Getting Better
Hi all,
Just thought I would update you all on my daughter's progress. She is currently on the wait list for VBS surgery at Shriner's, so she still must ramp up to the 23-hour/day brace wearing requirement. We had some terrible nights, lots of tears just trying to get her to complete an hour or two. I think some of her intolerance was just emotions, fatigue, and some hyper-sensitivity to the tightness sensation, but with Tylenol 45 minutes before she gets it on, we have been able to get her almost 4 hours (with breaks in between). It may not be where we are supposed to be, but it's at least progress. She even wore it to church last night. So as you all so lovingly advised me, things are improving. Thanks again for all your support!
Hi all,
Just thought I would update you all on my daughter's progress. She is currently on the wait list for VBS surgery at Shriner's, so she still must ramp up to the 23-hour/day brace wearing requirement. We had some terrible nights, lots of tears just trying to get her to complete an hour or two. I think some of her intolerance was just emotions, fatigue, and some hyper-sensitivity to the tightness sensation, but with Tylenol 45 minutes before she gets it on, we have been able to get her almost 4 hours (with breaks in between). It may not be where we are supposed to be, but it's at least progress. She even wore it to church last night. So as you all so lovingly advised me, things are improving. Thanks again for all your support!
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