Hello, our daughter Rebecca is 6 years old was diagnosed with juvenile idiopathic scoliosis almost one year ago. She has a 38 degree curve and has a Wilmington jacket from Dupont for about 9 months. She wears her brace all night from 730 p.m. until 7:00 a.m. and then typically 4 days a week to school for 7 hours. Her orthopedist is happy with her progress and her wearing the brace and is concerned about her adolescent years as she will need to wear it more frequently due to a more rapid rate of growth during those years. I feel as though she is only 6 and I need to be thankful that she is so compliant for such a young girl. Our struggle is the summer time as she would rather wear the brace to school and bed not at home to play with her brother or out to play at the park or even out to stores. Does anyone have cleaver ideas on how to encourage and foster a postive way for us to have Rebecca wear her brace in the summer? Short of bridery, I am half joking and half serious. Additionally, does anyone have experience with ramping their child)ren) up to more hours a day as they grow older or do I start now? I know each child is different so different senerios work well for different children however your insight and input is graetly appreciated. Also, if anyone has insight into positive outcomes with bracing, my sister-in-law has scared me as she said that in the future her breathing could be labored, organs shifted and altered and may not walk like you or I. I am scared now more then ever as I thought we were on the right track with early detection, tratement and bracing. Your insight and input is greatly appreciated. Thank you for taking the time to respond to this thread and please know that I am here as well to discuss our children's scoliosis, bracing, etc.
Michelle
Michelle
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