Hi all - I''m new. Just a month ago I took my healthy happy girly daughter (7) in for a checkup, did the bend over thing, doc sent us for an x-ray (which I was sure was a waist), and there I stood in the x-ray room with utter disbelief on my face. (Trying all the while to be OK with my daughter there by my side.) No one in our family has ever had this and I don't know anyone who does. I even had to look up the word SCOLIOSIS to make sure I was pronouncing it correctly. We went to a specialist and have an MRI scheduled right after Christmas to rule out "tethered cord". She has 2 curves both between 20-30 degrees. I've done LOTS of reading to get ahead of my steep learning curve (mostly from the web). Wow-lots of scary stuff! I keep telling myself that folks don't post the good news stories.
It's been really tough finding information, like how serious is 20-30 curves for her age, does this always get worse, why can't I find any good "children" books to read her. Through this first stage, I've been disappointed in the lack of information the doctors have provided us. Even for my daughter - she would be so in the dark if I didn't do my "homework". Why didn't the doc have a special little book to give HER. I've got her to start a little scrap book. It simply starts, my name is , , , and I am 7. Then each page adds a little about what she did. Like her x-ray page and her first doc apt. I'm going to let her take a camera to the MRI to take pictures. Right now she seams okay with it all-but she doesn't know what "could" be in her future. I look at web photos and read the brace stories and feel just sick for her.
But for now-she is still a happy, healthy, girly girl who can't wait till Santa comes to town.
It's been really tough finding information, like how serious is 20-30 curves for her age, does this always get worse, why can't I find any good "children" books to read her. Through this first stage, I've been disappointed in the lack of information the doctors have provided us. Even for my daughter - she would be so in the dark if I didn't do my "homework". Why didn't the doc have a special little book to give HER. I've got her to start a little scrap book. It simply starts, my name is , , , and I am 7. Then each page adds a little about what she did. Like her x-ray page and her first doc apt. I'm going to let her take a camera to the MRI to take pictures. Right now she seams okay with it all-but she doesn't know what "could" be in her future. I look at web photos and read the brace stories and feel just sick for her.
But for now-she is still a happy, healthy, girly girl who can't wait till Santa comes to town.
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