spinecor

[Allegra]

Hi,
I was wondering:
before any of your children got spinecor, did any of them have bits of skin next to the curve that were painful at all?

happy holidays!

[MATJESNIC]

Nicole never had any pain in the beginning. She actually didn't start having any pain until after she had been in the brace for a while. she would have some pain when the brace was off and she was walking around. Dr. Rivard said this is common and nothing to worry about. When I say, "pain" I mean it's probably more of a discomfort. I don't even give her tylenol for it. She just puts her brace back on and it feels better.

Melissa

[CurvySAT05]

This thread is about Spinecor brace and not arguing. Maybe you can take your discussion about vestibular testing somewhere else where it might be better suited.
Dont want to distract from the wonderful posts that have been made here and all the support for the kids wearing this brace.

[gerbo]

must agree that these discussions do get a bit out of hand, and I suppose we are all as bad as each other. And indeed it distract a bit from the idea of this thread, i.e. mutual spport and info for and betwen spinecor users.

I suggest that we move this discussion to another thread under "alternative treatments".

I will open a new thread and move what I consider the "essential" parts of my contributions there, and delete the rest. I suggest celia and structural do the same. It might help to clear the thread and the air......

happy christmas

gerbo

[Celia]

Gerbo,

I just have a minute, we're hosting the celebrations tomorrow *again* and I have a million things to do Anyway, I just wanted to say Have A Merry Christmas and I hope Santa's good to you! You really are a dear friend!


hugs,

celia

[MATJESNIC]

Yes,

I think we should all stick to the Universal rules of never discussing religion, politics, sex or vestibular testing in public. Nobody is changing anybody's mind. Just going around in circles. I'm glad we are putting it to rest.

Merry Christmas and Happy New Year.

[cherylplinder]

Friends,
I am so grateful for you. Life has been insane lateley. My mom is dying of frontal lobe dementia. The house we are remodeling(money pit) flooded last week. 8ut God is good and it's all good. I cry every day, but you don't lose the people you love without crying.
But every trial builds strength and the ability to reach out to someone else.
And I am grateful for you, the support and love you have offered in a year that I couldn't have done without it!
I look forward to next year, whether it brings surgery or resolution.

I love you!
Merry Christmas!
Happy Holidays!(for anyone that Merry Christmas is inappropriate! )

Cheryl

[gerbo]

............and you clearly do lots of reaching out Cheryl, in a very valuable and meaningful and helpful way.

Wish you lots of strength and happiness

Gerbo

[gerbo]

mmmhhh Melissa, you're bringing up a few interersting topics there ,

Happy Christmas as well

gerbo

[gerbo]

anyway, this Turkey, quite a decent football player, goes on trial with Manchester United (english football club) He plays fantastic during his trial match and scores 12 goals. Manager comes to him afterwards and says; absolutely fantastic, here is a contract. The Turkey says; not bothered about a contract, just want to know: will I be playing on boxing day??

[MATJESNIC]

Cheryl,

My heart goes out to you during this difficult time. I wish we lived closer so that I could be of more comfort. I appreciate you and everything you do. Life is so difficult at times, I know. Here's wishing you a loving Christmas holiday with your family. I hope 2007 will be bright for you.

Everyone else, I wish you all the same happiness in the New Year.

Gerbo,

As always, I have no idea what the joke meant. I don't even get one fraction of it. Please explain.

Melissa

[gerbo]

it's a very bad joke, but the only one with a kind of christmas theme (suitable for a public forum) i could think of.

If the turkey (as in festive bird) was in the team on boxing day, it meaned he was going to survive christmas day (i.e.; not being eaten.) It is a bad, bad, bad joke, sorry

[Mom37]

I am just catching up now. My daughter is doing well.

How is your daughter ? What is the prognosis ? I hope all is well.

Great to hear that you were reimbursed for the costs of the test! I don't have much time right now but we did discuss vestibular testing back on page 59 and 60 of this thread. As for right now... I have visions of sugar plums and fairies dancing in my head

It will be 3 months until another MRI to determine if her syrinx drained itself with the spinal fluid flow now unblocked from her ventrical, which is the hope. It is 85 percent sucessful. Thank you for your concern. Hope you have a great holiday! I am also greatful for your support, and everyone from the forum, the thread, posts, private messages, emails, cards, gifts, and most importantly thoughts and prayers!

[Mom37]

still catching up

Mom37,

I am sorry you are going through all of this. I can't remember how old your daughter is and whether she had a typical curve. I can't find the old thread. Yes, I do believe Dr. D. is a caring individual. I only received out-of-network reimbursement for everything so it ended up costing us a lot of money. I cant remember where you live. What hospital are you going to now?

Melissa

Thank you for your note. My daughter is 12 and we live in the Dallas/Ft Worth metroplex area. Dr. D in NYC fit her for the Spinecor brace as we asked. He is not an Orthopedic MD, but very knowledgeable and experienced in his field. He was backed up by Andrew Mills who did her one month brace adjustment. He said he would have done just the same, and he is THE orthotist with Spinecor. Each insurance is different as we can see. The testing was covered in full due to done by MD and brace out of network, less paid due to out of area. Although none in area, and none in network. Never pursued appeal. Mine required pre certification, and so I found out the day I was leaving to NYC that it was approved. Personal choices for all concerned. For her Chiari and Syrinx we are going to Children's Medical Center of Dallas for Surgical Neurology issues. For her scoliosis we are going to Texas Scottish Rite Hospital for Children. That was our third Orthopedic opinion, and the first to order the MRI. I was extremely impressed by Dr. John Birch at Scottish Rite at our first visit, before we even knew that the MRI would result in a new condition that was the cause for her scoliosis. She had no other known medical issues prior to this. Two other Orthopedic surgeions, one local and one out of state did not pursue MRI or CT scan.

[GeorgiaMom]

Hi Alabama Mom,
Yes, we live in the Atlanta area and go to Dr. Brian Ouellette. He is a Chiropractor in Alpharetta, GA. (North side of Atlanta.) So far we like him, but it's still very early. My babysitter's friend goes to him as well.

As far as insurance goes, we haven't heard from ours yet. We have Aetna. I have heard that BCBS is not very flexible, but it's always worth a try. Dr. Ouellette's staff is very helpful and willing to work with you to get the insurance approved, if at all possible.

Good luck and let me know what you end up doing.

Georgia Mom