Hi thank you for reading this. My daughter had her first two spine surgeries in 2008 done by Dr. John Johnson in Louisville, ky. I did not like him from day one but my daughter's Pediatrician said he was the best. At first she was fine but then began to have pain at the top of her scar and over her right shoulder. After repeated visits with him only saying that she needed therapy, I got frustrated and asked to see Dr. Puno. Right away Dr.Puno found that her bars were coming through her back, one was - coming through the skin in the middle top of her back and the other had cut through the muscle on her right shoulder. So Dr. Puno did surgery on her taking out the original harrington bars and replacing it with a rod that only goes from her neck to midways on her back.
After repeated visits with Dr. Puno, he does not see a problem with her back, he won't even schedule an MRI until December. Her back has begun to hump over the right shoulder badly, the back of the spine appears to be pushing inward causing her stomach(what little stomach she has that is) to pooch out, and her body is beginning to twist around towards her front right side and she cannot walk straight. She's in pain everyday and it's horrible. She has also lost a inch of height now.
She had a horrible "s" curve to begin with, somewhere around 70% curve on the top and 60% on the bottom. When they opened her up they found that her spine was twisted backwards and they had to turn it around. I might also add at this point that she has also gone through 3 open heart surgeries because of Pulmonary Atresia with VSD and overriding aorta. She is being treated for seizures, has a slight learning disability and has recently developed acid reflux which could be a commom side affect to problems with the spine I have read.
I am scared to death, I look at her and wonder how much longer can she take this before something else happens, her back is so bad that it just looks like its about to explode. I fear if we don't do something soon there will be irreparable damage done to her.
I know this was lengthy but we need help. I am considering finding another doctor...would prefer him to be one of the best and I'm willing to travel out of state if I have to in order to get her the help she needs. I don't even know how we would manage or afford going out of state since my daughter recieves health insuance through the state but I don't know what to do. Dr. Puno is a wonderful doctor but somehow I think he is just taking the spine in consideration alone, she looks as if she needs her whole back reconstructed at this rate. Please I would like your feedback on doctors that you feel are the best and those to stay away from, or even just any advice. Thank you again for taking the time to look at this and if you prefer to reach me through personally, you can email me at:
krnoon1@gmail.com
.
These pictures were taken today of her back. If you would like to see what her back looked like before and after her first surgery you can see them on youtube at: http://youtu.be/UsqBZf44NVE
IMG_20111014_004717.jpg IMG_20111014_004728.jpg IMG_20111014_004747.jpg IMG_20111014_004758 (1).jpg
Have a wonderfully blessed day!
Kellie Noon
After repeated visits with Dr. Puno, he does not see a problem with her back, he won't even schedule an MRI until December. Her back has begun to hump over the right shoulder badly, the back of the spine appears to be pushing inward causing her stomach(what little stomach she has that is) to pooch out, and her body is beginning to twist around towards her front right side and she cannot walk straight. She's in pain everyday and it's horrible. She has also lost a inch of height now.
She had a horrible "s" curve to begin with, somewhere around 70% curve on the top and 60% on the bottom. When they opened her up they found that her spine was twisted backwards and they had to turn it around. I might also add at this point that she has also gone through 3 open heart surgeries because of Pulmonary Atresia with VSD and overriding aorta. She is being treated for seizures, has a slight learning disability and has recently developed acid reflux which could be a commom side affect to problems with the spine I have read.
I am scared to death, I look at her and wonder how much longer can she take this before something else happens, her back is so bad that it just looks like its about to explode. I fear if we don't do something soon there will be irreparable damage done to her.
I know this was lengthy but we need help. I am considering finding another doctor...would prefer him to be one of the best and I'm willing to travel out of state if I have to in order to get her the help she needs. I don't even know how we would manage or afford going out of state since my daughter recieves health insuance through the state but I don't know what to do. Dr. Puno is a wonderful doctor but somehow I think he is just taking the spine in consideration alone, she looks as if she needs her whole back reconstructed at this rate. Please I would like your feedback on doctors that you feel are the best and those to stay away from, or even just any advice. Thank you again for taking the time to look at this and if you prefer to reach me through personally, you can email me at:
krnoon1@gmail.com
.
These pictures were taken today of her back. If you would like to see what her back looked like before and after her first surgery you can see them on youtube at: http://youtu.be/UsqBZf44NVE
IMG_20111014_004717.jpg IMG_20111014_004728.jpg IMG_20111014_004747.jpg IMG_20111014_004758 (1).jpg
Have a wonderfully blessed day!
Kellie Noon
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