Mike and Gayle,
Thank you both for your voices of experience. Discussing the differences between tight, uncomfortable and pain with my daughter has been helpful.
I am compiling info to send to Shriners in Philadelphia for review. I'd like to read more about long term data on VBS. It certainly sounds appealing.
Right now I am drained with where my family and I are at in this process. My daughter is having her ups and downs. We've found that she has less redness on her anterior rib area if she sleeps on her back in the brace compared to trying to sleep on her tummy, which she would prefer. This has led to disrupted sleep for the whole family as we support her through this. Since the brace adjustment my daughter has been able to resume her love of monkey bars in brace so she is very happy about that and I am thrilled that she can participate in this activity with her friends again at recess.
My older daughter is having some hurt feelings as so much attention is given to her sister, so I am making special time for her.
I always felt that my life was busy enough as a working mom. Now I feel like I have another huge commitment to add to my list; it's taken top priority actually. Thanks for listening. I appreciate having found this forum and people going through this process with their children.
Thank you both for your voices of experience. Discussing the differences between tight, uncomfortable and pain with my daughter has been helpful.
I am compiling info to send to Shriners in Philadelphia for review. I'd like to read more about long term data on VBS. It certainly sounds appealing.
Right now I am drained with where my family and I are at in this process. My daughter is having her ups and downs. We've found that she has less redness on her anterior rib area if she sleeps on her back in the brace compared to trying to sleep on her tummy, which she would prefer. This has led to disrupted sleep for the whole family as we support her through this. Since the brace adjustment my daughter has been able to resume her love of monkey bars in brace so she is very happy about that and I am thrilled that she can participate in this activity with her friends again at recess.
My older daughter is having some hurt feelings as so much attention is given to her sister, so I am making special time for her.
I always felt that my life was busy enough as a working mom. Now I feel like I have another huge commitment to add to my list; it's taken top priority actually. Thanks for listening. I appreciate having found this forum and people going through this process with their children.
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