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  • #2026
    We are 6 days post op-Thanks for your reply

    Originally posted by MATJESNIC
    Mom37,

    Good luck with your daughter's surgery. Please keep us posted. Please remind me of how old your daughter is and what her curves are. I remember you from a while back when we talked about the Spinecor. As you can see, my daughter is having her surgery a month after yours. Where do you live?

    Celia, it is good to get away from the scoliosis topic for a while. Enjoy your vacation.
    I know it is tough, and I wish you the best on your daughters surgery next month. I will keep you and your daughter in our thoughts and prayers.

    Spinal Fusion surgery, Wed., Aug. 1st went very well. She had two titanium rods and screws, and hooks, as need to be able to do future MRI's to monitor her spinal cord. No spinal cord issues during surgery. Great correction and about an inch and a half taller. She is still healing, but we were able to come home yesterday and sleep in our own beds. Pain is manageable, but day 3-4 were tough. Her curve was at a 60 on July 31st at preop. It was upper thorasic curve later determined through an MRI as caused by Chiari I Malformation. She had Chiari decompression surgery Dec 2006 and she used Spinecor until then, almost 9 months. We live in the Dallas/Ft. Worth area of Texas. She had surgery at Texas Scottish Rite Hospital for Children. The two surgeons were awesome, and nurses, and eveyone there were great. A very special place. Since day one until now very pleased with them (TSRHC).
    Shirley
    Mom to Amanda, 18, Scoliosis T58, previous Spinecor bracing for 9 months before diagnosed with Chiari I CM, and Syringomyelia (Syrinx) SM. CM/SM decompression surgery 12/4/06, Spinal fusion surgery with titanium rods and hardware and full correction 8/1/07 at Texas Scottish Rite Hospital for Children.

    Also mom to Megan, 14, with diagnosis PDD-NOS on the autism spectrum

    Comment

    • #2027
      Just got back from Montreal

      Hello,

      We just got in from Montreal today. All went well. Dr. Rivard said that her curve mesured 5 degrees from 7 degrees last time. We started around 21 degrees in Dec. Her x-ray looked better to me than it did last time, not that I know much about reading an x-ray, but it did make me worry less They made a few small adjustments to the brace, but nothing too major. That is all for now.

      Take care everyone.

      Sarah

      Comment

      • #2028
        Wonderful news Sarah!
        UK based Mum of Imogen, 38 degree curve at 9 years old. SpineCor since 15/6/07, 31 degrees in brace.
        10th December 07 - 27 degrees, 23rd June 08 - 26 degrees, Feb 09 - 24 degrees, Aug 09 - 35 degrees, Jul 10 - 47 degrees, Dec 10 - 50+ degrees.
        Surgery due to take place early December 2011 at the RNOH, England.

        Comment

        • #2029
          Wow! Great news! I am so excited!
          God has used scoliosis to strengthen and mold us. He's good all the time!On this forum these larger curves have not held forever in Spinecor,with an initial positive response followed by deterioration. With deterioration, change treatment.The first year she gained 4 or 5 inches and was stable at around 20/20 in brace, followed by rapid progression the next year.She is now 51/40 (Jan2008)out of brace (40/30 in Spinecor) and started at 38/27 out of brace(Jan2006.) Now in Cheneau.

          Comment

          • #2030
            Wow! gr8 news! glad to hear!!
            My name is Rotem
            I am 13 and in 7th grade
            Started with 2 curves:
            34º Therotical
            50º Lumber
            I currently wear a Cheneau Brace
            Got my 1st on Nov. '06
            Got my 2nd on Nov. '07
            Just got my 3rd one today (May7 '08)
            and im still trying to get used to it
            Hoping I won't need surgery
            I live in South Florida
            3rd check on November 17,2007,
            Got an X-ray done Feb. 5th, with EXCELLENT news!
            30º Theoratical
            37º Lumber
            4th check on May 7, 2008

            Comment

            • #2031
              I'm officially back from our holidays! Was I ever gone???? Here are a few memorable pictures:

              http://i41.photobucket.com/albums/e2.../celia1082.jpg
              http://i41.photobucket.com/albums/e2.../celia1200.jpg
              http://i41.photobucket.com/albums/e2.../celia1098.jpg
              http://i41.photobucket.com/albums/e2.../celia1205.jpg
              http://i41.photobucket.com/albums/e2.../celia1196.jpg
              http://i41.photobucket.com/albums/e2.../celia1166.jpg
              http://i41.photobucket.com/albums/e2.../celia1158.jpg
              http://i41.photobucket.com/albums/e2.../celia1156.jpg
              http://i41.photobucket.com/albums/e2.../celia1106.jpg
              http://i41.photobucket.com/albums/e2.../celia1101.jpg
              http://i41.photobucket.com/albums/e2.../celia1097.jpg
              http://i41.photobucket.com/albums/e2.../celia1086.jpg
              http://i41.photobucket.com/albums/e2.../celia1085.jpg

              Canadian eh
              Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

              Comment

              • #2032
                Great news Sara!!

                We just returned home from our appt (1 yr in brace) My daughter measured 8 degrees so we are holding strong!! (Dr. Rivard said 3-5 degree margin of error) We are very happy. Dr Coillard said she looked great out of brace too. A SMALL rib hump but absolutly no concern. I thought I saw a compensatory curve but she said there was none. I have been worring about that I thought I had seen one (naked eye). They are top notch professionals!!

                We made a vacation of it. We spent 2 nights at the Great escape lodge, hung out at lake George, then to Plattsburg. On our way back we picked up out new puppy in NH, the White Mountains are georgous. Then to top off our most wonderful vacation we listened to the puppy scream & cry ALL NIGHT.

                The kids are having a blast!!
                from CT, USA
                6 year old daughter diagnosed 7/06 33* T9

                Spinecor 8/06 - 8/2012
                8/06 11* 3/07 5*-8/07 8*-2/08 3*
                10/08 1* 4/09 Still holding @ 1*
                10/09 11* OOB 4/10 Negative 6*
                10/2011 Neg.11* IB 11yrs old 0 rotation
                4/2012 12* OOB 0 rotation
                8/2012 18* OOB for 2 weeks. TSLO night time
                2/2013 8* OOB 3 days TSLO nightime
                3/2014 8* Out of Brace permanently

                Comment

                • #2033
                  Congratulations Christine, you must be ecstatic!! Great correction and holding!!
                  Emily's mom-11 1/2 years old
                  28 degree scoliosis 9/04
                  Chiari Malformation/SM decompressed 11/04
                  17-24 degrees 11/04-6/07
                  Wearing Spinecor Brace since June 07
                  3/31/10- 29 degrees oob
                  11/18/09 17 degrees in brace

                  Comment

                  • #2034
                    Congratulations Christine! Great news!

                    Celia,
                    Your pictures are beautiful!
                    God has used scoliosis to strengthen and mold us. He's good all the time!On this forum these larger curves have not held forever in Spinecor,with an initial positive response followed by deterioration. With deterioration, change treatment.The first year she gained 4 or 5 inches and was stable at around 20/20 in brace, followed by rapid progression the next year.She is now 51/40 (Jan2008)out of brace (40/30 in Spinecor) and started at 38/27 out of brace(Jan2006.) Now in Cheneau.

                    Comment

                    • #2035
                      It's encouraging to read that the young children with juvenile scoliosis are having such good results with the spinecor and in some cases the curves are being reduced quite substantially with the brace. Of course only time will tell.... but if the curves stay low I can't imagine any major problems during the adolescent growth spurt. Am I jumping the gun on this one??!


                      *

                      Canadian eh
                      Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

                      Comment

                      • #2036
                        Dr Rivards plan is as follows

                        Keep my daughters curve as low as possible now. Then he expects it may creep up during her 10 -13 yr growth spurt. He said we should be able to keep it below 20 degrees and she should be able to live a normal life with out surgery. as Celia said only time will tell but at least for now my daughter has a good quality of life.
                        from CT, USA
                        6 year old daughter diagnosed 7/06 33* T9

                        Spinecor 8/06 - 8/2012
                        8/06 11* 3/07 5*-8/07 8*-2/08 3*
                        10/08 1* 4/09 Still holding @ 1*
                        10/09 11* OOB 4/10 Negative 6*
                        10/2011 Neg.11* IB 11yrs old 0 rotation
                        4/2012 12* OOB 0 rotation
                        8/2012 18* OOB for 2 weeks. TSLO night time
                        2/2013 8* OOB 3 days TSLO nightime
                        3/2014 8* Out of Brace permanently

                        Comment

                        • #2037
                          That's great news, Christine!

                          C
                          From Massachusetts, USA
                          7-yr.-old daughter in Spinecor 9/06-10/07
                          Vertebral stapling surgery done 10/07 at Shriners in Philadelphia

                          Comment

                          • #2038
                            Super News!

                            Christine,

                            So glad your trip went really well!

                            Sarah

                            Comment

                            • #2039
                              Christine and everyone else who I may have missed,

                              I am happy for all of your success and I hope you always hear good news.
                              Melissa
                              From Bucks County, Pa., USA

                              Mom to Matthew,19, Jessica, 17, and Nicole, 14
                              Nicole had surgery with Dr. Dormans on 9/12/07 at Children's Hospital of Phila. She is fused T-2 - L-3

                              Comment

                              • #2040
                                Melissa,

                                I don't know how I came across the following website again but I was just doing a Google search and I found it! I read this a few years ago and what caught my eye was the fact that this one patient was a cheerleader and she wanted to retain as much flexibility as possible. I don't know if Nicole would even qualify for a such a procedure but I thought I should share this with you.

                                http://www.orthojournalhms.org/volum...articles10.htm

                                Canadian eh
                                Daughter, Deirdre born Oct 2000. Diagnosed with 60 degree curve at the age of 19 months. Serial casting by Dr. Hedden at Sick Kid's Hospital. Currently being treated by Dr. Rivard and Dr. Coillard in Montreal with the Spinecor brace and curve is holding at "2" degrees. Next appointment 2008

                                Comment

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