Originally posted by leahdragonfly
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The thing here that I find difficult to believe with any accuracy is the distinction between JIS and AIS. The ONLY difference that I can see is the age of diagnosis, not age of onset as is implied by age of diagnosis. I developed morning back pain at eight years old, substantial pain at 12 and wasn't diagnosed until 16. I'm classified as AIS. How many AIS people are really JIS people that went undiagnosed? No one can answer that. So to me it's like the orthodontic intervention. My daughter's orthodontist said we could treat her at 7 and she gets to keep all of her teeth or wait until she's a teen and have to pull teeth to make the correction. Obviously younger is better.
The only way we can get better treatments for our kids is to have better screening techniques. Then and only then could we identify the true AIS cases from the JIS. If they lowered the screening age to like 6 years old instead of 10, that would be helpful (I'm grabbing numbers, as I don't know if kids are even required to be screened at their yearly exams). I fell through the cracks, even as a very young person being screened at school. I would be called back two or three times for rechecks. HELLO? I think the pediatricians and GP's that take care of kids should take this condition more seriously than they do. It seems to get brushed off way too often.
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