Celia, been around but not much to say at the moment, as i feel rather in limbo, with daughter being completely unbraced whilst we are waiting for a fitting appointment. Trying not to think to much about scoliosis as at times it gets me too worked up.
Melissa, woulldn't get too worked up about this > then 30 degree issue, I think it is well known that a curve over 30 degree has a higher chance of getting worse and that rapid growth is the biggest risk factor, hence the importance of trying to keep curve below 30 degree until past PHV.
If the spinecor will do that for you (as it is doing now) you are going to be OK hopefully. Clearly the bracing they are talking about in the PHV study we do not know anything about, i.e. type used, correction achieved, compliance etc.
all of us know that whatever we try, there is never a garantee that our child will not end up having surgery, but at least we know that, on current evidence, we are doing as much as we can to prevent this happening. (and remember, even surgery isn't the worse, as there are many "happy" surgery stories)
best wishes
gerbo
Melissa, woulldn't get too worked up about this > then 30 degree issue, I think it is well known that a curve over 30 degree has a higher chance of getting worse and that rapid growth is the biggest risk factor, hence the importance of trying to keep curve below 30 degree until past PHV.
If the spinecor will do that for you (as it is doing now) you are going to be OK hopefully. Clearly the bracing they are talking about in the PHV study we do not know anything about, i.e. type used, correction achieved, compliance etc.
all of us know that whatever we try, there is never a garantee that our child will not end up having surgery, but at least we know that, on current evidence, we are doing as much as we can to prevent this happening. (and remember, even surgery isn't the worse, as there are many "happy" surgery stories)
best wishes
gerbo
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