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I am so sorry, Melissa. How discouraging for you. Take some deep breaths and remember that you are a fighter and have taken it one day at a time and made it through so many catastrophes. You can do this. If you need to grieve about it, let the tears come, then you will be ready to face your battles again. You are a strong person and have so many exciting things going on in your life as well. Don't let the turkeys get you down. It's a setback for sure, but you can find another path. Hugs.
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71 and plugging along... but having some problems
2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago
Corrected to 15°
CMT (type 2) DX in 2014, progressing
10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring
Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me -
Melissa,
I have read your story over these many posts - your trials and tribulations. It would be (for me) almost too much to bear. Which indicates to me not only are you strong, brave and will not give up, you are my hero.
Not only has this affected you the most, but it certainly has impacted your family as well. I intend to pray for you often and hope you have a deep and abiding faith in God. I have been angry over the years for many of my problems with God, but He never intended to cause me pain. He loves me and He loves you - I'm sure your suffering has caused Him great pain (ha ha, you might say, but He knows what you are going through). Please try and muster up the strength to reach out to Him and give your tired mind, body and spirit to Him. I sense so much weariness in your posts, that He can handle and give you relief.
I don't know your faith and do not mean to clout you over the head with the Bible; but God can give great peace to those that are suffering as much as you have. Regardless, I will pray for you daily.
May all the doctors be kind to you, may BCBS approve your pain pump, may someone care and continually share your pain; someone you can talk to. Like us when you are up to it.
God Bless you Melissa,
SusanSusan
XLIF/Posterior Surgery 6/16/08. Fused T10-L5 in CA by Dr. Michael Kropf (don't go there unless it's simple, I hear he's at Cedar's now). Very deformed, had revision w/5 PSO's, rods from T-3 to sacrum including iliac screws, all posterior, 5/23/16 with Dr. Purnendu Gupta of Chicago.
Owner of Chachi the Chihuahua, So Cal born and bred, now a resident of 'Chicagoland' Illinois. Uh, dislike it here....thank God there was ONE excellent spine surgeon in this area.Comment
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Oh Melissa. There is someone out there who will help you. Listen to your body and don't give up.T10-pelvis fusion 12/08
C5,6,7 fusion 9/10
T2--T10 fusion 2/11
C 4-5 fusion 11/14
Right scapulectomy 6/15
Right pectoralis major muscle transfer to scapula
To replace the action of Serratus Anterior muscle 3/16
Broken neck 9/28/2018
Emergency surgery posterior fusion C4- T3
Repeated 11/2018 because rods pulled apart added T2 fusion
Removal of partial right thoracic hardware 1/2020
Removal and replacement of C4-T10 hardware with C7 and T 1
OsteotomyComment
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What an awful, outrageous experience!
Sending hugs and prayers to you, Melissa.Peg
61 yrs old
75 degree lumbar curve with thoracic kyphosis
T3 - S1 surgery with Dr. Buchowski in St. Louis, on 10/27/14
Working on healing in Columbus, Ohio!Comment
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Thank you all for your warm wishes but I am running out of strength. I really think giving up is the way to go.
Any way, I find out today if BCBS has changed their mind regarding the spinal cord stimulator.
According to my pain psychologist, BCBS is the hardest to get an approval on.
I will let you know later today
MelissaMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgeryComment
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I have no idea if or how this would work, but would it be worth it to contact a healthcare attorney?T4-Sacrum fusion, with pelvic fixation in January 2015, Dr. Lonner in NYC
10 osteotomies, rotation from 25 to 2
Diagnosed at age 11 with double curve, 36 and 45 degrees, Braced for 2.5 years
At time of surgery, curves were 45 and 65 degrees
Chronic back pain, worsening, since age 11
Tried every pain management procedure, acupuncture, chiropractor, physical therapy ever created
Mom of 2 cuties!Comment
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I just found out that BCBS approved my spinal cord stimulator trial.
Next Wednesday , it is going to happen!!!!!
Yea!!!!Melissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgeryComment
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Whoo hoo! I bet you are doing the Happy Dance! And so are many of us! So happy for you, Melissa. Big smile!71 and plugging along... but having some problems
2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago
Corrected to 15°
CMT (type 2) DX in 2014, progressing
10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring
Click to view my pics: pics of scoli x-rays digital x-rays, and pics of meComment
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Great news!!!!Karen
Surgery-Jan. 5, 2011-Dr. Lenke
Fusion T-4-sacrum-2 cages/5 osteotomies
70 degree thoracolumbar corrected to 25
Rib Hump-GONE!
Age-60 at the time of surgery
Now 66
Avid Golfer & Tap Dancer
Retired Kdgn. Teacher
See photobucket link for:
Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
Before and After Picture of back 1/7/11
tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
http://s1119.photobucket.com/albums/k630/pottoff2/Comment
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You are right . I am so happyMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgeryComment
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Hope that it works for you! One less hassle. Things are turning around for you.
SusanAdult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rodComment
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Deep breaths Melissa.....
It was good chatting with you on the phone! I don’t text since I always have the wrong glasses on, have cataracts now,......and my eye surgeon wants me to wait.
Its just like the scoliosis thing. You know, hurry up and wait. (For decades) You get kind of used to it.....
Even keel......steady as she goes......
Ed49 yr old male, now 63, the new 64...
Pre surgery curves T70,L70
ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
Dr Brett Menmuir St Marys Hospital Reno,Nevada
Bending and twisting pics after full fusion
http://www.scoliosis.org/forum/showt...on.&highlight=
My x-rays
http://www.scoliosis.org/forum/attac...2&d=1228779214
http://www.scoliosis.org/forum/attac...3&d=1228779258Comment
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Congrats Melissa. Another step forward. Hopefully towards a much better future.Surgery March 3, 2009 at almost 58, now 63.
Dr. Askin, Brisbane, Australia
T4-Pelvis, Posterior only
Osteotomies and Laminectomies
Was 68 degrees, now 22 and pain freeComment
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Thanks everyone
I just realized that this is my 4th year anniversary of my first surgery with Dr Bederman. This is the where I was fused from C2 to my pelvis. It was a 15 hour surgery. I was in the hospital about 10 days and then I went to rehab for about 3 weeks. That was not a easy recovery but I made it.
I am more flexible now than I ever thought I would be so it a success
First of many surgeries with Dr Bedeermaan
MelissaMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgeryComment
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I am in awe of you and what Dr. Bederman has done for you Melissa. This is a very special anniversary.Surgery March 3, 2009 at almost 58, now 63.
Dr. Askin, Brisbane, Australia
T4-Pelvis, Posterior only
Osteotomies and Laminectomies
Was 68 degrees, now 22 and pain freeComment
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