hi everyone
long time since i was on here last been very busy with Khyler's appts. and my little girl just turned one and she is in everything well we got the news that Khyler is not a canidate for vepter after all they are less worried about his lungs and more worried about his curvature and the kyphosis so what they want to do is to cut the tendons around his spine that are holding things the way they are and making his curve more rigid and then insert growing rods. this confuses me because everthing that i have read on line seems to tel me that they wil fuse his spine to this and that will make his chest wall smaller in the long run but the doctor is telling me that they are not fusing him and that while having scoliosis and peire robaine synd. will make him a little shorter anyway that in the long run this isn't going to affect his height or chest size that severley? so anyways he is scheduled to have surg. at cincinnati childrens on Febuary 5th and i am scared to death.
we were there for sleep study and for Khy to get a c-pap machiene just before thanksgiving and Khy did really well we stayed there for like three days and he just thought it was great fun.......
corina
long time since i was on here last been very busy with Khyler's appts. and my little girl just turned one and she is in everything well we got the news that Khyler is not a canidate for vepter after all they are less worried about his lungs and more worried about his curvature and the kyphosis so what they want to do is to cut the tendons around his spine that are holding things the way they are and making his curve more rigid and then insert growing rods. this confuses me because everthing that i have read on line seems to tel me that they wil fuse his spine to this and that will make his chest wall smaller in the long run but the doctor is telling me that they are not fusing him and that while having scoliosis and peire robaine synd. will make him a little shorter anyway that in the long run this isn't going to affect his height or chest size that severley? so anyways he is scheduled to have surg. at cincinnati childrens on Febuary 5th and i am scared to death.
we were there for sleep study and for Khy to get a c-pap machiene just before thanksgiving and Khy did really well we stayed there for like three days and he just thought it was great fun.......
corina
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