Ruth,
I'm seeing Dr. Savedoff in Miami. Originally Dr. Oulette from Atlanta braced her and Dr. Savedoof has been following her as he opened his office just a few miles from my house. I took her in three months ago and he readjusted the brace, but I did not have an xray done. I have been very careful when I have washed the brace to put it back together exactly as he adjusted it. The part that seems to have caused the trouble is where the shoelace is in the back. It wasn't tight enough. But I haven't even untied that part at all. I have washed it by hand. I have been meticulous to put the thigh bands and the crotch straps exactly where the line was drawn.
I do know that Emily does pull on it, but I didn't think she could make it go up to high, as the thigh bands and crotch straps should have been holding it in place. She isn't able to untie the shoelace part, and there is noone who would have loosened it for her. I really just can't believe it, and I've lost time.
I've decided I will email a picture of the brace to the doc every week after I wash it and we put it back on. Then once a month, I'm going to stop by to have him look at it to make sure it is fine.
We are also going back to the orthopedic to see what he thinks. Of course, he doesn't think she needs a brace at all yet, so I don't think he will say much.
The hardest part is that visually she DOES look better. She has no tilt in her shoulders now. Her hips are almost even. They are definitely more even than they have been since her original diagnosis in 9/04. Her rib hump looks smaller and her overall posture is much improved. But as soon as I saw the xray, I knew the curve had increased (even before he read it). Can someone tell me how she can appear so much better, yet really be worse?
I'm seeing Dr. Savedoff in Miami. Originally Dr. Oulette from Atlanta braced her and Dr. Savedoof has been following her as he opened his office just a few miles from my house. I took her in three months ago and he readjusted the brace, but I did not have an xray done. I have been very careful when I have washed the brace to put it back together exactly as he adjusted it. The part that seems to have caused the trouble is where the shoelace is in the back. It wasn't tight enough. But I haven't even untied that part at all. I have washed it by hand. I have been meticulous to put the thigh bands and the crotch straps exactly where the line was drawn.
I do know that Emily does pull on it, but I didn't think she could make it go up to high, as the thigh bands and crotch straps should have been holding it in place. She isn't able to untie the shoelace part, and there is noone who would have loosened it for her. I really just can't believe it, and I've lost time.
I've decided I will email a picture of the brace to the doc every week after I wash it and we put it back on. Then once a month, I'm going to stop by to have him look at it to make sure it is fine.
We are also going back to the orthopedic to see what he thinks. Of course, he doesn't think she needs a brace at all yet, so I don't think he will say much.
The hardest part is that visually she DOES look better. She has no tilt in her shoulders now. Her hips are almost even. They are definitely more even than they have been since her original diagnosis in 9/04. Her rib hump looks smaller and her overall posture is much improved. But as soon as I saw the xray, I knew the curve had increased (even before he read it). Can someone tell me how she can appear so much better, yet really be worse?
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