Hi. Im new here and its nice to know that Im not the only mom of a little one with scoliosis.
My son was born with it and first put in a brace at 11 months. hes now 16 months and the curve has worsened to 51 degrees. He will be having an MRI and ultrasound on his heart and kidneys shortly. He also has a huge birthmark on his back, bum and leg that looks a lot like a port wine stain but they are trying to figure out if it is connected at all to his scoliosis. They are already talking about surgery. The surgeon said by the age of 4, he would probably have the operation if his curve doesnt improve. Im very scared.
Has anyones baby had surgery yet? I have no idea what to expect.
Hunter looks completely normal, he runs, jumps, stands up straight. You wouldnt know until he takes his shirt off and you see a huge hump on the left side of his back.
Id love to talk to anyone who knows what its like to have a baby with scoliosis.
Thanks so much.
My son was born with it and first put in a brace at 11 months. hes now 16 months and the curve has worsened to 51 degrees. He will be having an MRI and ultrasound on his heart and kidneys shortly. He also has a huge birthmark on his back, bum and leg that looks a lot like a port wine stain but they are trying to figure out if it is connected at all to his scoliosis. They are already talking about surgery. The surgeon said by the age of 4, he would probably have the operation if his curve doesnt improve. Im very scared.
Has anyones baby had surgery yet? I have no idea what to expect.
Hunter looks completely normal, he runs, jumps, stands up straight. You wouldnt know until he takes his shirt off and you see a huge hump on the left side of his back.
Id love to talk to anyone who knows what its like to have a baby with scoliosis.
Thanks so much.
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