spinecor

[mariaf]

Hi Jill,

You could not ask for better news than that - I am VERY happy for you!!!

[Pooka1]

Hi all, We had katie's appt yesterday - she's pretty much stable which is a relief...her curves actually flipped...what had been 6/3 is now 3/6. Dr. Rivard said it's basically the same curve...a slight deviation in the way one stands while being xrayed could account for it. Anyway, we can finally exhale...she grew about 1 1/2 inches since the last xray also (this is our first experience with her having growth while wearing the brace...she didn't really grow much the first 6 months she wore it)

gotta go but wanted to update you

Wow that's pretty good! The brace seems to be using growth as a tool against curve progression as they say.

[WNCmom]

Jill--

Fantastic news--congratulations! You must be so relieved and happy.

Mary Ellen

[Izzy's Mom]

Jill, that's wonderful news! It's awesome that she had a growth spurt and still showed improvement.

Laura, thanks for info. The movement had us worried.

I'm still having a bit of trouble finding the exact "bodysuit.com" website. Several results pop up and I was wondering which site had the best suits.

thanks
Theresa

[Jenmom]

http://www.bodysuit.com/bodreg.html

This is the one we use.

Jill, that's wonderful news! It's awesome that she had a growth spurt and still showed improvement.

Laura, thanks for info. The movement had us worried.

I'm still having a bit of trouble finding the exact "bodysuit.com" website. Several results pop up and I was wondering which site had the best suits.

thanks
Theresa

[Izzy's Mom]

Thanks Kathy! I thought this was the website but wasn't sure. Everytime I tried to order a childrens bodysuit, it wouldn't allow me to choose a color or size. Hopefully I'll have better luck this time around.

[jillw]

Thanks everyone - I'm so glad to have that appointment out of the way! Now I may have another fewm onths before I start the next cycle of worrying myself into extra gray hairs!

We just got home (we went away for the weekend on our way back) and I am inundated in mail/laundry etc, but I will post later...I did ask Dr. Rivard for his thoughts on Dr. Wong's study and will post more later when I have a bit more time.

[leahdragonfly]

Happy for your good news, Jill

Hi Jill,

I am happy to hear that Katie's appt went so well! I know the feeling (we all do I'm sure!!) of relief once a successful appt is concluded, and can totally relate to the feelings of dread that start to return once the next appt gets closer. I feel SO mental about all of this sometimes!

Leah's next appt won't be until January (she will be 7 by then too), so I am trying to busy my mind by concentrating on her school work and activities and not dwell on her back too much. Sometimes I am more successful with that than other times...

Take care,

[Erica B.]

New and looking for help with spinecor for 7 yr. old

Hi Im new here and still learning how this site operates, but I'd love any help. I live in Maine. My 7 year old daughter was diagnosed with 16T/17L in June 2008. My DO said wait and watch. Well, it took me 4 months to realize I need to do something. I really feel pressure to get her into a spinecor brace asap. She is scheduled for another x-ray in 2 months, but I don't want to wait that long. There is family history with her grandmother and great aunts. People on this site seem to be going right to Montreal, and not messing around in the USA when it comes to spinecor. Im looking into that right now, but would appreciate any insight. Any other helpfull therapies also would be great . Thanks Erica

[Izzy's Mom]

Hi Erica and welcome! I know what you are going through and it's a difficult decision to make. We recently put our 7yr. old (Isabella) in a spinecor brace. We chose this brace because we felt it had positive results and would work best with Izzy's active lifestyle. We went to Montreal to Dr. Rivard because there are no doctors in our area that fit for the spinecor brace and we would have to travel anyway, so why not see the best ortho possible. It's only been a couple of weeks but we our pleased with th results so far. Isabella has adjusted wonderfully to her brace.

If you want to you can email or call Dr.Rivard to get his opinion. This is what we did. Here is the info if this is what you decide to do.
crivard@justine.umontrea.ca 514-345-2344

We wish you the best of luck!

Theresa

[Jenmom]

Hi and welcome! If you don't want to wait and see with your doctor you can always go it on your own. This group does Spinecor http://www.scoliosisspecialists.com/ and you could also see an ortho on your own and pay out of pocket. We were going to do that until our doctor found an ortho trained that took our insurance. If you are close to Ca., Jeremy Livingston at the Hanger group in Downey is trained with the Spinecor brace. My daughter just loves him and if our insurance would not have covered it he said the cost would have been around $2100, the scoliosisspecialists charge around $4000. But if you can go to Canada that would be going staight to the best which is always good.

[CAmomof2]

Hi Erica!
I'm new here too, and we are neighbours - we live in New Brunswick.
Our daughter was just put in spinecor on Sept 25/08 in Montreal because they are the closest to us - although 9 hr drive one way!! She is doing very good in the brace after a bit of adjustment time. We go back to Montreal on Oct. 23 to get her one month check-up. This site is great for answering questions etc. Hope it helps you and your family. Stacy

[christine2]

spinecor up date

Hi Everyone

This has to be quick, we just got home from our appt.


I feel like we just won, not the lottery but the powerball lottery. My daughter was measured 0 with the scoliometer and 1 degree on x ray. Dr Rivard said "it might as well be 0"

I am not sure I will be able to sleep tonight, I am soooo excited.

[Izzy's Mom]

Conratulations!!!!!!!

Christine that is AMAZING news!! We're so happy for you. I don't think I'd be able to sleep either. This is better than the powerball. It's the best news anyone could have wished for!

Theresa

[jillw]

Holy moly - you must be feeling high right now!!! That is such great awesome wonderful news. Hooray! I think I would be up all night calling everyone I know with the good news if I were you. How nice to lose sleep out of excitement instead of worry! Just curious, what was her rotation as measured on the scoliometer when it was at its highest point?