Yes, you are fortunate to have found a great doctor to deal with such tough problems. It is encouraging to start to get some answers and a plan rather than just being in a painful limbo. I hope things are turning around for you! Janet
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September 9th surgery
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Janet
61 years old--57 for surgery
Diagnosed in 1965 at age of 13--no brace
Thoracic Curve: 96 degrees to 35 degrees
Lumbar Curve: 63 degrees to 5 degrees
Surgery with Dr. Lenke in St. Louis--March 30, 2009
T-2 to Pelvis, and hopefully all posterior procedure.
All was posterior along with 2 cages and 6 osteotomies.
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Originally posted by Doodles View PostYes, you are fortunate to have found a great doctor to deal with such tough problems. It is encouraging to start to get some answers and a plan rather than just being in a painful limbo. I hope things are turning around for you! JanetMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgery
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Melissa,
What does Dr. B say about your spinal fusion? Can he tell if you're fused? You're still less than a year post-op from a major revision surgery. I continue to hold out hope that time will help reduce some of your pain!!!!
Best,
Evelynage 48
80* thoracolumbar; 40* thoracic
Reduced to ~16* thoracolumbar; ~0* thoracic
Surgery 3/14/12 with Dr. Lenke in St. Louis, T4 to S1 with pelvic fixation
Broken rods 12/1/19; scheduled for revision fusion L1-L3-4 with Dr. Lenke 2/4/2020
Not "confused" anymore, but don't know how to change my username.
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Originally posted by Confusedmom View PostMelissa,
What does Dr. B say about your spinal fusion? Can he tell if you're fused? You're still less than a year post-op from a major revision surgery. I continue to hold out hope that time will help reduce some of your pain!!!!
Best,
Evelyn
Thanks for the good wishesMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgery
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"Life is not bad right now. "
That's so good to read. I hope life keeps moving in the right direction for you.Surgery March 3, 2009 at almost 58, now 63.
Dr. Askin, Brisbane, Australia
T4-Pelvis, Posterior only
Osteotomies and Laminectomies
Was 68 degrees, now 22 and pain free
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Melissa, I don't remember fully but aren't you fused to the sacrum?
In terms of having a hip replacement, I read on another forum that that has to happen before your spine are fused to the sacrum. Here is what was written; "I know well from all my years on flatback related mailing lists and forums that if a patient needing revision and fusion to the sacrum - which my next surgery will inevitably be - also needs hip replacement in the forseeable future, they *have* to get the hip replaced first. This is because it inevitably changes the length of the leg, and if you are fused to the sacrum there is no way to compensate for this change in balance."
I don't know much about it but thought I should let you know as it could be a bad situation to be in if it fails. I would def. ask your doctor about it or even get a second opinion from someone else.2001:Compression fracture L1- leads to kyphosis in the area, sagittal balance problems
2005:Artificial disc protheses (L5/S1, L5/L4) Failes and creates a hyperlordosis in the lumbar, sagittal balance problem worsens.
2010:Revision surgery of ADR L4/L5 to fusion- too much of the lordosis is reduced, fused in a kyphosis. Hyperlordosis at L5S1 increases
Currently in severe pain and bedridden. Need a revision surgery of hyperlordosis at L5S1 and correction of sagittal balance, kyposis prob.
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Originally posted by lollyopop View PostMelissa, I don't remember fully but aren't you fused to the sacrum?
In terms of having a hip replacement, I read on another forum that that has to happen before your spine are fused to the sacrum. Here is what was written; "I know well from all my years on flatback related mailing lists and forums that if a patient needing revision and fusion to the sacrum - which my next surgery will inevitably be - also needs hip replacement in the forseeable future, they *have* to get the hip replaced first. This is because it inevitably changes the length of the leg, and if you are fused to the sacrum there is no way to compensate for this change in balance."
I don't know much about it but thought I should let you know as it could be a bad situation to be in if it fails. I would def. ask your doctor about it or even get a second opinion from someone else.Melissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgery
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melissa, if your surgeon doesn't do hip replacement, suggest consulting with a couple of
surgeon who do the procedure...
i knew someone at work who had hip replacement done, both sides, and she said it
changed the length of her legs...and she had to learn to walk again...
webmd has a section on back pain with a forum of sorts....with a lot of comments
from people with back pain....some with hip problems as well...
jessLast edited by jrnyc; 05-26-2012, 03:39 PM.
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Originally posted by jrnyc View Postmelissa, if your surgeon doesn't do hip replacement, suggest consulting with a couple of
surgeon who do the procedure...
i knew someone at work who had hip replacement done, both sides, and she said it
changed the length of her legs...and she had to learn to walk again...
webmd has a section on back pain with a forum of sorts....with a lot of comments
from people with back pain....some with hip problems as well...
jess
I will look at webmd.ThanksMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgery
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Originally posted by mabeckoff View PostMy surgeon does not do hip replacements but at the hospital there is a surgeon that does do them.
I will look at webmd.ThanksMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgery
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Originally posted by lollyopop View PostMelissa, I don't remember fully but aren't you fused to the sacrum?
In terms of having a hip replacement, I read on another forum that that has to happen before your spine are fused to the sacrum. Here is what was written; "I know well from all my years on flatback related mailing lists and forums that if a patient needing revision and fusion to the sacrum - which my next surgery will inevitably be - also needs hip replacement in the forseeable future, they *have* to get the hip replaced first. This is because it inevitably changes the length of the leg, and if you are fused to the sacrum there is no way to compensate for this change in balance."
I don't know much about it but thought I should let you know as it could be a bad situation to be in if it fails. I would def. ask your doctor about it or even get a second opinion from someone else.
SallyDiagnosed with severe lumbar scoliosis at age 65.
Posterior Fusion L2-S1 on 12/4/2007. age 67
Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
New England Baptist Hospital, Boston, MA
Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/
"In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.
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Originally posted by loves to skate View PostThat makes absolutely no sense what so ever. If a hip replacement changes the length of the leg, us old people would be hobbling all over the place. Knee surgeries used to make your leg longer, but hip and knee surgeries are much improved in this day and age.
SallyMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgery
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I've known quite a few people who have had fusion to the sacrum prior to hip replacement. Since the hip replacement doesn't actually change pelvic obliquity, I can't envision why it would matter whether it was done before or after fusion to the sacrum.
--LindaNever argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
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Surgery 2/10/93 A/P fusion T4-L3
Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
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Originally posted by LindaRacine View PostI've known quite a few people who have had fusion to the sacrum prior to hip replacement. Since the hip replacement doesn't actually change pelvic obliquity, I can't envision why it would matter whether it was done before or after fusion to the sacrum.
--LindaMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgery
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