Hello all, my daughter Jillian was dx on Dec 5th with a 47 degree right thorasic curve. It was initially found on a well visit. Her first set of xrays showed the curve and physical exam showed a trunk rotation of 16 degrees. To look at her now, I feel horrified I never picked this up, how could I have missed this?? We were fortunate enough to see Dr Betz at Shriner's hospital yesterday! I can not say enough how wonderful Dr Betz and his team were, especially Janet. Without a doubt, I know Jillian will be well cared for!
Dr Betz ordered a a new set of xrays and confirmed a right thorasic 48 degree curve and a 28 degree compensitory lumbar curve. Her trunk rotation did increase from 16 to 20 degrees in the matter of 3 weeks??? Dr Betz and Dr Samdani discussed her case right in the room which I thought was wonderful and decided that Jillian would be a perfect candidate for the tethering procedure around age 10. From what I understood, her curve is too advanced right now for the VBS but her spine is very flexible which is good. She was measured for the Boston brace and placed on the surgical waiting list. I pray that this brace controls her curve enough to prevent the tethering. I know I need to be educated on this procedure but only 9 tethering procedures have been performed at this point.
Has anyone else been in this situation with a young child with a large curve and if so how did your plan of care progress? Any information would truly be appreciated!
Elaine
Dr Betz ordered a a new set of xrays and confirmed a right thorasic 48 degree curve and a 28 degree compensitory lumbar curve. Her trunk rotation did increase from 16 to 20 degrees in the matter of 3 weeks??? Dr Betz and Dr Samdani discussed her case right in the room which I thought was wonderful and decided that Jillian would be a perfect candidate for the tethering procedure around age 10. From what I understood, her curve is too advanced right now for the VBS but her spine is very flexible which is good. She was measured for the Boston brace and placed on the surgical waiting list. I pray that this brace controls her curve enough to prevent the tethering. I know I need to be educated on this procedure but only 9 tethering procedures have been performed at this point.
Has anyone else been in this situation with a young child with a large curve and if so how did your plan of care progress? Any information would truly be appreciated!
Elaine
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