Success! Down to 24 degrees!

[mamamax]

Oh boy - here we go. The Spinecor xray thing: Treatment protocol is 2 years (standard) so that would find us with 8 xrays (give or take a few more depending on the case and need). Now you know what? In my years of dealing with scoliosis and yearly check ups, sometimes I've received as many as 8 xrays in one yearly visit!! No - Spinecor patients do not receive xrays every 3 months for the rest of their life.

[Pooka1]

I do not think 4 low dose xrays per year are considered any big deal - and this is standard protocol for treatment.

Okay but I better not see Hawes or Clear or whoever make reference to breast cancer or any cancer in relation to surgical fusion of scoliosis.

[Pooka1]

So everyone in Spinecor and or PT is having 4 radiographs per year? The rest of their life?

Why is that necessary?

Kid_15 is very unusual in my opinion because she has an apparent decrease (according to a chiro not a surgeon) achieved by brace and PT through the growth spurt and she is likely now done growing. The brace can only hope to hold the curve but the open question is whether PT through the growth spurt can permanently reduce the curve. As you probably know, there is zero proof for this. The pediatric neurosurgeon Dr. Samdani is on that torso rotation video pointing out there is no proof of this ever happening. That's why I asked if the chiros were going to have her stop the PT if she is done growing. That would be proof the PT caused a permanent reduction in the curve though they would have to wait until the weaning period from the brace to end before determining that.

Would the curve go back to 42* when she stops brace and PT if now she is done growing? That is the $64,000 question. It would be huge if there was a permanant reduction as that would be a novel finding for a PT approach as far as I know.

[mamamax]

Congrats!!!

Mom & Kid 15 - Congratulations on the highest order!!


Pooka -

As an adult Spinecor patient, I also receive xrays every three months (and I'm certainly done growing). The xrays confirm (1) any correction going on and (2) check to make sure no progression is going on. I do not think 4 low dose xrays per year are considered any big deal - and this is standard protocol for treatment.

[Pooka1]

The reason I ask is that you are almost certainly done growing. If so, maybe you don't need so many radiographs any more. I don't know the procedure when a kid is done growing who isn't fused but I assumed you wouldn't need too many more radiographs and probably no more than every year or so but I don't know that. Not every three months! Do you know why you are getting so many radiographs when you are likely done growing? Maybe I'm missing something here.

A pediatric orthopedic surgeon (not a chiro) could radiograph your hand and tell you if you are done growing.

Also I know your mother mentioned you would be weaning off the brace in the next three months but will you also stop all the PT and chiro if you are done growing?

We really haven't had anyone come on here who reduced a 42* to a 24* with brace and PT and who was done growing so I just wondering what the plan was.

Also did the chiro or PT person tell you you permanently reduced your curve?

[Kid_15]

yes every 3 months may i ask why?

[Pooka1]

Many of you know mom 15 well thats my mom!!!!!!!! I was so happy to see my curvature decrease i go back in a week or 2

Hi Kid_15.

I'm glad you are doing so well.

Can I ask how often you get radiographs?

[Kid_15]

Many of you know mom 15 well thats my mom!!!!!!!! I was so happy to see my curvature decrease i go back in a week or 2

[Pooka1]

Wonderful ....it would be interesting to see what the pediatric orthopedic surgeon said after seeing spinecor results.

I would love for all the specialist to stop competing and work together. after all what works..works and should benefit the child not the practitioner.

I agree with going back to a pediatric orthopedic surgeon. I can't recall any kid on this forum who isn't at least also being seen by one in addition to any Spinecor chiros or regular chiros or PT people. Chiros simply don't have the necessary training to follow these cases and to even treat scoliosis. Even the Spinecor inventors are orthopedic surgeons.

In re competing... I don't see that the top pediatric guys have any competition whatsoever. None. They are the only game in town. Try scheduling surgery for a school vacation period. You better do it way ahead of time. These guys have more cases than they need it seems.

[Bigbluefrog]

Wonderful ....it would be interesting to see what the pediatric orthopedic surgeon said after seeing spinecor results.

I would love for all the specialist to stop competing and work together. after all what works..works and should benefit the child not the practitioner.

[Pooka1]

So you are no longer dealing with a pediatric orthopedic surgeon then if I understand your response?

It would be interesting to go back to the surgeon you saw who doesn't recommend Spinecor for another consult and show him the radiographs. Or have him shoot the next set. He might start prescribing it although the situation is confounded by the PT.

Although measuring a Cobb angle can seem straight forward, I think it would be interesting to have a surgeon or radiologist measure her Cobb angle to compare it to the chiros' measurement.

There are so few (none?) AIS - Spinecor successes that we hear about. That's why I think it would be great to tell the surgeon.

Your daughter is almost out of the woods so that's really great.

[Mom_15]

Christine2,
Yes, my daughter did have back pain when she first went without the brace as her muscles adjusted to holding their own instead of being held. I wish you best of luck in your upcoming appointment. Please let us know how it turns out.

Pooka1,
The Orthepedic Surgeon that had us in the Boston Brace said that surgery was our only option. He did not reccommed the SpineCor System. We see both a Certified Spinecor specialist and a Chiropractor. I can't say how much of our progress is due to the brace and how much to chiropractic treatments and how much to the excercises and stretches. We did see the curve progression stop in the brace with 1 - 2 degree improvement while she grew another inch, we did see 4 - 6 degree improvement when we added the chiropractic adjustments and the largest improvement came with the addition of the excercises (and she did grow any taller during this measurement period).

Thank you!

[christine2]

Mom 15

The thing about the exersize ball is interesting. I purchased one for my daughter last year to practice back bends for cheerleading. The cheering did not pan out (fine with me) so we have not used the ball. I am going to start having her do the same (tv time, ect...) I have a brother who is a parapalegic. During his rehab that was big for him to increase his balance.



Thanks Chris

[Pooka1]

This is the only testimonial I can recall reading anywhere that involves that kind of out of brace reduction in AIS.

The group in Texas that you are working with... is that a board-certified pediatric orthopedic surgery or is it the chiros if I might ask? I didn't realize there were accredited surgeons using Spinecor in Texas.

How much of the reduction would you say is due to the brace and how much due to the exercise?

I'm glad you got such great results.

[christine2]

Mom 37

That is just awesome. You are almost there!!! December is not that far away. I would assume there will be a weaning period.

We have an out of brace in mid October. My daughter is already whinning about having to be out of brace for 3 days. She says her back hurts when not in brace. Did you find that with your daughter too? Although being older she may have loved being out of brace.