I had no idea that there were so many folks out there feeling some of the same things I have been feeling. I too, have a 20 year old son with a 74% curve and a 15 year old son with kyphosis. The 20 year old refused to wear his Boston brace, and also took it off in the middle of the night and threw it across the room. I had a very difficult time with this, as I was hoping against all odds that he would wear it and stop the progression of the curve, as I lost my brother to a pulmonary embolism during his second surgery for scoliosis at the age of 36 back in 1985. I have lived in fear for the past 7 years, since my 20 year old was diagnosed with scoliosis that history would repeat itself. He went for a check up two weeks ago and learned that his curves had progressed from 62-74% and that surgery was in the future. To complicate matters, he has a blood disorder that predisposis him to clotting...which most likely my brother had as well. It has been extremely difficult to face that he will need to undergo the surgery, all the while knowing the strong family history. I found this website forum only a few days ago, and it has helped to realize that there have been many people who have had the surgery with positive results. I feel for all of you parents out there who are struggling with the same issues with bracing and surgery that I have felt. There is nothing worse than seeing your child suffer and feeling helpless to do anything about it. Teen age boys seem to have a mind of their own and how I wish my son would have worn his brace as it had been prescribed.
Sue Fred
Sue Fred
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