Hi
I am new here and our daughter was just diagnosed with scoliosis this past March, from x-rays. We got into a scoliosis speacialist in Edmonton Alberta Canada and her doctor is Dr.Hedden.
He wanted her in a Boston brace, due to her young age and double curves. Her upper right curve was 28 degrees and her lower left one was 19 degrees.
He said he considers anything in young children espeacially, over 25 degrees should be braced.
He is not very partial to the wait and watch approach and we as her parents tend to agree with this.
So this past June 9th she got her new Boston brace, which she is going to have to wear 22-23 hrs a day till she stops growing. If I start to think ahead long term it becomes very daunting and scary.
So far its not her favorite thing but seems to be managaing. We are up to 13 hrs in it however this is with her sleeping threw the night in it. She seems to do way better at sleeping in it than wearing it while awake. It seems to be more bother some and uncomfortable to her in the day hrs.
I really do feel for her but I can only stand by and watch and be as supportive and loving as possible. She is not in any way embarrassed by it so far. She has even taken it to her grade 2 class for show and tell and has told her class about her scoliosis and that next yr she has to wear it to school. I truly hope she feels the same way when this time comes.
Her dad and I try to keep it all positive and keep our worries and such to ourselves.
She was quite excited to get to pick a leopard skin patten for her brace, which she calls "Cleo"
she loves going to see the speacialists and seems to be for the most part happy.
Though she has a red mark on one of her pressure points which is a bit tender and bothersome during the day to her. We have just recently been able to adjust the bottom strap of the brace all the way but not quite there on the upper one which squeezes her rig cage area. We were told to take it slow and follow the schedual of wearing it to wein her slowly into it.
I cannot see the day she will actually be comfortable and not ask to take it off after a couple hrs wear in the day. Breaks my heart but onward we must go.
By the way my husband also had scoliosis as a 12 yrs old, so our daughter inherited her scoliosis. He actually ended up getting his back fused at 13 yrs. So fingers crossed all goes well for her.
I was wondering if there wereany other 7 yr olds with scoliosis out there that my daughter could maybe relate with.
Sorry this was soooo long.
I am new here and our daughter was just diagnosed with scoliosis this past March, from x-rays. We got into a scoliosis speacialist in Edmonton Alberta Canada and her doctor is Dr.Hedden.
He wanted her in a Boston brace, due to her young age and double curves. Her upper right curve was 28 degrees and her lower left one was 19 degrees.
He said he considers anything in young children espeacially, over 25 degrees should be braced.
He is not very partial to the wait and watch approach and we as her parents tend to agree with this.
So this past June 9th she got her new Boston brace, which she is going to have to wear 22-23 hrs a day till she stops growing. If I start to think ahead long term it becomes very daunting and scary.
So far its not her favorite thing but seems to be managaing. We are up to 13 hrs in it however this is with her sleeping threw the night in it. She seems to do way better at sleeping in it than wearing it while awake. It seems to be more bother some and uncomfortable to her in the day hrs.
I really do feel for her but I can only stand by and watch and be as supportive and loving as possible. She is not in any way embarrassed by it so far. She has even taken it to her grade 2 class for show and tell and has told her class about her scoliosis and that next yr she has to wear it to school. I truly hope she feels the same way when this time comes.
Her dad and I try to keep it all positive and keep our worries and such to ourselves.
She was quite excited to get to pick a leopard skin patten for her brace, which she calls "Cleo"
she loves going to see the speacialists and seems to be for the most part happy.
Though she has a red mark on one of her pressure points which is a bit tender and bothersome during the day to her. We have just recently been able to adjust the bottom strap of the brace all the way but not quite there on the upper one which squeezes her rig cage area. We were told to take it slow and follow the schedual of wearing it to wein her slowly into it.
I cannot see the day she will actually be comfortable and not ask to take it off after a couple hrs wear in the day. Breaks my heart but onward we must go.
By the way my husband also had scoliosis as a 12 yrs old, so our daughter inherited her scoliosis. He actually ended up getting his back fused at 13 yrs. So fingers crossed all goes well for her.
I was wondering if there wereany other 7 yr olds with scoliosis out there that my daughter could maybe relate with.
Sorry this was soooo long.
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