Feels as though we're on a bullet train - absolutely hurtling thru time towards Christmas then Jacob's Jan 3rd surgery. Have spent so many hours on this forum getting a crash course in scoliosis & surgery, reading what so many of you have gone through, what has helped, what to avoid - and I can't tell you how much I truly appreciate it all. Esp those of you who've taken the time to write me of your own children's scoli journeys, or those who've had surgery w Dr Cronen. Have had the blinders on, being focused on everything that needs to be done, so fortunately haven't gotten freaked out in quite a while; tho there's a constant prayer in quiet times, esp the middle of the night when I can't shut off my brain.
Jacob himself doesn't seem to want to talk about it much, but he's definitely on board; he knows the positive attitude, doing his exercises throughout the day, etc will help him get the best result. Doesn't ask many questions, but I believe he's ready to be done with the pain that he's had for so long. He's been very huggy, which makes my heart swell. I hope that part doesn't stop; my teenage boy comes to me for a long hug now many times a day.
I think we are as prepared as we can be - but any additional suggestions from y'all are appreciated - most especially your prayers & best wishes for the most positive outcome possible The memory foam topper came in last week, for his bed as well as for the 3hr ride home when released; raisins/applesauce/pb crackers; pear (&other types of) juice (wouldn't believe for a minute he'd drink prune juice...& they give meds to avoid constipation); pediasure; propel; button-down shirts & pull on pants, incl PJs. warm bathrobe even tho it's FL, slippers. Fenergin in IV. No morphine as bad reactions, use dilaudid(sp). I'm prepared to donate my o- blood next wk for his use, as Dr doesn't have his patients "wear themselves down before surgery" by giving their own - so agree! Homebound/hospital school set up to begin apprx 3 wks after. Fuzzy pillow. Surprise Christmas present he'll be able to use to watch movies, internet, etc. Have gotten a little weight on him - yeah! PT going well - building up rhomboids, etc - he's so determined & it helps his pain. Looks like so little, what else?
ps - is there a way to add a photo of his xray if it's not on flicker or photobucket?
Jacob himself doesn't seem to want to talk about it much, but he's definitely on board; he knows the positive attitude, doing his exercises throughout the day, etc will help him get the best result. Doesn't ask many questions, but I believe he's ready to be done with the pain that he's had for so long. He's been very huggy, which makes my heart swell. I hope that part doesn't stop; my teenage boy comes to me for a long hug now many times a day.
I think we are as prepared as we can be - but any additional suggestions from y'all are appreciated - most especially your prayers & best wishes for the most positive outcome possible The memory foam topper came in last week, for his bed as well as for the 3hr ride home when released; raisins/applesauce/pb crackers; pear (&other types of) juice (wouldn't believe for a minute he'd drink prune juice...& they give meds to avoid constipation); pediasure; propel; button-down shirts & pull on pants, incl PJs. warm bathrobe even tho it's FL, slippers. Fenergin in IV. No morphine as bad reactions, use dilaudid(sp). I'm prepared to donate my o- blood next wk for his use, as Dr doesn't have his patients "wear themselves down before surgery" by giving their own - so agree! Homebound/hospital school set up to begin apprx 3 wks after. Fuzzy pillow. Surprise Christmas present he'll be able to use to watch movies, internet, etc. Have gotten a little weight on him - yeah! PT going well - building up rhomboids, etc - he's so determined & it helps his pain. Looks like so little, what else?
ps - is there a way to add a photo of his xray if it's not on flicker or photobucket?
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