Originally posted by rohrer01
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Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
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Linda,
I haven't had scoli surgery or any kind of back surgery, for that matter. I have been on and off some very powerful meds for the last 14 years because my scoli is a very unique and PAINFUL kind of scoli to have. Unfortunately for me, the scoli docs seem to only look at numbers (as in Cobb angles) instead of the whole person and how this affects my life. I agree with you about the pain meds. Currently I'm 'only' on percocet and klonopin and baclofen for pain and muscle spasms. Oh, I have Ultram, too, but that is pretty much useless on severe pain. If you want to read MY pain chronicles, I believe it's under the subheading "I have some imaging CD's" in the nonsurgical section. I chronicled my way off of fentanyl, percocet, klonopin and maybe soma at the time. I can't remember. Anyway, pain is my life. I'm up right now because I'm in too much pain to sleep. I have to get to the doc ASAP tomorrow to see if there is anything they can do. I had it under control, I thought, and then I fell on Thursday. I fall way more than a 43 year old should fall. I actaully got knocked off balance by my grandson and went splat, right in the hospital lobby. Of course, I jumped up right away and acted like nothing happened. It took a couple of days for the severe muscle spasms to set in and it just keeps getting worse! Sorry to drone on. I'm sure you are in MUCH worse shape than me. I still don't know why they are afraid of taking that screw out. I read your explanation and just don't buy your docs answer. If it's infection he's afraid of, then he'd better get that thing out! It would probably make you feel at least a little better, too, while you wait. I certainly hope you can get in to see someone soon. Have you called Lenke's office, yet? Oh, I don't know if Perra has the same nurse or not, but the one he had when I saw him was very, very MEAN to me. Why do they have to be that way? Aren't we suffering enough? It makes me wonder why some of these guys go into this field.... I'm just rambling.
Take Care,
Rohrer01Be happy!
We don't know what tomorrow brings,
but we are alive today!
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Nurse
Originally posted by rohrer01 View PostLinda,
I haven't had scoli surgery or any kind of back surgery, for that matter. I have been on and off some very powerful meds for the last 14 years because my scoli is a very unique and PAINFUL kind of scoli to have. Unfortunately for me, the scoli docs seem to only look at numbers (as in Cobb angles) instead of the whole person and how this affects my life. I agree with you about the pain meds. Currently I'm 'only' on percocet and klonopin and baclofen for pain and muscle spasms. Oh, I have Ultram, too, but that is pretty much useless on severe pain. If you want to read MY pain chronicles, I believe it's under the subheading "I have some imaging CD's" in the nonsurgical section. I chronicled my way off of fentanyl, percocet, klonopin and maybe soma at the time. I can't remember. Anyway, pain is my life. I'm up right now because I'm in too much pain to sleep. I have to get to the doc ASAP tomorrow to see if there is anything they can do. I had it under control, I thought, and then I fell on Thursday. I fall way more than a 43 year old should fall. I actaully got knocked off balance by my grandson and went splat, right in the hospital lobby. Of course, I jumped up right away and acted like nothing happened. It took a couple of days for the severe muscle spasms to set in and it just keeps getting worse! Sorry to drone on. I'm sure you are in MUCH worse shape than me. I still don't know why they are afraid of taking that screw out. I read your explanation and just don't buy your docs answer. If it's infection he's afraid of, then he'd better get that thing out! It would probably make you feel at least a little better, too, while you wait. I certainly hope you can get in to see someone soon. Have you called Lenke's office, yet? Oh, I don't know if Perra has the same nurse or not, but the one he had when I saw him was very, very MEAN to me. Why do they have to be that way? Aren't we suffering enough? It makes me wonder why some of these guys go into this field.... I'm just rambling.
Take Care,
Rohrer01
I feel so bad about your pain. I know how it grinds on a person day afrer day.
God Bless~~~LindaLinda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
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Linda,
I am so sorry to hear of your troubles, and that is inexcusable to be treated by the nurse like that.
Please, call Lenke. Your husband will be ok there. St Louis is a really nice city, and Barnes is outside the downtown urban core. It is not difficult to get around, and the traffic is not heavy or scary. And you MUST get that screw removed before it erodes through your skin, because if it does you will wide open for a major hardware infection.
Best wishes,Gayle, age 50
Oct 2010 fusion T8-sacrum w/ pelvic fixation
Feb 2012 lumbar revision for broken rods @ L2-3-4
Sept 2015 major lumbar A/P revision for broken rods @ L5-S1
mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
2010 VBS Dr Luhmann Shriners St Louis
2017 curves stable/skeletely mature
also mom of Torrey, 12 y/o son, 16* T, stable
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my 2 cents
Originally posted by leahdragonfly View PostLinda,
I am so sorry to hear of your troubles, and that is inexcusable to be treated by the nurse like that.
Please, call Lenke. Your husband will be ok there. St Louis is a really nice city, and Barnes is outside the downtown urban core. It is not difficult to get around, and the traffic is not heavy or scary. And you MUST get that screw removed before it erodes through your skin, because if it does you will wide open for a major hardware infection.
Best wishes,
Why are you waiting for Dr Perra to decide what happens with the rest of your life?May 2008 Fusion T4 - S1, Pre-op Curves T45, L70 (age 48). Unsuccessful surgery.
March 18, 2010 (age 50). Revision with L3 Osteotomy, Replacement of hardware T11 - S1 , addition of bilateral pelvic fixation. Correction of sagittal imbalance and kyphosis.
January 24, 2012 (age 52) Revision to repair pseudoarthrosis and 2 broken rods at L3/L4.
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hi Linda
just wanted to second what Kristy just wrote...
it is YOUR life...no one will suffer...bottom line...but you...with whatever decisions are made...
so why not take charge and make the decisions yourself...choose your surgeon and how you
are treated...
i would not hesitate to call another surgeon...
you should not have to put up with staff that treats you that way...
i know sometimes patients take a lot to get to see a certain doctor...
but enough is enough!!
and it seems time is not on your side with what is needed for the screw problem...
jess
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You are sooo right~~~
Originally posted by naptown78 View PostWhy are you waiting for Dr Perra to decide what happens with the rest of your life?Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
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All the very best Linda. I hope you can get this distressing situation resolved asap.Surgery March 3, 2009 at almost 58, now 63.
Dr. Askin, Brisbane, Australia
T4-Pelvis, Posterior only
Osteotomies and Laminectomies
Was 68 degrees, now 22 and pain free
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If the skin around your screw is seeping, isn't that a medical emergency? I'm not trying to scare you, but your skin is your barrier to infection. Once that is breeched, all kinds of microbes can get in there. I hope your local surgeon gets that screw out ASAP. I would definitely recommend calling his office first thing tomorrow, as soon as they open, or even showing up there at the office. Maybe I'm too paranoid, but I'd hate to see you get an infection because of this, AND I'd hold Perra accountable if you do. It sounds like he has the same NASTY nurse that he had when I saw him. Why does she even keep her job? I can see a brilliant surgeon being very dry and lacking bedside manner, as many brilliant people lack social skills, but nurses are a dime a dozen. Sorry, not trying to pick on any nurses out there, but y'all know what I'm saying. Best wishes to you to get something done ASAP. I sure hope Lenke takes you on! It sounds like your case is right up his alley!
Rohrer01Be happy!
We don't know what tomorrow brings,
but we are alive today!
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Thanks~~~
Originally posted by rohrer01 View PostIf the skin around your screw is seeping, isn't that a medical emergency? I'm not trying to scare you, but your skin is your barrier to infection. Once that is breeched, all kinds of microbes can get in there. I hope your local surgeon gets that screw out ASAP. I would definitely recommend calling his office first thing tomorrow, as soon as they open, or even showing up there at the office. Maybe I'm too paranoid, but I'd hate to see you get an infection because of this, AND I'd hold Perra accountable if you do. It sounds like he has the same NASTY nurse that he had when I saw him. Why does she even keep her job? I can see a brilliant surgeon being very dry and lacking bedside manner, as many brilliant people lack social skills, but nurses are a dime a dozen. Sorry, not trying to pick on any nurses out there, but y'all know what I'm saying. Best wishes to you to get something done ASAP. I sure hope Lenke takes you on! It sounds like your case is right up his alley!
Rohrer01Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
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Originally posted by babyboomer16 View PostAnyway, I hope Lenke will see me. I am waiting to hear from my local surgeon right now. I will keep you posted. Thanks so much for your reply!! boomer(Linda)
Warmly,
Doreen44 years old at time of surgery, Atlanta GA
Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
Post-Surgery curves ~10 degrees, regained 4 inches of height
Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!
http://thebionicachronicles.blogspot.com/
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Linda,
I just cant believe the bad luck you have had with all of this.....I’m so sorry. It sure looks like this is one of those times where one needs to move on.....I hope that the urgency of the situation is relayed to Dr Lenke. I think he will respond accordingly......
Hang in there, soon you will be fixed.
Ed49 yr old male, now 63, the new 64...
Pre surgery curves T70,L70
ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
Dr Brett Menmuir St Marys Hospital Reno,Nevada
Bending and twisting pics after full fusion
http://www.scoliosis.org/forum/showt...on.&highlight=
My x-rays
http://www.scoliosis.org/forum/attac...2&d=1228779214
http://www.scoliosis.org/forum/attac...3&d=1228779258
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Dr. Lenke is Seeing New Patients within Weeks of Calling for Appointment!!!!
Originally posted by babyboomer16 View PostAnyway, I hope Lenke will see me. I am waiting to hear from my local surgeon right now. I will keep you posted. Thanks so much for your reply!! boomer(Linda)
I just heard from a fellow scoli sister who called Dr. Lenke's office on Friday and was scheduled to see him mid-April. Please, please do not delay in calling Dr. Lenke!!!!
Warmly,
Doreen44 years old at time of surgery, Atlanta GA
Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
Post-Surgery curves ~10 degrees, regained 4 inches of height
Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!
http://thebionicachronicles.blogspot.com/
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I can only repeat what others have said. Please call Dr. Lenke's office to follow up on the letter your Dr. sent. Maybe he would have an immediate recommendation about the screw removal before dealing with the other issues. He's a kind and extremely talented surgeon. I hope you can see him soon. My thoughts and prayers are with you!Karen
Surgery-Jan. 5, 2011-Dr. Lenke
Fusion T-4-sacrum-2 cages/5 osteotomies
70 degree thoracolumbar corrected to 25
Rib Hump-GONE!
Age-60 at the time of surgery
Now 66
Avid Golfer & Tap Dancer
Retired Kdgn. Teacher
See photobucket link for:
Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
Before and After Picture of back 1/7/11
tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
http://s1119.photobucket.com/albums/k630/pottoff2/
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