Perhaps you can at least arrange to skype or something during that 6 hours. It is a thought, anyway. That way you could see her and she could see you. I am not sure if you could make arrangements or not. Have you ever skyped with anyone on the computer? I have a grandson who lives 1,000 miles away and it is one way to keep in touch when you can't visit often. Even when they are babies you can see them and wave. Again, just a thought, and totally dependent on the people in NC.
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September 9th surgery
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71 and plugging along... but having some problems
2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago
Corrected to 15°
CMT (type 2) DX in 2014, progressing
10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring
Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me
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Melissa, I feel so sorry for you and your family. I live very close to all of my grandchildren so I get to see them all of the time. It will be so hard not to get to see her and be such a big part of her life. Grandparents are so important and it is too bad that she has to live so far away.T10-pelvis fusion 12/08
C5,6,7 fusion 9/10
T2--T10 fusion 2/11
C 4-5 fusion 11/14
Right scapulectomy 6/15
Right pectoralis major muscle transfer to scapula
To replace the action of Serratus Anterior muscle 3/16
Broken neck 9/28/2018
Emergency surgery posterior fusion C4- T3
Repeated 11/2018 because rods pulled apart added T2 fusion
Removal of partial right thoracic hardware 1/2020
Removal and replacement of C4-T10 hardware with C7 and T 1
Osteotomy
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Melissa - I wonder if there is any way for you to work with David so that if you make a trip you could see her with accumulated time -- so you could see her for at least a few hours a day for maybe 4 days or something. I understand Jackie's wonderful situation, but hubby and I moved 2,000 miles away from our parents and my children still felt/feel (my parents are now gone) very close to them with just the once or maybe twice a year visits and phone calls and letters. You CAN make this work, I am sure. Can your 6 hours a week involve sending things to be opened (pictures of you? tiny gifts?) or are those not allowed? There are those places, I think they are called supervised visitation, and it's possible if David is unwilling to set up a skype time or let you see her, that something can be arranged through one of those (or you can say he will need to do so). I have no idea how much they cost, but I'm sure you can google them and find out some information. When she is older, your 6 hours can be phone conversations, although skype will be so much better because she will be able to see your gentle, caring face. Our grandson who lives 1,000 miles away loves us dearly even though we see him no more than twice a year. He looks forward to our trips immensely! And when we skype, he is so disappointed if BOTH of us aren't here! Quality is the key, not just quantity. Love is the essential factor and you have that. Best wishes with all of this. Praying for you!71 and plugging along... but having some problems
2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago
Corrected to 15°
CMT (type 2) DX in 2014, progressing
10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring
Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me
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The granddaughter situation is on hold for the time being so I am having my broken rod fixed at the beginning of December. I saw Dr Bederman today and he agreed that my rod needs fixing. It will most likely fix my pain about 50% but that is better than what I have now.
MelissaMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgery
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Thanks for letting us know Melissa. I'll be thinking of you and wishing you all the very best.Surgery March 3, 2009 at almost 58, now 63.
Dr. Askin, Brisbane, Australia
T4-Pelvis, Posterior only
Osteotomies and Laminectomies
Was 68 degrees, now 22 and pain free
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Good luck Melissa I hope all goes well. I have my next(and I hope last) surgery on November 19th.T10-pelvis fusion 12/08
C5,6,7 fusion 9/10
T2--T10 fusion 2/11
C 4-5 fusion 11/14
Right scapulectomy 6/15
Right pectoralis major muscle transfer to scapula
To replace the action of Serratus Anterior muscle 3/16
Broken neck 9/28/2018
Emergency surgery posterior fusion C4- T3
Repeated 11/2018 because rods pulled apart added T2 fusion
Removal of partial right thoracic hardware 1/2020
Removal and replacement of C4-T10 hardware with C7 and T 1
Osteotomy
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Broken rod
Melissa, I see your having your broken rod fixed the 8th of Dec.
My last revision with Lenke was for a broken rod a year and half ago.(very lower spine)
Is yours in the lower section? They took all my hardware out and redid everything. But every situation is different. I had the flatback syndrome and bad saggital imbalance. I still am bent a little forward.
Anyway, best of luck and hoping you recover with flying colors!!! Warm thoughts of you this Holiday Season~~~Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
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Originally posted by babyboomer16 View PostMelissa, I see your having your broken rod fixed the 8th of Dec.
My last revision with Lenke was for a broken rod a year and half ago.(very lower spine)
Is yours in the lower section? They took all my hardware out and redid everything. But every situation is different. I had the flatback syndrome and bad saggital imbalance. I still am bent a little forward.
Anyway, best of luck and hoping you recover with flying colors!!! Warm thoughts of you this Holiday Season~~~
Thanks
MelissaMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgery
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Now I am very frightened. I am now going to be in the hospital without a phone. We switched phone carriers this week and my phone is broken. The fastest that I can get a replacement phone is Tuesday which means that I cannot call out if I need something or get any calls from my friends.Melissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgery
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Originally posted by mabeckoff View PostNow I am very frightened. I am now going to be in the hospital without a phone. We switched phone carriers this week and my phone is broken. The fastest that I can get a replacement phone is Tuesday which means that I cannot call out if I need something or get any calls from my friends.
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