spinecor

[pat]

HI Celia!!! The appointment went fine, she's holding at a 6 (in brace); she was a "1" in brace last time, but no concern, everyone's pleased. Still makes me worried . . . . No parts replaced, we asked about her thigh straps losing their velcro "stick," they advised us to go see a shoemaker, otherwise it's $500 to replace. No adjustments made to brace, back in 5/6 months. pat

[Celia]

Pat,

Hmmm....6 in brace is still very good correction and keep in mind that she is in the middle of her growth spurt. We definitely have to get the brace replaced next time we go and I guess it means going back 5 weeks later for adjustments. I'm going to see if we can forego x-rays for the fitting and then have an x-ray done 5 weeks later I wonder if the scoliometer will suffice.

[gerbo]

1 degree or 6 degree, its all withing the margin of error, so looks good to me!

celia; appears to me as well that x-rays at this stage are not going to change the management at all. So quite reasonable to ask not to have x-rays (the'll tell you if they disagree)

[MATJESNIC]

Pat,

That is a really good appointment. We are used to hearing numbers in the 20's and late 30's in-brace. So 6 sounds amazing to me. I'm really happy for you.


Melissa

[gerbo]

its you next week, isn't it Melissa, must be getting tense. So much hope for you you'll have good news!!

[MATJESNIC]

Thanks, Gerbo,

It is out of our control. No matter what happens, I am so proud of Nicole for wearing her brace with such dedication. I appreciate everyone's support. I will report back to y'all as soon as we get back on the 13th.

Melissa

[gerbo]

think you should be proud of yourself as well, just for sheer determination to get the best possible outcome for your daughter and just keeping going!!

wish you lots of strength and if i was religious I'd pray for you!

gerbo

[arairdon]

spinecor

Pat,


We had to replace the velcro on my daughter's brace. I took it to a friend who can sew. We tried to sew it over the old velcro, but that didn't work, so we eventually just replaced the whole piece. Good luck.

Ann Rairdon

[Kalarasy]

new with spinecor brace

My 8 year old son has a 31 thoracic degree curve and we decided to go with sinecor. We left to Montreal 2 weeks ago and at the initial fitting his cuve went from 31 to 7 degree. We were so happy.He is wearing the brace OK, but we have some problems with strap number 1 that gets disconnected sometimes even if he sneezes. I called in Montreal and they told me to go to a shoe maker with it. Now I am thinking that we've paid so much on it and I am worried that a shoe maker wouldn't be fit to work with it. Any suggestions will be greately appreaciated. By the way I love your thread, I ve been reeding it many times before we decided to go with spinecor. Thank you for all your help.
Adriana

[MATJESNIC]

Thanks, Gerbo,

It's nice to know you are thinking of us. Praying for good news at this point, doesn't make sense anyway. The curve is what it is. Too late now for it to become something else. It's like the old saying that if you hear firetrucks and you pray that it isn't your house that is burning. But the house is already burning, so the prayer isn't going to change that. Sorry if I am being too philosophical.

But I will be praying that God gives me the strength to be strong, no matter what the outcome.

As far as the woman whose son went from a 31 to an 8, that is awesome!!! Sorry I don't remember your name. I can't imagine that putting on a snap needs to be done by any expert from Spinecor. I believe Celia has had that done before. I am very happy that your son had such great success!!! Glad we could be of help. Hope you will join in our lively discussions!!! Where do you live?


Melissa

[Kalarasy]

Melissa

We live in Portland, Oregon.I hope the brace will hold down the curve, I can't be too happy yet, I am still very worried. We have tried so many other treatments and none of them lowered his curve.

[MATJESNIC]

Kalarasy,

I think it is extremely encouraging that he went down so much in Spinecor. What other treatments did you try? How long ago was he diagnosed?

Melissa

[Kalarasy]

Melissa

We had a providence night brace, boston brace, tried asco, chiropractor treatments, medical gymnastick and deep massage in Europe. He was diagnosed when he was 7 with a 20 degree curve and despite all these treatments his cuve progressed to 31 degrees. My son is tired of going to the doctors. Now we are doing pneumex in combination wth spinecor.
Adriana

[MATJESNIC]

Adriana,

That is amazing. You really have tried a lot of things. Have you ever been on the threads where people were talking about stapling at Shriner's in Phila. If Spinecor wasn't giving such good results for your guy so far, that would have been a possibility.

Do they know what is causing his scoliosis at such a young age? Or is it an unknown like it is for my daughter?

Melissa

[Kalarasy]

Melissa

They don't know the cause, it may be ereditary, my sister has scoliosis. No, I don't know to much about stapling. I am trying to so anything I can to avoid any kind of surgery, but will see.
Thank you:
Adriana