Amazing to hear from you so soon glad all is well.
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T10-pelvis fusion 12/08
C5,6,7 fusion 9/10
T2--T10 fusion 2/11
C 4-5 fusion 11/14
Right scapulectomy 6/15
Right pectoralis major muscle transfer to scapula
To replace the action of Serratus Anterior muscle 3/16
Broken neck 9/28/2018
Emergency surgery posterior fusion C4- T3
Repeated 11/2018 because rods pulled apart added T2 fusion
Removal of partial right thoracic hardware 1/2020
Removal and replacement of C4-T10 hardware with C7 and T 1
Osteotomy
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Best of luck for a speedy recovery!Karen
Surgery-Jan. 5, 2011-Dr. Lenke
Fusion T-4-sacrum-2 cages/5 osteotomies
70 degree thoracolumbar corrected to 25
Rib Hump-GONE!
Age-60 at the time of surgery
Now 66
Avid Golfer & Tap Dancer
Retired Kdgn. Teacher
See photobucket link for:
Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
Before and After Picture of back 1/7/11
tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
http://s1119.photobucket.com/albums/k630/pottoff2/
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Post-op day 12, light at the end of the tunnel
Hi all,
It's been a tough week after going home from the hospital too early and ending up in the ER Wednesday evening for uncontrolled nausea/vomitting and dehydration. The ER staff was wonderful and got me tanked up with a liter of IV fluid and some Phenergan, which has been very helpful in resolving the nausea. I think the worst days are past now, and there is light at the end of the tunnel. I am at the point now where I am starting to feel just a little better each day.
I am able to eat lightly now and drink plenty of fluids. I've gotten into trouble with pain several times (including this afternoon) by sleeping past time for my pain meds, so I'm still looking for the ideal med schedule. I am not a fan of how pain meds make me feel and tend to skimp on them, so I guess I still haven't learned my lesson on that. I'm currently taking oxycodone 10 mg 3x/day, flexeril 5 mg 2x/day (morning and night), tylenol 1000 mg 3x/day, Senokot-S laxative, and occasional Miralax. Fortunately my bowels are regulated now and I avoided any major constipation.
I take several brief walks outside in the garden each day, always accompanied by my little dumpling, LuLu (the pug), and the cats. I really loved the beautiful Fall weather this weekend and it made it pleasant to take the airs. My goal this week is to walk about 5-10 minutes, three times per day. I am still pretty exhausted and sleep a lot, with a morning and afternoon nap.
We head back up to Portland in a week, October 12th, to have the stitches removed. I have one 5" vertical incision on the front, and then 3 (!) incisions on my back. There is the large back midline incision as well as two, smaller diagonal incisions that are about 3-4" each, arranged like an arrow. Dr Hart said there was so much scar tissue that he had trouble getting down to everything he needed.
I'm not quite up to having visitors yet, but I am always happy to get messages or texts. I miss you all and can't wait to be feeling better.Gayle, age 50
Oct 2010 fusion T8-sacrum w/ pelvic fixation
Feb 2012 lumbar revision for broken rods @ L2-3-4
Sept 2015 major lumbar A/P revision for broken rods @ L5-S1
mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
2010 VBS Dr Luhmann Shriners St Louis
2017 curves stable/skeletely mature
also mom of Torrey, 12 y/o son, 16* T, stable
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Gayle,
It's good to hear from you. It sounds like you had a rough time, but the worst is behind you now. I hope you can continue to enjoy your daily walks with beautiful fall weather.Karen
Surgery-Jan. 5, 2011-Dr. Lenke
Fusion T-4-sacrum-2 cages/5 osteotomies
70 degree thoracolumbar corrected to 25
Rib Hump-GONE!
Age-60 at the time of surgery
Now 66
Avid Golfer & Tap Dancer
Retired Kdgn. Teacher
See photobucket link for:
Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
Before and After Picture of back 1/7/11
tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
http://s1119.photobucket.com/albums/k630/pottoff2/
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Gayle
Glad to hear that you have past a few of the hurdles of scoliosis surgery recovery. The persistent vomiting can be so painful, and so draining....
Its good to hear that you are on track to normality....
On a side note, I have never known anyone with Pug’s, so upon reading about this breed, I noticed some similarities in that the curved tail is actually a hemi. (Scroll down to serious issues)
https://en.wikipedia.org/wiki/Pug
I have attached a Pug scoliosis x-ray you might find interesting....so when you walk with Lulu, you be sure to ask her how she is doing, Ok? (smiley face)
Hang in there
EdAttached Files49 yr old male, now 63, the new 64...
Pre surgery curves T70,L70
ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
Dr Brett Menmuir St Marys Hospital Reno,Nevada
Bending and twisting pics after full fusion
http://www.scoliosis.org/forum/showt...on.&highlight=
My x-rays
http://www.scoliosis.org/forum/attac...2&d=1228779214
http://www.scoliosis.org/forum/attac...3&d=1228779258
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Gayle,
Great to see you posting that that you are on the mend.
Best regards,
SharonSharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
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Originally posted by leahdragonfly View PostHi all,
I have one 5" vertical incision on the front, and then 3 (!) incisions on my back. There is the large back midline incision as well as two, smaller diagonal incisions that are about 3-4" each, arranged like an arrow. Dr Hart said there was so much scar tissue that he had trouble getting down to everything he needed.
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Continue to take good care of yourself. I am impressed with your walking. Fresh air always helps. Have you tried sitting outside or better yet, laying down outside on a lounger???
Sending healing messages south, SusanAdult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rod
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Originally posted by susancook View PostGayle: Sounds like you lost a knife fight!71 and plugging along... but having some problems
2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago
Corrected to 15°
CMT (type 2) DX in 2014, progressing
10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring
Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me
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Bouts of anxiety/depression
Hi all, I am about 4 weeks now.
I have a friend coming over this morning to see me. Have others had a struggle after surgery with the blues? Any suggestions? Please help with any suggestions. I feel so isolated.Last edited by leahdragonfly; 03-13-2017, 07:53 PM.Gayle, age 50
Oct 2010 fusion T8-sacrum w/ pelvic fixation
Feb 2012 lumbar revision for broken rods @ L2-3-4
Sept 2015 major lumbar A/P revision for broken rods @ L5-S1
mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
2010 VBS Dr Luhmann Shriners St Louis
2017 curves stable/skeletely mature
also mom of Torrey, 12 y/o son, 16* T, stable
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Gayle,
I feel so sorry for you. I do remember feeling the way that you described after one or more of my surgeries. If it was not a Sunday, I would suggest that you call your Doctor, who ever is dealing with the pain meds , and talk to them. If you can hold on, then I would wait until the first thing tomorrow AM and call.
MelissaMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgery
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Originally posted by leahdragonfly View PostHi all, I am about 4 weeks out now and have really been struggling with anxiety and depression these last few weeks. It seems like it was brought on or made worse by suddenly cutting my oxycodone dose from 10 mg three times per day to 5 mg three times per day. This seemed to trigger a severe 10+day episode of continuous nausea, poor appetite, extreme exhaustion and fatigue, anxiety, sweats alternating with extreme coldness, poor sleep, and I'm prone to tearfulness with crying several times per day. Now I'm stable on my dose by these troubling symptoms are still cropping up, and I wonder if it's a touch of depression.
I have a friend coming over this morning to see me. Have others had this type of struggle after surgery? Any suggestions? Do I need to run out and find a therapist or ????? Please help with any suggestions. I feel so isolated.
I had a very similar experience after my last spine surgery. When I cut down from 2 doses of oxycontin to 1, I had all the same symptoms for a month. As they finally cleared, I stopped taking the drug altogether, and started another month of the same symptoms. The depression was, at times, pretty overwhelming. I started taking a small dose of a mild anti-depressant, and that did help.
Hang in there. It will get better.
--LindaNever argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
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Surgery 2/10/93 A/P fusion T4-L3
Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
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Gayle, maybe cut down on the oxycodone slower. Instead of going from 10 TID to 5 TID, maybe something like 10 once/day and 7.5 the other 2 doses, then lowering the 10 to 7.5. Wait a while and lower similarly to a 7.5/5/7.5, etc.
I think that we underappreciate the effect that opiods have on our body.
Meanwhile, be kind to yourself and consider a mild anti-depressant at low dose. Maybe call TanNia and talk with her about a perscription for a mild anti-depressant low dose.
Hugs, SusanAdult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rod
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Yes, it happened to me. Along with other symptoms. It was when I was cutting back on my Oxy. I became very tearful and I had bouts of dizziness and nausea as well. I remember ringing my surgeon and as he was unavailable, I cried on the phone to his nurse. She told me that her own mother was recovering from surgery and had had the same symptoms when cutting out her Oxy. Strangely, it made me feel better, just knowing it was normal. It didn't last very long. Hang in there.
Having said that though, if it doesn't improve, definitely see your GP.Surgery March 3, 2009 at almost 58, now 63.
Dr. Askin, Brisbane, Australia
T4-Pelvis, Posterior only
Osteotomies and Laminectomies
Was 68 degrees, now 22 and pain free
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