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  • shanemg

    Hi Shane,

    My son is 8yrs old and has both congenital scoliosis and a released tethered spinal cord. There are several things that would "cause" a tethered spinal cord. Have you had an appointment with a neurosurgeon yet? Make sure to ask lots of questions about how this relates to Monica's scoliosis and how they recommend proceding with correcting or releasing the tethered cord.

    Braydon's cord problem was due to a fatty filum at the base of the spinal cord. The filum was preventing the cord from "free flowing" and interferring with the nerve function at the base of the spinal cord (the nerves that go to the bladder, bowel and legs/feet).

    Braydon's form of tethered cord was the most basic and straightforward problems, neurosurgically speaking. You should know if her cord problem is due to a lipoma (fat mass) or a syrinx (pocket of fluid) or a split cord, etc. What area of her spine is her congenital bone problems?

    You mentioned that Monica was going to have fusion surgery. For most cases, fusion should be avoided in young children. Some cervical fusions are necessary, as are some types of lumbar fusions. Most other areas of the spine need to avoid fusion so the spine/trunk can grow and give the lungs and other organs as much space to grow as possible.

    Let us know what is recommended for Monica by the neurosurgeon(s). Hopefully you will get some specific answers. Keep us posted.

    my daughter Monica has congenital scolosis and has just been told a tethered spinal cord. what does this mean? We were going to have a spinal fusion which has just been put on hold because of this tethered cord. monica just turned 5. ony info would be great. thaks shane
    mom to Kara, idiopathic scoliosis, Blake 19, GERD and Braydon 14, VACTERL, GERD, DGE, VEPTR #137, thoracic insufficiency, rib anomalies, congenital scoliosis, missing coccyx, fatty filum/TC, anal stenosis, horseshoe kidney, dbl ureter in left kidney, ureterocele, kidney reflux, neurogenic bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, clubfoot with 8 toes, pes cavus, single umblilical artery, etc.