% CI 39%-41%), respectively. Across the five consecutive annual cohorts, the prevalence and sensitivity for curves ≥ 20° increased by 0.23% (95% CI 0.21%-0.25%; p<.001) and 0.76% (95% CI 0.43%-1.04%; p<.001) per year, respectively; however, the PPV was reduced by 1.71% (95% CI 1.09%-2.33%; p<.001) per year.

This report describes the first large population-based study with a long-term follow-up indicating that a scoliosis screening programme can have sustained clinical effectiveness in identifying patients with adolescent idiopathic scoliosis needing clinical observation. As the prevalence of adolescent idiopathic scoliosis increases, scoliosis screening should be continued as a routine health service in schools or by general practitioners if there is no scoliosis screening policy.

Spine J. 2015 Jan 20. pii: S1529-9430(15)00035-2. doi: 10.1016/j.spinee.2015.01.019. [Epub ahead of print]
Copyright © 2015 Elsevier Inc. All rights reserved.


January 26, 2015


~~The FDA posted a safety communication titled, "Use of Bone Graft Substitutes Containing Recombinant Proteins or Synthetic Peptides in Patients under Age 18."  The FDA is informing healthcare providers, patients, and parents/guardians that bone graft substitutes containing recombinant proteins or synthetic peptides should not be the first treatment considered for patients under age 18 with significant bone defects or rare bone disorders. The FDA has not approved these products for use in patients under age 18 because their bones may still be growing and using this product may cause serious injuries. The agency recommends that health providers consider other treatment options first.  To read the entire safety communication, please see: http://www.fda.gov/MedicalDevices/Safety/AlertsandNotices/ucm430868.htm

December 31, 2014


Happy New Year!

May the blessings of family and friends enrich your life, and may you have a Healthy & Happy New Year! 

As our vision turns towards 2015 we kindly ask you to donate today to support our mission to prevent the progression of scoliosis through early detection and treatment.

One out of every forty children is affected by scoliosis which can impact the quality of their life and cause diminished self-esteem, chronic back pain, and problems with heart or lung function. Your donation will support our awareness, education and screening programs aimed to help minimize the physical, emotional and financial burdens of spinal deformity by insuring that all children have an equal opportunity for the early detection of scoliosis, and access to the least invasive, less costly and most effective treatment options possible.

Thank you for your generosity.

October 24, 2014


Pedal for Pennies

We congratulate John Nightingale for completing his 2,000 mile “Pedal for Pennies” bicycle journey to raise awareness and funds for Infantile Idiopathic Scoliosis and the Shriners Hospitals. John and Susan Nightingale are grateful for the treatment their daughter Greysen, has received at the Shriners in Greenville, SC, so they decided to give back via the bike ride. John recently finished his trek in Boston….... click here for more


October 24, 2014

Irish Parliamentarian slams delays in treating scoliosis

Delays in treatment for young people with scoliosis are causing increased suffering for children and greater expense for the taxpayer, the Dáil has ... click to read more

July 8, 2014

ESPY Award Vote for Stacy Lewis

Stacy Lewis has been nominated by ESPN for a 2014 ESPY Award for "Best Female Golfer"!  Stacy is currently ranked #1 in the world and leads the LPGA in almost every important category. The other nominees are Michelle Wie, Inbee Park and Suzann Pettersen.

Stacy is a post surgical scoliosis patient who has helped bring much media attention and awareness for scoliosis. The 2014 ESPY Award is a win/win for her, and for scoliosis, so we respectfully ask you to vote for Stacy to receive the award she rightly deserves:

 1. Go to:  http://espn.go.com/espys/2014/

 2. Click on "Click for More Categories"

 3. Click on "Best Female Golfer"

 4. Click on the Stacy Lewis image to Vote for her

The process is simple and easy so please don’t delay as the voting ends on JULY 16th!

November 28, 2013

Happy Thanksgiving!

In the spirit of this season, the National Scoliosis Foundation expresses sincere gratitude to our volunteers, fundraisers, ambassadors, collaborators and donors. Your contribution makes a difference in many people's lives.

On this special day we also ask for your help.

One out of every forty people has an abnormal curvature of the spine known as scoliosis. Every minute of the day someone is looking for the help and hope we provide.

Together, we give valuable information and support to thousands of patients and families, and minimize the burdens of spinal deformity by insuring that all children have an equal opportunity for the early detection of scoliosis, and access to the least invasive, less costly and most effective treatment options possible. The recent NIH sponsored BrAIST Study strongly reaffirms our mission and services.

Your generous donation will enable us to continue our mission for early detection and treatment of scoliosis to improve the quality of life and care for all those affected by this condition.

The holidays are the season for giving. And there's no better gift than the gift of help and hope.

Happy Holidays to you and your loved ones!

September 19, 2013

Braist Study Results Shows Bracing Significantly Better Than Natural History

Dr. Stu Wienstein presented at the Scoliosis Research Society meeting in Lyon, France the results of his randomized prospective bracing study initiated in 2007. The Braist study is published today in the New England Journal of Medicine. Twenty five centers participated in the study which concludes that bracing is able to prevent progression of the curve reaching a surgical level of 50 degrees in 72% of the cases versus only 48% in cases being observed only. This study corroborates and adds enhanced credibility to the evidence for the effectiveness of bracing and reaffirms the National Scoliosis Foundation's mission of early detection and treatment.

May 12, 2013

Color the Curve

What: 5K color race to benefit scoliosis research

When: 9 a.m. June 8; today is last day to preregister

Where: Greenway Farms

Cost: $35 individual runner; $30 team members; $25 1-mile runners; $30 virtual racers (online)

Contact: colorthecurve.com

During a routine sports physical in February 2012, sixth-grader Kaitlyn McAfee was diagnosed with scoliosis, a musculoskeletal disorder in which the spine curves sideways.

Kaitlyn, 12, had never heard of scoliosis, but instead of shrouding herself in fear, she did the opposite, searching the Web to arm herself with information.

According to mayoclinic.com, scoliosis occurs most often in girls during the growth spurt just before puberty. Its cause is unknown. Most cases are mild, but some children develop spinal deformities that get worse as they grow. In some cases, surgery is needed to keep the scoliosis from worsening or to straighten severe cases.

Last December, Kaitlyn underwent spinal fusion surgery and now has two rods and 17 screws in her back. Still, she's planning to walk -- and possibly run -- in "Color the Curve, a 5K Color Race for Scoliosis" on June 8, an event she founded to raise money for the National Scoliosis Foundation www.scoliosis.org.

"It takes about a year for the fusion to completely take," she says. "After that, I should be able to return to most all activities and lead a normal life."

"One of her goals, beyond helping others diagnosed with scoliosis, is to raise money for scoliosis," says Kaitlyn's mom, Jennifer McAfee. "She loves to run and wanted to do a 5K fundraiser."

In addition to the Color the Curve race, Kaitlyn also founded the first Tennessee chapter of International Curvy Girls, a peer-to-peer and family-to-family scoliosis support group she learned about on the Internet.

Kaitlyn is doing core-strengthening exercises with Amanda Holmes at Pure Barre in East Brainerd in an effort to get her body ready for running in the race.

With National Scoliosis Month set every June, Kaitlyn wants to make the race an annual event, "even though it is a lot of work."

"It's very rewarding, and it's amazing how many other people I've met that have scoliosis.

"Since it's the first year for Color the Curve, it's been hard to guess at how much [money] we will raise," she says. "People that can't make it to Chattanooga for the event can either choose to simply donate or register as a 'virtual racer'; they pay the registration fee and we mail a T-shirt after the event. I just want to raise as much money as possible."

Running to remember: Locally created charity events honor the living and the dead By Karen Nazor Hill - Chattanooga Times Free PressContact staff writer Karen Nazor Hill at khill@timesfreepress.com or 423-757-6396. Follow her on Twitter at twitter.com/karennazorhill. Subscribe to her posts on Facebook at www.facebook.com/karennazorhill.






May 15, 2013

USBJI Celebrates 500th Fit to a T Session

Fit to a T, the US Bone & Joint Initiative's (USBJI) free public education program on bone health and osteoporosis, reached a milestone last week with the presentation of its 500th session. "We developed Fit to a T as a sustainable public education program, in response to the Surgeon General's Report on Bone Health and Osteoporosis. Bone health has a significant impact on overall health for everyone, regardless of race or whether you are male or female. Participants in the program learn how to maintain their bone health and how to identify their own risk factors for bone loss and osteoporosis. Being able to celebrate the 500th session demonstrates the continued public interest in this topic," said Kimberly Templeton, MD, USBJI president and chair of the USBJI Fit to a T Task Force.

Joe O’Brien, the National Scoliosis Foundation's President & Patient, is currently the Treasurer of USBJI and has served two terms on the Board as a Patient Representative. Mr. O'Brien was nominated by the Scoliosis Research Society, a long time member of the USBJI, to represent the interests of the scoliosis community. Joe stated, "Bone health is particularly important for the adult spinal deformity patient, so we encourage everyone to attend USBJI's educational program."

Relevant to all ages, Fit to a T is targeted at men and women in their mid-40s to late 60s, as well as seniors and others who have or are at risk of having a broken bone. To schedule a session in your community, contact Shari Maier, USBJI program coordinator, 847/430-5054 or usbji@usbji.org.

December 21, 2012


Happy Holidays!

The Northern California Chapter of the National Scoliosis Foundation will start the New Year with a meeting on:

Date: Saturday, January 12, 2013 Time: 1pm to 3pm.

Location: Sutter Cancer Center -  2800 L Street, Sacramento, CA - 2nd floor

Guest Speaker:  Daniel Benson, MD

Dr. Benson will give an informative presentation about the History of Scoliosis Treatment.  This is a wonderful and interesting lecture. 

Please RSVP if possible to Chapter President Diane Gums, at dgummer@comcast.net Refreshments will be served.

August 28, 2012


Transgenomic Acquires ScoliScore™ Adolescent Idiopathic Scoliosis Prognostic Test from Axial Biotech

OMAHA, Neb. (August 28, 2012) - Transgenomic, Inc. (OTCBB: TBIO) announced today that it has entered into a definitive agreement to acquire the global rights to Axial Biotech’s ScoliScore™ Adolescent Idiopathic Scoliosis (AIS) Prognostic Test for a total consideration of $4.4 million in cash. The acquisition provides Transgenomic with the ScoliScore™ assay technology and intellectual property, an established revenue and customer base and access to a market estimated at 400,000 patients in the United States.

 Read more…..     

July 26, 2012


Fourth Annual Sound for Scoliosis Event 

The annual “Sound for Scoliosis” National Scoliosis Foundation fundraiser will be officially held on July 26 through July 29, 2012.  Sound for Scoliosis is a multi-venue event featuring music from live bands and a silent auction. The venue schedule for Sound for Scoliosis 2012 is

Thursday, July 26 from 8 p.m. to 2 a.m. at Irish Wolf Pub, corner of North Washington and Linden Street in Scranton, Pennsylvania

Friday, July 27 from 4 p.m. to 2 a.m. at Heil’s Place, 1002 Wheeler Avenue in Scranton, Pennsylvania

Saturday, July 28 from 6 p.m. to 1 a.m. at Genetti’s Manor, 1505 Main Street in Dickson City, Pennsylvania. The silent auction will be toward the end of the evening.

Sunday, July 29 from 4 p.m. to 2 a.m. at Heil’s Place, 1002 Wheeler Avenue, Scranton, Pennsylvania. The fund raiser is in its fourth year and the event coordinators are expecting this to be a “breakout year” for the event. 


Sound for Scoliosis is endorsed by the National Scoliosis Foundation which receives all of the donations.  President of Pennsylvania Chapter of the National Scoliosis Foundation and Sound for Scoliosis founder Lucia Peregrim states, “This year’s event includes a four-stage experience on the Saturday show.  Tickets are$7.00 per day and a $15.00 VIP pass for all four days.  Headliners include “Skin n Bones”, “The Curse of Sorrow”, “True Becoming”, “Alamance”, “The Chosen 1’s”and “Six Guns Loaded”.  Great bands coming together for a great cause!”   Tickets for Sound for Scoliosis are available by contacting Sound for Scoliosis founder Lucia Peregrim through email at soundforscoliosis@gmail.com or telephone 570-558-9247

June 4, 2012

Stacy Lewis wins ShopRite LPGA Classic

Stacy Lewis’ third career victory and second-consecutive stroke play win was particularly timely, as she can now celebrate her win in the first week of June which has been declared National Scoliosis Awareness Month. The National Scoliosis Foundation (NSF) secured the first official U.S. House of Representatives Proclamation from Pennsylvania in 2008 to designate the month in an effort to help create a positive public awareness, education, and advocacy campaign. Lewis has been open about her childhood struggles with the condition and is a spokesperson for the Scoliosis Research Society. 

Read more......

May 15, 2012


Save the Date! 

Please join the National Scoliosis Foundation and the Scoliosis Research Society on Monday, June 11th at the State House in Boston, MA from 1-3pm to celebrate June is National Scoliosis Awareness Month! On this occasion,  we will also recognize Frank Rand, MD from the New England Baptist Hospital. Dr. Rand, an SRS member, has been an NSF Medical Advisor for twenty five years, and has helped thousands of scoliosis patients.

A light lunch will be served, and a group picture will be taken on the Grand Staircase. We welcome you all to join us, and ask that you please RSVP to nsf@scoliosis.org by June 4th.

January 25, 2012


New PSA on YouTube!

Rebekah Maynard at the Art Institute of Dallas has produced a Public Service Announcement (PSA) for the National Scoliosis Foundation. We greatly appreciate such a well done professional PSA, and give a heartfelt shoutout, and thank you, to her and everyone involved. 

 Click here for new PSA .......

November 15, 2011


First Scoliosis Patient with "Compassionate Use" Phenix Rod  

KPTV in Portland, OR reported that a five year old boy at Shriner’s Hospital was the first patient in North America to receive the Phenix Rod, which is a remotely expandable device.  According to the FDA, the “compassionate use” provision, which this rod is approved as, allows access to investigational devices for patients who do not meet the requirements for inclusion in a clinical investigation, but for whom the treating physician believes the device may provide a benefit in treating and/or diagnosing their disease or condition. This provision is typically approved for individual patients but may be approved to treat a small group.

To read the full story go to ……Newly approved device helps children with scoliosis

October, 14, 2011


Vote for Scoliosis Bow Tie for World Series! Let’s go Viral!

We have a fabulous opportunity to vote as a community of scoliosis patients, providers, advocates and friends.  Please stand up and vote for the SRS Bow Tie and let the world become more aware of the spinal deformity that affects so many lives, and the power of the community living with, and caring for, this condition. The details are below. Just go to Facebook and record your vote for the SRS blue bow tie. If you are not on Facebook, then ask your kids or friends to vote for you!  Let’s make sure Ken Rosenthal proudly wears the SRS bow tie during the World Series.

Spread the word! The time to act is now!


Recently  Ken Rosenthal, a TV Sports Writer, wore a bow tie supporting the Scoliosis Research Society on Fox News. His daughter is a patient of Dr. Loyd Hey.  The link to the story is below.


We now have the opportunity for the SRS bow tie to be worn during the World Series. The bow tie is up for vote on Facebook through the link below. Simply “like” the SRS tie (second to last row, dark blue with spines) as the tie with the most “likes” will be worn.


June 1, 2011

Come Celebrate! June is National Scoliosis Awareness Month!

The National Scoliosis Foundation Cordially Invites You to Join Us on Monday, June 20th at 2:00pm in the Grand Staircase on the 2nd floor of the State House in Boston, MA With Our Hosts, State Representative Rhonda Nyman & Senator Thomas Kennedy.

This year we celebrate our 35th Anniversary of service; the 30th Anniversary of our MA Postural Screening in School Bill; and the 15th Anniversary of our Cycling for the Cause cross country bicycle ride for research to find the cause, prevention and cure of spinal deformities.

On this occasion, we are pleased to honor Laura (Bunny) Gowen NSF Founder & President Emeritus & Congressman William R. Keating, U.S. Representative for the Massachusetts 10th Congressional District.

Mrs. Gowen’s dedicated and generous work with NSF is now memorialized in the Make A Difference Gallery of the new International Life Cast Museum in Boston http://www.ilcmuseum.org/online/gallery-make-a-difference.html

Congressman Keating sponsored our original school postural screening bill, and has been a long time friend and supporter of our mission.

May 24, 2011

Why do some people with spinal-cord stimulators collapse after passing through a metal detector?

FDA tests whether electronic gadgets interfere with medical devices
Scientists at the FDA's electromagnetic and wireless laboratory are using an anechoic chamber, which prevents the echo of electromagnetic waves, to test whether electronic gadgets and security technology can interfere with medical devices, including pacemakers and spinal-cord stimulators. Research at the laboratory has enabled the agency to develop safety guidelines and warn device makers, clinicians and patients if a certain device has the potential to cause harm or malfunction. Read more here……

April 6, 2011

Stacy Lewis adds another chapter to success story
The story of how she overcame scoliosis as a child to not only play golf but become one of the most decorated players in college before making it as a professional is well-documented. But last week, Lewis, who graduated from The Woodlands High School ... read more here

March 23, 2011

Actress Elizabeth Taylor dies at 79  - USA Today
The condition was compounded by other ailments including spinal fractures and the effects of scoliosis. On Oct. 6, 2009, Taylor — using her Dame Elizabeth Twitter feed told fans that she was having a "very new" procedure done to repair her "leaky valve ...read more

December 1, 2010


New Study Shows DNA Test Highly Accurate In Predicting Curve Progression in Scoliosis Patients

Peer-Reviewed Study Shows Genetic Markers Can Help Identify Low-Risk Patients, Potentially Reducing Need for Repeated X-Rays and Physician Visits

Raynham, MA – (December 1, 2010) –A new study shows the SCOLISCORE™ AIS Prognostic Test, a DNA test to determine the likelihood of curve progression in children with mild adolescent idiopathic scoliosis (AIS), an abnormal curvature of the spine, is 99 percent accurate in predicting which children are least likely to progress to a severe curve (Cobb Angle of 40 degrees or more). [1] 

Click Here for full press release.

November 9, 2010


Support NSF through the 2010 Combined Federal Campaign 

Are you a federal employee? If so and you participate in the Combined Federal Campaign (CFC), the world’s largest annual workplace charity campaign, you can designate the National Scoliosis Foundation as a recipient of your generosity by listing Designation Code 11547 on your pledge sheet! 

The registration period for the CFC ends December 15th. Your donation will be tax deductible. CFC information and registration forms should be distributed to you by your supervisor or human resource representative. If you have not participated in the CFC before or simply would like to learn more  click here . If you have a family member or friend employed by the federal government, please share this information with them. 

If you are not a Federal employee you can make your donation directly online click here

Thank you in advance for your continued support to the National Scoliosis Foundation!

November 7, 2010


The 7th Annual Boston Bar Crawl for Scoliosis will take place in Boston on November 20, 2010.  This year promises to be the best one yet!  Having learned from previous crawls, it seems best to keep it by Fenway Park, start earlier, visit fewer bars, have bigger venues, donated food, and new this year... at the last bar we'll have live music from Austin TX

Please go HERE for further updates leading up to Nov 20th, and to order your T shirts…you need to rush, not all sizes are available!

Maureen McCann, Channel 8 Meteorologist in Austin TX will be posting information on Facebook and Twitter. She will base the headcount on Facebook RSVPs too, so please make sure you respond! 

Crawl: This year's route is:

-3-5pm Cask N Flagon

-5pm Game On

-6pm Who's on First

-7pm Bleacher Bar

-8pm Landsdowne Pub

-9pm-on Baseball Tavern

Coozies: There is also a section to get a bar crawl beer coozie with a $5 donation. Since the mean temperature for Boston during November is 45F, what better way to keep your hand from getting cold?  Get yours while supplies last! You can add them to your order online.

 Donations: The first bar crawl in 2004 generated about $250 for the National Scoliosis Foundation.  In 2009 we contributed over $2,300 to Scoliosis and around $1,000 to the Ryan J. Burns scholarship fund.  Let's try to top those this year... I am setting a goal of $5,000 total!! Proceeds will be sent to both the NSF and the Ryan Burns Scholarship fund. 

 And please RSVP if you are coming, so that the bars will know how many to expect. Thank you all for making this event a success year after year.  

November 3, 2010


FDA clears Cymbalta to treat chronic musculoskeletal pain
Indications include osteoarthritis, chronic lower back pain

The U.S. Food and Drug Administration today approved Cymbalta (duloxetine hydrochloride) to treat chronic musculoskeletal pain, including discomfort from osteoarthritis and chronic lower back pain. Cymbalta was first used to treat major depressive disorder in 2004. 

“Up to three quarters of the population experience chronic pain at some time in their lives," said Janet Woodcock, M.D., director of FDA’s Center for Drug Evaluation and Research. “This approval means that many of those people now have another treatment option.”

Since its initial approval, about 30 million patients in the United States have used Cymbalta. It was approved for the treatment of diabetic peripheral neuropathy in 2004; generalized anxiety disorder and maintenance treatment of major depression in 2007; and fibromyalgia in 2008.

More than 29,000 patients have used Cymbalta in clinical trials, and more than 600 patients were studied in the clinical trials involving osteoarthritis and chronic low back pain. The safety evaluation for Cymbalta included review of data from the clinical trials as well as post-marketing data from the previously approved patient populations.

The FDA assessed the efficacy of Cymbalta in chronic low back pain and osteoarthritis in four double-blind, placebo-controlled, randomized clinical trials. At the end of the study period, patients taking Cymbalta had a significantly greater pain reduction compared with placebo.


September 1, 2010

"Rock the Curve"

Thirteen year old Emily Warner from Salt Lake City, Utah developed and held the first "Rock the Curve" fundraiser for the National Scoliosis Foundation. Emily and her Mom did a great job to get local volunteers, sponsors and government officials to work with them to put on this momentous event. We truly thank Emily and her Mom for their dedication and hard work. This year, all proceeds to NSF for this event will be donated to the Shriners Hospital in Salt Lake City in gratitude for the service they provide to so many children living with scoliosis. Emily is an amazing teenager who wants to help other people. We welcome her to our elite Angel Brigade team, and we look forward to next year's "Rock the Curve" event.

June 1, 2010

Thank you for joining us for the State of the Art of Conservative Care for scoliosis at The 7th Annual Meeting of SOSORT ,  held in Montreal on May 20 - 22nd.

Topics covered were school screening, molecular biology, surface topography, radiology, basic science, biomechanics, physiotherapy, posture, quality of life, dynamic bracing, night time bracing, rigid bracing and adult scoliosis.

More than 75 abstracts were presented at this 2 ½ day conference for researchers, health care providers and patients. All abstracts have been published in the open access Scoliosis Journal at

Lawrence Lenke, MD, President-elect of the Scoliosis Research Society joined SOSORT President Tomasz Kotwicki, MD as a guest lecturer. There was also a consensus session presented by Dr Theodoros B. Grivas, and an educational session on Adult Scoliosis chaired by Dr Manuel Rigo. Final Program


April 23, 2010


NSF & DePuy Spine Present Scoliosis Education Session

The National Scoliosis Foundation (NSF) is pleased to partner with DePuy Spine for a Scoliosis Education Session on Wednesday, May 12, 2010 to be held at the Depuy Institute in Raynham, MA.

June is officially recognized as National Scoliosis Awareness month, and this free community event is part of DePuy Spine’s ScoliWeek 2010, which aims to raise awareness and educate parents and nurses about Scoliosis diagnosis and treatment.

Featured speakers at next month’s event include Joe O’Brien, scoliosis patient and President & CEO of the National Scoliosis Foundation, who will discuss the mission of the NSF and resources available to families and patients; Dr. Pernendu Gupta, spinal surgeon from the University of Chicago, who will present the latest advances in Scoliosis diagnosis and treatment; and Barbara Basham, the mother of a child with Scoliosis, who will share her family’s experience with their daughter.

The Scoliosis Education Session is slated to be held at the Depuy Institute, 325 Paramount Drive in Raynham, MA. Welcoming and check-in will take place from 5:30 - 6:30 p.m. and speakers will take the floor from 6:30 - 7:30 p.m.

The event is free and open to the public, but registration is required. Those interested in attending should e-mail their name, address and phone number to DePuyScoliWeek@its.jnj.com by Monday, May 10th.

June 12, 2009

Join us in Boston! 

Representative Robert Nyman & Senator Thomas Kennedy proclaim June is National Scoliosis Awareness Month! in the Commonwealth of Massachusetts.

On this special occasion we are pleased to honor 

John B. Emans, M.D.
Children’s Hospital, Boston

For the help and hope he has given to so many children and families in the scoliosis community 

Date: Friday, June 26, 2009
Time: 3pm - 5pm 


Commonwealth of Massachusetts
State House
Boston, MA 02133
Grand Staircase, 2nd Floor — Refreshments will be served

For further details;

Email us at awareness@scoliosis.org or call us at 781-341-6333.

January 30, 2009

Convicted Scoliosis Clinician Sentenced

Self proclaimed scoliosis expert Arthur Copes was sentenced yesterday in a Baton Rouge, LA court. Mr. Copes was convicted in 2008 for multiple counts of insurance fraud. Of the 9 counts, Judge Marabella ordered to counts 1, 3, & 4 (2 Not Guilty) that Copes be sentenced to 5yrs hard labor, 2 of which be suspended and that he be remanded to DOC for the remaining 3 yrs, and pay a $5,000.00 fine. As to counts 5, 6, 7, 8, and 9 he serve 3 yrs hard labor suspended and that he be on active supervised probation to run concurrent with any parole time and that all counts run consecutively (15 yrs active supervised probation when he gets out). Mr. Copes was also ordered to pay full restitution to all victims to include Blue Cross and pay restitution for costs of prosecution, and ordered to pay $5,000 fine for each count. When Mr. Copes gets out of jail in about 3yrs there are special conditions of probation that he perform 500 hours of community service, pay $55 a month, not perform any medical services that are either performed by a doctor or chiropractor, and not use any misleading advertisement in the future.