Please help me find other people who are around my age (24), But WITH SEVERE Scoliosis I NEED TO KNOW if there is anyone out there whom I can relate to my curve was last @ 100+ 1 year ago. I can't go on like this because I am unable to manage my pain. If you look at my other post. I am in the Pain Clinic, I am taking my meds, etc. My Meds used to work pretty well, but THIS Winter has been SOOO bad. I have fell on the ICE a few times. I live on my own I am still able to walk upright (with Crutches). I used to be able to not have to use my crutches inside my apt. But Lately anything I can do I try when I am at home, to relieve the pain. Last July I was hit almost head-On by a Drunk Driver. (all that I got was a broken Nose) But!! My back has not been the same since. The EMT said because I had extra pillows around me when I drive, that is what saved me from snapping my back in the wreck. I have tried the usual list of things that other people talk about from the Pain Clinic. I am unable to get up in the morning, I feel like puking when the pain gets really bad. I am not going to let myself get to the point where I have to use a wheelchair. I used one when I was in High school when I had my left leg removed below the knee. When I got better, to were I did not use a chair again. I told myself I don't want to get that bad again. My Muscles went down very fast and it was 100 times harder to do things when I became upright again. I know that if I looses my muscles I am going to be dealing with a LOT MORE PAIN!. I wont be able to get that far. My pain level even with my pain meds (methadone, oxycodone, Diazepam) and heat belt in a normal day is a 7 out of 10. When My back is at its worst 8 to 9.5 At one point after I first visited the Pain Clinic last year I remember my pain really was easy to deal with. Like at a 4 maybe 5 on a bad day!! I don't know why (I guess I had a tolerance built-up) but that low pain number did not last long. Even when they increased my pain meds, my PAIN SEEMED TO INCREASE TOO? Because I can't get back to that point. I had cancer when I was younger and I remember them giving me medication that was put in by a timer and the machine sat on the bed next to me and it was VERY loud and it shook the bed when it would turn on every once in a while or when I pressed the button. I was like 6 or 7 years old at the time. I know beyond a shadow of a doubt, My pain level NOW is no where ever even close to what I remember it being when I was younger. I just don't want to hurt like this anymore. I would Like to know what Specific (Please list, or whatever) I am going to take the notes to my DOC. next apt, and start asking about anything you all can come-up with that you have had positive results. I am on a cancellation list hopefully with any luck they will call me Today (Monday) and tell me to come in and they will fit me in. Other wise my scheduled isn’t until the end of April.
Please remember, and I say this with ALL Respect to your situation but if you do not have SEVERE Scoliosis at least around 100 degrees, please let other people who have had the same condition. P.S. already tried injections of all sorts in my back already. If you can relate and there is nothing that you have found to help.. then let me know that too. Because I am sick in tired of listing to some doctors that Think that if they are not completely honest about how bad my (entire situation, not just Scoliosis) is So when I look for support I can't find people to relate to because they think if they don’t tell me how bad I am maybe I wont realize it on my own. My Point?? I have to go back to the Heart Clinic on wedsday, to do more studies (I was there 3 weeks ago) But I guess My heart is sitting sideways in my chest and is not showing much or very little difference between the time I am stressed, as sitting still. I did not know My heart was this way. My lungs are compressed THIS I can FEEL. So I have a TON of problems (there are other things too, but this is all that I am willing to share at this point), all I am looking for is to get back to a point where dealing with it is not AS BAD AS ... just deciding NOT to deal with this crap anymore!... I am not saying I wish to do this but, this is NOT living this is only sustaining for the moment.
Thank You, (sorry for such a long post, but I am in desperate need of advice)
ALSO even if there is a Hospital somewhere in the USA or Canada Mexico (I'll find a way to get there HELL OR HIGH WATER!! if the doctors know more than Stuart L Weinstein MD (who is my Orthopedic Surgeon) and Venkateswara Karuparthy, MD (who is my Pain Clinic Doctor) or are at least willing to go out a limb and try something unique.
Thanks again,
Kevin Oelrich
Please remember, and I say this with ALL Respect to your situation but if you do not have SEVERE Scoliosis at least around 100 degrees, please let other people who have had the same condition. P.S. already tried injections of all sorts in my back already. If you can relate and there is nothing that you have found to help.. then let me know that too. Because I am sick in tired of listing to some doctors that Think that if they are not completely honest about how bad my (entire situation, not just Scoliosis) is So when I look for support I can't find people to relate to because they think if they don’t tell me how bad I am maybe I wont realize it on my own. My Point?? I have to go back to the Heart Clinic on wedsday, to do more studies (I was there 3 weeks ago) But I guess My heart is sitting sideways in my chest and is not showing much or very little difference between the time I am stressed, as sitting still. I did not know My heart was this way. My lungs are compressed THIS I can FEEL. So I have a TON of problems (there are other things too, but this is all that I am willing to share at this point), all I am looking for is to get back to a point where dealing with it is not AS BAD AS ... just deciding NOT to deal with this crap anymore!... I am not saying I wish to do this but, this is NOT living this is only sustaining for the moment.
Thank You, (sorry for such a long post, but I am in desperate need of advice)
ALSO even if there is a Hospital somewhere in the USA or Canada Mexico (I'll find a way to get there HELL OR HIGH WATER!! if the doctors know more than Stuart L Weinstein MD (who is my Orthopedic Surgeon) and Venkateswara Karuparthy, MD (who is my Pain Clinic Doctor) or are at least willing to go out a limb and try something unique.
Thanks again,
Kevin Oelrich
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