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  • #1681
    Celia, Mary Lou, and Melissa,
    Thanks so much.
    You're right, the older we get, the more wisdom and patience we have to face trials. I feel blessed in the midst of trials. I have many blessings.
    This group is one of them.
    Happy Mother's Day!
    Cheryl
    Last edited by cherylplinder; 05-12-2007, 07:39 PM.
    God has used scoliosis to strengthen and mold us. He's good all the time!On this forum these larger curves have not held forever in Spinecor,with an initial positive response followed by deterioration. With deterioration, change treatment.The first year she gained 4 or 5 inches and was stable at around 20/20 in brace, followed by rapid progression the next year.She is now 51/40 (Jan2008)out of brace (40/30 in Spinecor) and started at 38/27 out of brace(Jan2006.) Now in Cheneau.

    Comment

    • #1682
      Guess what I got for Mother's day??? Among other things... the two lilacs I mentioned earlier. I spent Sunday afternoon planting in the garden with the kids.


      *

      Canadian eh
      Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

      Comment

      • #1683
        Celia
        No I have not tried nematodes. I did try milky spore 3 years ago what a pain to apply, I saw a small difference but my yard is 2200 square feet and only applied to the problem spots. This looks much easier to apply. Can I put them down anytime?
        from CT, USA
        6 year old daughter diagnosed 7/06 33* T9

        Spinecor 8/06 - 8/2012
        8/06 11* 3/07 5*-8/07 8*-2/08 3*
        10/08 1* 4/09 Still holding @ 1*
        10/09 11* OOB 4/10 Negative 6*
        10/2011 Neg.11* IB 11yrs old 0 rotation
        4/2012 12* OOB 0 rotation
        8/2012 18* OOB for 2 weeks. TSLO night time
        2/2013 8* OOB 3 days TSLO nightime
        3/2014 8* Out of Brace permanently

        Comment

        • #1684
          Hi Celia

          I just did some more research on beneficial nematodes and if it works I will be forever gratefull. I have done grubex (yuck chemicals!!) and milky spore then grubex again and again (yuck!!)

          I always make the analogy ; Bill Murray in Catty Shack. Instead of killing the gopher it is me kill the beatles!!!
          Thanks
          Christine
          from CT, USA
          6 year old daughter diagnosed 7/06 33* T9

          Spinecor 8/06 - 8/2012
          8/06 11* 3/07 5*-8/07 8*-2/08 3*
          10/08 1* 4/09 Still holding @ 1*
          10/09 11* OOB 4/10 Negative 6*
          10/2011 Neg.11* IB 11yrs old 0 rotation
          4/2012 12* OOB 0 rotation
          8/2012 18* OOB for 2 weeks. TSLO night time
          2/2013 8* OOB 3 days TSLO nightime
          3/2014 8* Out of Brace permanently

          Comment

          • #1685
            Christine,

            It comes with instructions and we apply it in early Spring always in the morning because the little critters could fry in the hot afternoon sun. It's worked really well for us! I hope it works for you too!


            *

            Canadian eh
            Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

            Comment

            • #1686
              Hi everyone

              Rita from bodysuit.com e mailed me today. A new child size bodysuit will be up on her website tomarrow 5/18. It is cotton with a jewel neck and cap sleeves (sounds good) Item # BT1330. She may keep working on designs to fit our needs. I mentioned our desire for a bodysuit w/ bike shorts and a cooler material. www.bodysuit.com


              Christine
              from CT, USA
              6 year old daughter diagnosed 7/06 33* T9

              Spinecor 8/06 - 8/2012
              8/06 11* 3/07 5*-8/07 8*-2/08 3*
              10/08 1* 4/09 Still holding @ 1*
              10/09 11* OOB 4/10 Negative 6*
              10/2011 Neg.11* IB 11yrs old 0 rotation
              4/2012 12* OOB 0 rotation
              8/2012 18* OOB for 2 weeks. TSLO night time
              2/2013 8* OOB 3 days TSLO nightime
              3/2014 8* Out of Brace permanently

              Comment

              • #1687
                Rita's great at bodysuit's, isn't she? We've ordered a dozen bodysuits from her over the last year and a half, with great success. I'm glad to hear she'll have them in the smaller sizes. We've gone from XS, S, and now to Medium, lots of growth for my daughter, but all is well with her spine so far!!! p

                Comment

                • #1688
                  Hi Pat

                  Any word yet about how the meeting went in Boston? (I know it just ended) I am VERY curious if CCMC is considering Spinecor. Dr Thomson said he was going to the meeting.

                  Please call me if you hear anything.

                  It is amazing how fast our daughters are growing, isn't it!!!
                  I am glad all is well.


                  Talk to you soon
                  Chris
                  Last edited by christine2; 05-19-2007, 07:41 PM.
                  from CT, USA
                  6 year old daughter diagnosed 7/06 33* T9

                  Spinecor 8/06 - 8/2012
                  8/06 11* 3/07 5*-8/07 8*-2/08 3*
                  10/08 1* 4/09 Still holding @ 1*
                  10/09 11* OOB 4/10 Negative 6*
                  10/2011 Neg.11* IB 11yrs old 0 rotation
                  4/2012 12* OOB 0 rotation
                  8/2012 18* OOB for 2 weeks. TSLO night time
                  2/2013 8* OOB 3 days TSLO nightime
                  3/2014 8* Out of Brace permanently

                  Comment

                  • #1689
                    A biker short body suit would be great!
                    God has used scoliosis to strengthen and mold us. He's good all the time!On this forum these larger curves have not held forever in Spinecor,with an initial positive response followed by deterioration. With deterioration, change treatment.The first year she gained 4 or 5 inches and was stable at around 20/20 in brace, followed by rapid progression the next year.She is now 51/40 (Jan2008)out of brace (40/30 in Spinecor) and started at 38/27 out of brace(Jan2006.) Now in Cheneau.

                    Comment

                    • #1690
                      Yes, that would help all of the horrible bruises on the inner thighs.
                      Melissa
                      From Bucks County, Pa., USA

                      Mom to Matthew,19, Jessica, 17, and Nicole, 14
                      Nicole had surgery with Dr. Dormans on 9/12/07 at Children's Hospital of Phila. She is fused T-2 - L-3

                      Comment

                      • #1691
                        I'll definitely be ordering some bodysuits from this place!! Does anyone know what percentage cotton the following cotton/Lycra bodysuit is??? Do these bodysuits come with snaps or Velcro? Are we given a choice?

                        http://www.bodysuit.com/noname5.html


                        *

                        Canadian eh
                        Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

                        Comment

                        • #1692
                          Celia
                          re: bodysuits

                          I don't now for the size your looking at (they are very helpful via email or phone) I am sure if you e mail Rita with a wish list she will try to accomidate you. I would be willing to bet if we showed interest and let her see that there is a market for bodysuits for kids in braces should could design just about anything.

                          Christine
                          Last edited by christine2; 05-20-2007, 11:05 AM.
                          from CT, USA
                          6 year old daughter diagnosed 7/06 33* T9

                          Spinecor 8/06 - 8/2012
                          8/06 11* 3/07 5*-8/07 8*-2/08 3*
                          10/08 1* 4/09 Still holding @ 1*
                          10/09 11* OOB 4/10 Negative 6*
                          10/2011 Neg.11* IB 11yrs old 0 rotation
                          4/2012 12* OOB 0 rotation
                          8/2012 18* OOB for 2 weeks. TSLO night time
                          2/2013 8* OOB 3 days TSLO nightime
                          3/2014 8* Out of Brace permanently

                          Comment

                          • #1693
                            bodysuits

                            umm im not sure if this is a random or stupid (hopefully not) question, but are you supposed to wear underwear under the bodysuit?
                            or is it just bodysuit, spinecor, clothing..??

                            HI
                            Im 15
                            im pretty outgoing
                            JV Cheerleader-woot woot :]

                            my curves are:
                            in the 30s.
                            somewhere in or around there.

                            i have a spinecor brace.

                            Comment

                            • #1694
                              my daughter only wears the bodysuit, no underwear.
                              from CT, USA
                              6 year old daughter diagnosed 7/06 33* T9

                              Spinecor 8/06 - 8/2012
                              8/06 11* 3/07 5*-8/07 8*-2/08 3*
                              10/08 1* 4/09 Still holding @ 1*
                              10/09 11* OOB 4/10 Negative 6*
                              10/2011 Neg.11* IB 11yrs old 0 rotation
                              4/2012 12* OOB 0 rotation
                              8/2012 18* OOB for 2 weeks. TSLO night time
                              2/2013 8* OOB 3 days TSLO nightime
                              3/2014 8* Out of Brace permanently

                              Comment

                              • #1695
                                No underwear. It would defeat the whole purpose of snapped body suits if you did otherwise. One hand needs to be free to hold onto the crotch snaps. That is why we go through so many. They are washed daily and getting worn out. However, the panties we had made for her along with the sleeveless tees have also been working out well. She is happy with those, as well.
                                Melissa
                                From Bucks County, Pa., USA

                                Mom to Matthew,19, Jessica, 17, and Nicole, 14
                                Nicole had surgery with Dr. Dormans on 9/12/07 at Children's Hospital of Phila. She is fused T-2 - L-3

                                Comment

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