Hi Linda, it does seem if there is a treatment order. Such as steroids, PT,etc. However, I think that works for awhile but the spines we have sure suffer a lot. I have t2-pelvis and C-4-7 fusion. The cervical fusion did help with the issues you are having. I am able to turn my neck but not put it to the shoulder. My same surgeon did all of the surgeries.
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Terrible neck , shoulder and upper thoracic pain!
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T10-pelvis fusion 12/08
C5,6,7 fusion 9/10
T2--T10 fusion 2/11
C 4-5 fusion 11/14
Right scapulectomy 6/15
Right pectoralis major muscle transfer to scapula
To replace the action of Serratus Anterior muscle 3/16
Broken neck 9/28/2018
Emergency surgery posterior fusion C4- T3
Repeated 11/2018 because rods pulled apart added T2 fusion
Removal of partial right thoracic hardware 1/2020
Removal and replacement of C4-T10 hardware with C7 and T 1
Osteotomy
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Linda,
I keep thinking about you and the pains you are having. Have you thought more about seeing a cervical surgeon? Did Dr. Lenke feel that fusing more vertebrae above your fusion would be the best option?Karen
Surgery-Jan. 5, 2011-Dr. Lenke
Fusion T-4-sacrum-2 cages/5 osteotomies
70 degree thoracolumbar corrected to 25
Rib Hump-GONE!
Age-60 at the time of surgery
Now 66
Avid Golfer & Tap Dancer
Retired Kdgn. Teacher
See photobucket link for:
Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
Before and After Picture of back 1/7/11
tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
http://s1119.photobucket.com/albums/k630/pottoff2/
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Originally posted by golfnut View PostLinda,
I keep thinking about you and the pains you are having. Have you thought more about seeing a cervical surgeon? Did Dr. Lenke feel that fusing more vertebrae above your fusion would be the best option?Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
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Linda,
I saw Dr. Lenke in April and everything looked fine. I am in a study at Washington U. and will see Dr. Kelly or Dr. Bridwell in Jan. in St. Louis for my 5 year check up. My left hip is starting to "pop" with every step, so I may call Dr. Lenke for a recommendation for a hip surgeon. It doesn't hurt, but I'm thinking down the road. Naturally, it didn't bother me when I saw Dr. Lenke in April. If I would need something major, I think I'd go to New York to see Dr. Lenke.
Are you wearing a neck collar? It might relieve some of the pain. I sure hope that physical therapy will work for you, but don't be too reluctant to see a cervical surgeon. I know you have been through so much, but it might make a world of difference to your quality of life if that is your only option after you've tried less invasive methods. Please continue to post with your progress. I am hoping and praying for you!Karen
Surgery-Jan. 5, 2011-Dr. Lenke
Fusion T-4-sacrum-2 cages/5 osteotomies
70 degree thoracolumbar corrected to 25
Rib Hump-GONE!
Age-60 at the time of surgery
Now 66
Avid Golfer & Tap Dancer
Retired Kdgn. Teacher
See photobucket link for:
Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
Before and After Picture of back 1/7/11
tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
http://s1119.photobucket.com/albums/k630/pottoff2/
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Appt. with Dr. Gupta Nov. 18th at Washington Univ.
I'm back and having an awful time. I have posted about my awful neck~ shoulder~and arm pain. I also started having terrible pain in my lower back. But all that aside about a month ago I went to an orthopedic foot surgeon cause I need bunion surgery. But my feet are numb and burn all the time. So he said he would not do it till I had an MRI of the neck and lower back and send it to Dr. Gupta. I did and Dr. Gupta's nurse called me back to say that Dr. Gupta is seeing some serious stenosis in my neck. So she set me up to see him on 11/18/15 I also have been having terrible pain in my lower back and he will address that too.
I have taken a couple of falls in the past six months, so don't know if that has made things worse or not. My feet are so bad that my left foot turns in , causing me to be off balance . This is causing some issues with falling. I just can't get out of this medical Merry go round. Has anyone had issues with numb, burning feet two years out? It goes up my legs into the ankle and a little above into the calf of my legs.
Well, wishing all of you the best~~~ and those still having issues ~~ praying for better days for all of us! LindaLast edited by babyboomer16; 10-20-2015, 10:20 AM.Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
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Linda,
I am sorry to hear you are having so much pain. I will send prayers your way. Let us know what Dr. Gupta says.Karen
Surgery-Jan. 5, 2011-Dr. Lenke
Fusion T-4-sacrum-2 cages/5 osteotomies
70 degree thoracolumbar corrected to 25
Rib Hump-GONE!
Age-60 at the time of surgery
Now 66
Avid Golfer & Tap Dancer
Retired Kdgn. Teacher
See photobucket link for:
Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
Before and After Picture of back 1/7/11
tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
http://s1119.photobucket.com/albums/k630/pottoff2/
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Originally posted by golfnut View PostLinda,
I am sorry to hear you are having so much pain. I will send prayers your way. Let us know what Dr. Gupta says.
Thanks for your prayers.!! I think I wouldn't have so many issues if I would have found Dr. Lenke first.
Instead I had three unsuccessful spine surgeries in So. Dak. The surgeons in So. Dak. didn't know enough about saggital imbalance. Hind sight is 20/20~ but it comlicated things more for Dr. Lenke.
Hope you are getting along good!! It is starting to get chilly here already!!! I suppose it is there too!! Hope you are still golfing up a storm!!!!! Warm thoughts of you, LindaLinda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
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Linda, You and I drew the short straw of backs. I also have burning in my leg and foot which is probably nerve pain. My anterior leg pain follows the dermatome of L4 and 5.
There will be better times for us in the future. Sorry about your falls. Can you figure out why you fall? I fell 2 days ago, but it was from a wet rubber bottom on a crutch that slipped on the floor. I came in from outside and need to remember to wipe the bottoms of my crutches off now that summer is over and it has started to rain agsin here.
SusanAdult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rod
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Originally posted by susancook View PostLinda, You and I drew the short straw of backs. I also have burning in my leg and foot which is probably nerve pain. My anterior leg pain follows the dermatome of L4 and 5.
There will be better times for us in the future. Sorry about your falls. Can you figure out why you fall? I fell 2 days ago, but it was from a wet rubber bottom on a crutch that slipped on the floor. I came in from outside and need to remember to wipe the bottoms of my crutches off now that summer is over and it has started to rain agsin here.
Susan
I sure hope you're right about times will be better for us later. But I can walk~~although I am off balanced a lot of the time. Yikes! But you my dear, have to get to to point you can throw away the crutches,so you can live out your passion!!! Keep on keepin on! Keep us up to date on what's going on. Thanks for giving me a boost ~~ I know if you are looking forward to better things~~ I better quit feeling sorry for me,. You are so inspiring and brave Susan, in spite of the crap that you have had to deal with. Thanks for being a good sport and example to all of us. Sending you a very gentle HUG,!! LindaLinda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
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Originally posted by babyboomer16 View PostSusan, you ask what was causing me to fall~~ my feet are crippled from super bunions! My left foot's big toe is flipped over te top of the toe next to it. Both feet are bad , but left more than right. I walk on te inside of my foot. But the numbness doesn't help either. The numbness burns constantlly. Wondering if it's fron the stenosis in my lower back or neck. We'll see the 18th of Nov. I think it's that (and not my toes) causing it, because of what I'v read about it.
I sure hope you're right about times will be better for us later. But I can walk~~although I am off balanced a lot of the time. Yikes! But you my dear, have to get to to point you can throw away the crutches,so you can live out your passion!!! Keep on keepin on! Keep us up to date on what's going on. Thanks for giving me a boost ~~ I know if you are looking forward to better things~~ I better quit feeling sorry for me,. You are so inspiring and brave Susan, in spite of the crap that you have had to deal with. Thanks for being a good sport and example to all of us. Sending you a very gentle HUG,!! Linda
SusanAdult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rod
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Originally posted by susancook View PostI wish that I could throw away the crutches. I do not have the strength in my legs. It would not be pretty without crutches.
SusanLast edited by babyboomer16; 11-01-2015, 01:56 PM.Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
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Originally posted by dixiesmommie View PostWe were just talking about neck and thoracic pain on the Facebook group today. Hope to see you there and share our experiences.Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
Comment
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Baby boomer, I don't post on this forum anymore but read your post as you wanted to get in on the FB page. I know exactly what you are speaking of. My mom and sister both have that bump between their shoulder blades I am having lots of pain in the same area. I just started a post about it. I recently fell and it feels like all the impact went right to that area. I can hardly look up anymore. Shoulders are so sore too.
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Hi, I am back from my appt. with Dr. Gupta at the Washington University. I am going to try to explained what he told me about my neck first and then my lower back. He showed me a picture of my neck from the MRI that I sent him. It showed the disc in my neck squeezing my spinal cord together really bad. But I can't tell you the exact discs that are pressing on it yet.Then he surprised me by showing me that on my right lower side, where Dr. Lenke had put double rods,they are both broke into. I guess I kind of knew something was wrong with the lower back, but I was in denial!! I have felt like things were loose when I walk. Anyway, he wants a mylogram for to see my bones better. He said he could see the neck better to get a better picture as to how to proceed with surgery on the neck. Also the mylogram can show if I am fused in my lower back. That can tell him if that may be a reason for the broken rods( if I'n not fused). I hope I am fused. I walk kind of off balance and have been for a while. My feet are numb a lot. He thinks that's from my lower back. The pain is not good. Anyway, they woul have done the mylogram the same day, but I had taken an asprin and so because it is a blood thinner they couldn't do it. It takes three days to get out of your system. Anyway, I go back Jan. 5th for the mylogram and some more pre op stuff, and then he will do surgery on my neck six weeks later. It is more important than the broken rods. He put it this way'" the broken rods won't kill you, but the neck could. Well, sorry this is so long, but this is all of it in a hand bag!!!
I am so stressed about more surgery~~ but I guess I have to do what I have to do! Darn!!! I just want this nightmare to go away!! But like Susan says" It is what it is" !! I am going to bed now!! Long trip!! Thirteen hours!! Goodnight to all~~ LindaLinda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
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