Originally posted by Sami
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My best guess is that there is something else going on. Just because a person has had spinal fusion doesn't then make every single health issue the person encounters related to the surgery. In your case, I believe you said you had problems at least 2 years before your surgery. Now maybe a surgeon should know that whatever that is, it would likely worsens with spinal fusion given you were already too stiff, I don't know. On the other hand, did you really have a choice about spinal fusion? As an adult, maybe you did. If you make it to adulthood functioning then you probably weren't surgical as a child. Most kids in surgical range, on the other hand, do not seem to have a choice... surgery is clearly better than no surgery. It is no close call.
For people like you, once you rule out the fusion as being the cause, it becomes a long, frustrating road to find the right specialist. That show, Mystery Diagnosis is real... it is sometimes very hard to make a diagnosis and people go years before they find the right specialist.
Have you contacted the Mayo Clinic? They take unusual cases as far as I know. The husband of one of my riding instructors was accepted there for unusual migraine headaches for example.
I wish you every luck. Life is so unfair.
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