Announcement

Collapse
No announcement yet.

SEVERE left shoulder pain - 12 weeks post-op & cannot use left arm!

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • #31
    Hi everyone-

    I thank you all so much for your concern. I am actually touched by it. I was so out of it yesterday due to all the crying in the doctors office and all the heavy duty meds he gave me that I couldn't get on here to update you about my doctor visit with the shoulder specialist.

    My shoulder was so bad going into the doctor's office. He went to touch it once and the nerves in my shoulder were so inflamed it went crazy and I started crying hysterically. He couldn't beleive I didn't even drive myself to the ER during the week he said it was that bad. He couldn't even examine my neck/shoulders properly so I am going back to his office this Wednesday once the medication kicks in. He did give me an x-ray and he ruled out that my shoulder was dislocated. He believes it is a bundle of pinched nerves coming off of the neck that are completely inflamed and that's why they are giving me electrical shocks. Remember, my neck collapsed 3 weeks after my surgery in June so all the muscles and nerves in my neck were thrown off and overly stretched out. He gave me the following meds: Prednisone (have to take 10 pills for the first 2 days!! and then reduce by 1 pill until day 11), flexeril 3 times a day, and oxycodone 4-6 times a day). I've been on prednisone before, last summer, and it literally made me crazy and emotional so i'm scared to see what happens to me this time! It is a high dosage that I am taking. He told me it may cause stomach pain, and so of course, in the middle of the night, I woke up from 2am-4am with shooting pain in my stomach bent over in half. Prednisone is the worst medicine ever. Those of you who have taken it before probably know. BUt I have no choice. I just want to get the inflamation out of my shoulder. So he can't really diagnose what's going on with my shoulder until Wed. He did notice it dropped about 4 inches as compared to the other shoulder, and it totally atrophied. And he said this problem is probably coming from nerves from my neck (same thing as Melissa on this forum).

    That's all that I have to report today. The pain is still excrutiating, but I can tell the meds are working alittle. He said the meds may not even work and to go to the ER if I needed to over the weekend.

    He actually told me to go back to my chiropractor, who has greatly helped my neck in the past whenever I had a pinched nerve. He said it won't affect my back at all, and to make sure the chiropractor uses gentle manipulation on my neck. So I think I'm going to try that too.

    Just want to thank you all for your support and for listening. I will update you all on Wednesday.

    JenM

    P.S. Does anyone know if a doctor can tell you have a rotator cuff injury just by looking at x-rays, or is that determined only by an MRI? I totally forgot to ask him when I was in his office.
    Surgery date: June 8, 2010 with Dr. Boachie
    Thoracic curve: 55 degrees, corrected to 25 degrees
    Lumbar curve: 58 degrees, corrected to 27 degrees
    Posterior-only surgery, Levels T3-L3
    31 year old mother of 2 young kids

    Comment


    • #32
      Hi Jen,

      I'm glad things are starting to move along for you and I hope the pain will subside soon! I can't imagine being in that much pain.

      As for the prednisone, I take a round of it once or twice a year for my asthma, so I understand what you are referring to. Maybe you could try eating more and more often to help with the stomach pain. I have a love/hate relationship with that drug- it saves you in some ways and brings you down in others.

      Please go to the ER if it gets worse! I've been thinking about you and praying that things get better soon!!

      Shell
      Chemist, 30

      1998- 18 degrees
      2003- 33 degrees
      2005- 37 degrees
      2006- 44 degrees
      May 2007- 47 degrees
      December 2007 - 50 degrees X-ray

      Surgery May 27, 2008
      Fused T1 to L2
      Curve corrected to 15 degrees X-ray

      Comment


      • #33
        Oh hon, you have really been through it. I hope you feel better SOON. Sending you lots of good thoughts and wishes.
        Chris
        A/P fusion on June 19, 2007 at age 52; T10-L5
        Pre-op thoracolumbar curve: 70 degrees
        Post-op curve: 12 degrees
        Dr. Boachie-adjei, HSS, New York

        Comment


        • #34
          Thanks for letting us know. You've been to hell with this thing but I am hopeful that you're on the way back. My friend was recently on prednisone and it caused the usual side-effects, it's a tough drug to take. I agree, eating more often, and taking it on a full tummy, might help ease the stomach pains. Some people swear by taking it with milk instead of water, not sure if that might be worth trying.

          Good luck Jen!
          Surgery March 3, 2009 at almost 58, now 63.
          Dr. Askin, Brisbane, Australia
          T4-Pelvis, Posterior only
          Osteotomies and Laminectomies
          Was 68 degrees, now 22 and pain free

          Comment


          • #35
            Jen,

            You poor dear. I hope the meds do what they are supposed to do. I know that my husband had pinched nerves in his neck a few years ago, and they had him use ice and home traction, which fixed it after a while; his neck is all better now. I don't know if you can do traction though.

            My hubby was also at the shoulder dr. this week suspecting a rotator cuff injury. They took xrays but the dr. said you can't be 100% sure without a MRI.

            Hang tough--you're in our thoughts. And if you have to go to the ER this weekend, just do it.
            __________________________________________
            Debbe - 50 yrs old

            Milwalkee Brace 1976 - 79
            Told by Dr. my curve would never progress

            Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
            Pre-Surgury Thorasic: 66 degrees
            Pre-Surgery Lumbar: 66 degrees

            Post-Surgery Thorasic: 34 degrees
            Post-Surgery Lumbar: 22 degrees

            Comment


            • #36
              Jen -- I'm so sorry you are having such a tough time. You must be exhausted from all of this. Hope you get some resolution soon. You're in my thoughts and prayers.

              Glenda
              Glenda
              Age 66 Georgia (63 at time of surgery)
              Bi-lateral laminectomy 2006
              Kyphoscoliosis, approx 38* lumbar scoliosis, stenosis, disk herniations, lower back and hip pain, w/radiating pain, stinging and numbness in legs.
              A/P fusion (T10-S2) 5/17/10 and 5/20/10
              Dr Yoon, Emory Orthopaedic and Spine Hospital, Atlanta, GA
              Pleased with outcome

              Comment


              • #37
                Just wanted to let you know I was thinking about you today!

                Comment


                • #38
                  Thinking about you today

                  Melissa

                  Comment


                  • #39
                    Thank you so much, everyone! I really do appreciate you all following up on me. I am on day 3 of the prednisone and it probably took the pain away by 30%, which is better than what I was experiencing before. I can move my arm more, but still get that piercing, electrical pain. I do believe it is from nerves coming off my neck, but I go back to the shoulder specialist on Wednesday afternoon so I'll see what he has to say. Just trying to get through another day with the kids, that's all I can do for now. All these meds make me very sleepy.

                    Hope you all have a good day!

                    JenM
                    Surgery date: June 8, 2010 with Dr. Boachie
                    Thoracic curve: 55 degrees, corrected to 25 degrees
                    Lumbar curve: 58 degrees, corrected to 27 degrees
                    Posterior-only surgery, Levels T3-L3
                    31 year old mother of 2 young kids

                    Comment


                    • #40
                      Originally posted by JenM View Post
                      Thank you so much, everyone! I really do appreciate you all following up on me. I am on day 3 of the prednisone and it probably took the pain away by 30%, which is better than what I was experiencing before. I can move my arm more, but still get that piercing, electrical pain. I do believe it is from nerves coming off my neck, but I go back to the shoulder specialist on Wednesday afternoon so I'll see what he has to say. Just trying to get through another day with the kids, that's all I can do for now. All these meds make me very sleepy.

                      Hope you all have a good day!

                      JenM
                      The drugs did help me in the beginning, at the same time they did me sleepy

                      Melissa

                      Comment


                      • #41
                        Dear Jen

                        I've been thinking of you right along too. It sounds so terrible I've not known what to say. Trying to imagine you with your little ones is dreadful. Seems to me, starting soon after your surgery there was a severe problem with pain and they were acting frightened around you because of it. I can't think that's much better now.

                        It's bad enough to be in terrible pain but to have to (try to) hide it around little children is a special hell. So sorry.

                        The tale of your surgeon's visit is terrifying to read. I hope you were not alone. Who was that doctor recently expressing the belief that "pain's no problem as it can always be managed"?

                        You're one tough lady. ("You mean I have a choice"? )

                        PS How could you drive yourself to the emergency room with such pain - not to mention with your little guys?
                        Not all diagnosed (still having tests and consults) but so far:
                        Ehler-Danlos (hyper-mobility) syndrome, 69 - somehow,
                        main curve L Cobb 60, compensating T curve ~ 30
                        Flat back, marked lumbar kyphosis (grade?) Spondilolisthesis - everyone gives this a different grade too. Cervical stenosis op'd 3-07, minimally invasive

                        Comment


                        • #42
                          Jen,
                          I feel so bad for you and all you've been through. I hope that your doc can figure out what is going on so you can finally get to recovering from your back surgery! I have taken Prednisone before too, and it makes my stomach hurt also. If it continues to bother you, go to the drug store and get some Prilosec, Pepcid, or any of the stomach acid relievers. That is what helps me. I agree that Prednisone is a wicked drug , but it does work!
                          May 2008 Fusion T4 - S1, Pre-op Curves T45, L70 (age 48). Unsuccessful surgery.

                          March 18, 2010 (age 50). Revision with L3 Osteotomy, Replacement of hardware T11 - S1 , addition of bilateral pelvic fixation. Correction of sagittal imbalance and kyphosis.

                          January 24, 2012 (age 52) Revision to repair pseudoarthrosis and 2 broken rods at L3/L4.

                          Comment


                          • #43
                            Hi Jen,

                            What did the shoulder specialist say? Thinking of you!

                            Evelyn
                            age 48
                            80* thoracolumbar; 40* thoracic
                            Reduced to ~16* thoracolumbar; ~0* thoracic
                            Surgery 3/14/12 with Dr. Lenke in St. Louis, T4 to S1 with pelvic fixation
                            Broken rods 12/1/19; scheduled for revision fusion L1-L3-4 with Dr. Lenke 2/4/2020
                            Not "confused" anymore, but don't know how to change my username.

                            Comment


                            • #44
                              Jen, my heart goes out to you. You're such a good, loving mom to your kids and things will get better. I'm glad you found a doctor that is spending time with you, and can get you the help you need. Just a thought, maybe an arm/shoulder brace or wrap of some sort might help. For one, it may be easier for the kids to see/know not to knock into mommy's arm or shoulder. And two, immobolize the area to give you some relief and support. Taking it off for exercise and pt when ready. Just a thought, mostly wanted to say I'm thinking of you.

                              hugs, debra
                              Debra
                              Age 45
                              Pre - surgery Thoracic 69, Lumbar 48
                              Post-surgery Thoracic 37, Lumbar 39 (unfused)
                              Fused T4-T12
                              Milwaukee braced, 11 years old to 15 yo
                              Surgery Sept. 1st, 2010 Dr. Boachie

                              Comment

                              Working...
                              X