spinecor

[dizzymom]

Whew!!!! that was alittle over my head for a while. Guess I obviously haven't done that much "research" yet. Was very interesting! I have a lot to think about.

Thanks for the info. Clear as mud..... just kidding. Now to hear from insurance and decide where to go. How long a wait to get into Montreal docs? Do they see adults? I, too, am blessed with scoliosis.

neva

[dizzymom]

Forgot to add.... maybe that's why I have always been a klutz. My vestibular something or another is out of wack. Could be the problem!

Would be interesting to really see more research into such things....but alas they take time and money.
Chow.... neva

[cherylplinder]

Neva,
It doesn't take long to get in to see them, usually. Just give them a call. The number is on the Spinecor website. You can also e-mail. Let us know.
If you have any trouble, I'll check and see if I can come up with another e-mail address or number. I know they are in Tuesday through Thursday; so if you call on a Friday, it may seem like they are not getting back to you very quickly.


Hugs,
Cheryl

[MATJESNIC]

Spinecor

Hi Spinecor Friends,

Just want to tell everyone that we met Pola and Anastasia last weekend. They are wonderful people and it was so great to spend time with them. Anastasia is doing so well. The two girls had a lot in common and I was only sorry that the get-together was so short.

I hope one day we can all meet!!



Hope everyone is doing well.

Melissa

[Celia]

That sounds so nice!! Did you guys go to a restaurant ?

I spoke to Dr. Coillard on the phone last week (her English is very good by the way) and she was telling me that I shouldn't replace the elastic bands so often. I replaced them once already and my plan was to replace them every six months. We have a follow up next month and what I might do is just get a new brace because the one Deirdre has been wearing for the last year is looking a little rough around the edges. Has anyone else been replacing the elastic bands ?????

[MATJESNIC]

Yes, Celia,
We had dinner together.
Yes, we replaced one or two straps because they were shot a while back. We also replaced the thigh bands because they were gross. Now her brace seems fine.

Melissa

[cherylplinder]

I replaced Rachel's at our last visit(the week before.) That was at the 8 month mark. I might get an extra set to rotate each week. It would make washing easier.
Did Dr. Coillard say why?

[Celia]

Well....we might still get the elastic straps at the next follow up visit however I wanted to get it a few weeks in advance so that any stretching that takes place would be accounted for when Dr. Coillard sees Deirdre. I'm reluctant to just pick it up on the day of the visit knowing that it stretches a little.

Dr Coillard was telling me that some centres in other parts of the world were replacing the elastic bands on a regular basis ( she didn't say how often ) and were NOT getting very good results with the brace. When they stopped changing the elastic bands, their results improved ?! It doesn't make any sense to me If the elastic bands get worn out how is that helping maintain the curves ??? Deirdre's curve is at "1" degree - we just want to keep it there

[MATJESNIC]

The only thing I can think of is something Dr. Coillard said to me on the last visit. I said that since we wouldn't see them for 5 months, did she want us to make the bands tighter as time went on and they got loose. She said not to do that because they have found that leaving things the way they are is best. The straps shouldn't be messed with. I also remember Dr. Deutchman saying that tighter wasn't necessarily better. In fact, one time when he got no correction he said he knew he could get some correction by making it tighter. But he didn't think that was the best thing to do at that point.

But I also remember when Nicole had her last growth spurt and her curves increased and her bands were shot. We then replaced the bands.

At least your girls have some room for growth. Nicole has been "skating on thin ice" since her diagnosis. She has no more room for an increase. You know what an increase means in her case.

Melissa

[pat]

Has anyone else been replacing the elastic bands ?????

Hello! We have only replaced the crotch bands, and we're coming up on a year now wearing the Spinecor. pat

[gerbo]

It doesn't make any sense to me

neither to me, if old worn out bands work better, why not manufacture the whole thing out of old worn out bands in the first place. Are there other factors we do not know about?? Maybe thightly applied less elastic bands give more corrective forcr than tightly applied more elastic bands?? If so, the whole design needs rethinking. I am confused.........

[Celia]

Maybe someone else can give her a call and get a different interpretation on this ? I think Dr. Coillard has a clinic today.

[christine2]

We go for our 1 month re check on Monday. I will try to pick Dr. Colliards brain about the subject. I am wondering if she just does not want us messing with the bands at all to reduce human error.

Christine

We have bodysuits on order from special clothes I hope they work. My daughter is growing and the spinecor body suits are expensive. Bodysuits.com do not make her size (6 years old)

[gerbo]

the spinecor body suits are expensive

but also remember that you can do without them altogether

[gerbo]

Maybe someone else can give her a call and get a different interpretation on this

i'll try to get a reply out of mr mills