on our way soon
I sent Janet everything she asked for and she sent me contact info for a handful of families whose daughter had tethering as their treatment. It is nice to be able to speak with them.
I checked with my husband and daughter and we are accepting the first appointment Janet has available, 10-27-15. Then I found Miracle Flights for Kids and they are going to fly us across the states and back. Now I need to find a hotel or Ronald McDonald House in or near Lawrenceville, NJ and an hours’ worth of ground transportation from the airport to the doctor’s office and we will be set. I wish my husband could accompany us, but he doesn’t do well in any type of medical situation so it is better if he stays home with our youngest daughter.
I spoke with my daughter's high school VP regarding make-up assignments and she said they will work with us.
–If Miracle Flights can’t find transportation for the day before and after the appointment, then we might get to go sightseeing. My daughter loves history and she is hopeful!!! It would certainly help to attach a positive note to the ortho's visit.
A Mom
I sent Janet everything she asked for and she sent me contact info for a handful of families whose daughter had tethering as their treatment. It is nice to be able to speak with them.
I checked with my husband and daughter and we are accepting the first appointment Janet has available, 10-27-15. Then I found Miracle Flights for Kids and they are going to fly us across the states and back. Now I need to find a hotel or Ronald McDonald House in or near Lawrenceville, NJ and an hours’ worth of ground transportation from the airport to the doctor’s office and we will be set. I wish my husband could accompany us, but he doesn’t do well in any type of medical situation so it is better if he stays home with our youngest daughter.
I spoke with my daughter's high school VP regarding make-up assignments and she said they will work with us.
–If Miracle Flights can’t find transportation for the day before and after the appointment, then we might get to go sightseeing. My daughter loves history and she is hopeful!!! It would certainly help to attach a positive note to the ortho's visit.
A Mom
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