Originally posted by ChrissysMom
View Post
Announcement
Collapse
No announcement yet.
New here
Collapse
X
-
Last edited by LSKOCH5; 04-16-2012, 09:17 PM.Mom of 14yo son diagnosed Oct 2011
Surgery 1/3/12 w Dr. Geof Cronen,
Tampa General Hospital T3 to L1
Jacob's pre surg curves: T58 & L31 12/28/11
photos & xrays in "First-Time Surgery" thread "Before & After"
-
Her Xray was evaluated by an orthopedic surgeon, who gave his impressions and suggested surgery, and next Thursday we see the Orthopedic surgeon who actually specializes in spines. I don't know if both curves are structural yet, as we have only had the standing spine study. I was given the Xrays and the impressions to take with me for my second opinion. It reads: "Standing AP imaging demonstrates a prominent rotatory S-shaped thoracolumbar scoliosis. There is a 54-degree right convexity curvature centered at T9. There is a 50-degree left convexity curvature centered at L2. On AP imaging, the vertebral bodies and posterior elements otherwise are unremarkable."
Originally posted by LSKOCH5 View PostYou are doing what you need to do - researching & getting your head around the whole thing. Unfortunately you'll probably have friends & family try to dissuade you on surgery and downplay Chrissy's situation. Many of us have been through that. Back surgery has always been one of the things to avoid in life - but scoliosis surgery is a whole different surgery, w a surgeon who specializes in scoliosis. Have you consulted w any of them yet, or are you still dealing primarily w the Pediatrician?DD #2 fused T-2 through L-5 07-03-12
DD #3 9y/o progressing. 19 degrees as of 01/13
Comment
-
Originally posted by ChrissysMom View PostOddly enough, hearing that she isn't even really borderline on surgery is probably easier than if I had to take a gamble and decide myself.
We had no choice about surgery in either of my daughter's cases. There is cover there when you have no choice. It is still mind blowing but bad things happen to good people and all you can do is optimize within the hand dealt.Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
Comment
-
Hi there,
I just wanted to welcome you to the group, and say I'm so sorry to hear of your dd's scoliosis. I know how much of a shock it comes as. But as the others have said, she and you will get through this, and these kids and teens bounce back so quickly from surgery.
My 8 y/o daughter had surgery (not fusion) for scoliosis 2 years ago, and now my 7 y/o son was just diagnosed lasr week. I am so glad to hear your other girls' backs were fine--what a relief! I would second the advice you got about seeking a second surgical opinion from a pediatric spine or scoliosis specialist, just so you know all your options. You want someone who does lots of fusions on teenagers for the best outcome. You can search for the appropriate doctor in your area by checking out the Scoliosis Research Society at www.srs.org then "find a professional" and search by geographic area. You can further select the category "adolescent."
Best of luck, and please feel free to ask all your questions here. There are many parents who have gone through fusion surgery with their kids and can give you plenty of great advice.
p.s. good luck in nursing school also. I am a nurse and I love it.Gayle, age 50
Oct 2010 fusion T8-sacrum w/ pelvic fixation
Feb 2012 lumbar revision for broken rods @ L2-3-4
Sept 2015 major lumbar A/P revision for broken rods @ L5-S1
mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
2010 VBS Dr Luhmann Shriners St Louis
2017 curves stable/skeletely mature
also mom of Torrey, 12 y/o son, 16* T, stable
Comment
Comment