Hello all, our 13 month old Noah is seen at the Shriners Hospital in Spokane Wa. for Infantile Scoliosis. I first discovered Noah's scoliosis at about 2 months and he was officially diagnosed with idiopathic infantile scoliosis at about 6 months. His first X-Rays measured 21 degrees and his second was at 24. At 10 months he measured in at 32 degrees... Yesterday at 13 months he had progressed to 80 degrees... I almost hit the floor when I saw the X-Ray! Both my wife and I thought that he was looking better and we were sure to see some correction, we were wrong!
Until this visit the treatment has been to watch for progress, good or bad. Yesterday I think we found the bad! Of course we have done the MRI to rule out 'causes' and to this point the only thing noted is a small column of fluid on the spine which his neurologist will not call a cyst as it is to small. At 13 months Noah is not walking so his Dr. is not willing to brace him fearing it will hinder his development and progress. So in 3 more months we will return to have him fitted for a brace. His Dr. was pleased to see that he is still very flexible and can still be corrected so some degree and feels the brace will buy us time.
We spoke about serial casting but unfortunately the Spokane hospital does not have the correct table to do this type of casting. So if we find that bracing will not help prevent the progress of his curve we will be sent to SLC for serial casting.
I'm not sure what I am getting at other than it is good relief to read other posts out there and to know that we are not the only family dealing with this... I thought it was tough on me when my niece went through scoliosis and fusion... Now I know how my sister was feeling all these years.
I pray that we will not see any additional movement in the next 3 months.
Until this visit the treatment has been to watch for progress, good or bad. Yesterday I think we found the bad! Of course we have done the MRI to rule out 'causes' and to this point the only thing noted is a small column of fluid on the spine which his neurologist will not call a cyst as it is to small. At 13 months Noah is not walking so his Dr. is not willing to brace him fearing it will hinder his development and progress. So in 3 more months we will return to have him fitted for a brace. His Dr. was pleased to see that he is still very flexible and can still be corrected so some degree and feels the brace will buy us time.
We spoke about serial casting but unfortunately the Spokane hospital does not have the correct table to do this type of casting. So if we find that bracing will not help prevent the progress of his curve we will be sent to SLC for serial casting.
I'm not sure what I am getting at other than it is good relief to read other posts out there and to know that we are not the only family dealing with this... I thought it was tough on me when my niece went through scoliosis and fusion... Now I know how my sister was feeling all these years.
I pray that we will not see any additional movement in the next 3 months.
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