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  • My upcoming surgery

    Hi I am new to the forum
    My name is Elizabeth I am 48 yrs. old
    I had my first surgery in 1979
    In Cleveland OH
    A large portion of my thoracic spine was fused
    I have 2 hairington rods one straight one with hooks

    I was told the pressure from the rods and the fushion
    has cased my lumber spine to degenerate and is collapsing

    I have been in very much pain and it shoots down my left leg to my toes
    I also get spasms in my lower back and sharp pains

    I am scheduled to have Revision surgery on January 10, 2011
    I am going to have my entire lumber spine fused through the sacrum
    with pelvic screws
    The surgeon said they may have to remove the screws after a year

    Any one have anything like this done?

    Thanks, any info will be appreciated.

  • #2
    Elizabeth

    Welcome. Soon you will be all fixed up. Sciatica is devastating.

    Mine are still in, its been 3 years. Every once in a while someone will have to get them pulled but it doesnít happen too often. I donít know what the stats are on pelvic screw removals.

    Ed
    49 yr old male, now 63, the new 64...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

    Comment


    • #3
      Elizabeth welcome i just notice your having your 2nd surgery on jan 10th I be 10 months postop then
      Kara
      25
      Brace 4-15-05-5-25-06
      Posterior Spinal Fusion 3-10-10
      T4-L2
      Before 50T
      After 20T

      Comment


      • #4
        Hi Elizabeth, welcome to the forum. There are a few members here who've had revision surgery. I'm sure some of them will come by this thread and tell you of their experience. Best of luck, sounds like you're going to be a whole lot better soon.
        Surgery March 3, 2009 at almost 58, now 63.
        Dr. Askin, Brisbane, Australia
        T4-Pelvis, Posterior only
        Osteotomies and Laminectomies
        Was 68 degrees, now 22 and pain free

        Comment


        • #5
          Revision

          Hi, Elizabeth, I had surgery 2002, I am now 67 and need revision, all my problem was lumbar, and th rods put pressure on sacrum. I am going to Johns Hopkins in the spring, were are you going to have your surgery, and Dr.s name? good luck to you, hope to here good reports from your surgery. Lu

          Comment


          • #6
            Hi Elizabeth! Welcome!
            I am so sorry to hear that you are having so many problems lately! Sciatica is no fun at all!
            I hope all goes will!!
            25 years old
            double 70+ degree curves before surgery
            Anterior on 11/11/08
            Posterior on 12/2/08 with titanium rods
            nearly perfect correction
            fused t-10 to pelvis
            with a hemi-vertebral osteotomy at L4

            Broke right rod at L4-L5 on 06/26/09
            Broke left rod on 10/24/09
            Revision surgery on 11/5/09 with vitallium rods
            Broke both rods again

            Had posterior than anterior revisions on 03/11 at the Twin Cities Spine Center
            Declared "FUSED" on 12/6/11

            Comment


            • #7
              Originally posted by Elizabeth J. View Post
              Hi I am new to the forum
              My name is Elizabeth I am 48 yrs. old
              I had my first surgery in 1979
              In Cleveland OH
              A large portion of my thoracic spine was fused
              I have 2 hairington rods one straight one with hooks

              I was told the pressure from the rods and the fushion
              has cased my lumber spine to degenerate and is collapsing

              I have been in very much pain and it shoots down my left leg to my toes
              I also get spasms in my lower back and sharp pains

              I am scheduled to have Revision surgery on January 10, 2011
              I am going to have my entire lumber spine fused through the sacrum
              with pelvic screws
              The surgeon said they may have to remove the screws after a year

              Any one have anything like this done?

              Thanks, any info will be appreciated.
              Hi Elizabeth:

              I had my first surgery T4-L4 in 1969. In 2006 my second now T3-S1. I am now 55 and still in a lot of pain. Plus I have a lot of limitations since I am not able to bend. My doctor won't remove the screws, he has had a few patients that became "unstable" after removing. So I have to keep mine even though I believe they are causing me the pain.

              Good luck with yours.

              Daily Pain

              Comment


              • #8
                have you consulted with other surgeons about that, daily pain?
                my surgeon in NYC...i haven't had scoli surgery...yet...said he'd probably have to remove the bottom screws after a year if/when i have it done...i am thin and small boned, and he said those are the people who feel them the worst...

                why would a surgeon sentence their patient to a life of pain, without solution??

                jess

                Comment


                • #9
                  My upcoming surgery

                  Thank you to everyone for your replies
                  Sorry it took me so long to get back
                  I had my last day of work this past Thursday
                  I am going to be off this week before my surgery on Jan 10th.
                  My pre-addmision testing is this Wednesday
                  I will be having my surgery at Hillcrest Hospital in Mayfield Heights Ohio
                  My surgeon is Dr. Eppig it is a Cleveland Clinic Hospital
                  My first surgery was done by Dr. Nash in 1979
                  Dr. Eppig studied under Dr. Nash
                  I am going to have a two procedure surgery
                  First they will be going through my side (I forgot what side I will ask Wednesday)
                  He said I will have four small cuts where they will use a four arm robotic machine
                  and insert the cages
                  Then he will go through my back and take two bone grafts from my pelvic
                  insert the screws and whatever else hardware
                  He said the surgery could take 8-12 hrs.

                  I was wondering is it hard to sit up after surgery?
                  How about getting up out of bed
                  What kind of things did you need at home to make it helpfull
                  My husband was wondering if we should rent a hospital bed
                  Did anyone need any special equipment at home?

                  I realize things are going to be a lot different for me and it will
                  be a long recovery.
                  I feel I am doing the right thing for me
                  My x-rays show severe stenosis & degeneration
                  The past year has been very hard for me as the pain has been getting worse
                  I have a hard time being on my feet for long
                  I work in a factory & run some machinery and assembling
                  They had to hire someone to do my job
                  I cannot do a lot of things because of the pain
                  they have been very accomadating to me
                  but I am not sure I can go back to that kind of work
                  I am 48 yrs old not sure what kind of work I can do after this surgery
                  Who would want to hire me after 2 back surgeries.
                  My husband said I need to take one step at a time and get through this surgery first.

                  Thanks again for any advice

                  Elizabeth J.

                  Comment


                  • #10
                    Elizabeth

                    Your husband is right. Smart guy! You take it one step at a time. Donít worry about working right now, you will figure it out later.

                    The one thing that I regretted in my recovery for the first 3 weeks was not having a foam topper for the bed. I would get one right now, it helps with sleeping, which is hard to do after surgery....2-4 inches thick, latex foam.

                    Having a bottle of Magnesium Citrate on your shelf just in case......

                    Linda has a list.
                    http://www.scoliosislinks.com/PreparingforSurgery.htm

                    Ed
                    49 yr old male, now 63, the new 64...
                    Pre surgery curves T70,L70
                    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                    Dr Brett Menmuir St Marys Hospital Reno,Nevada

                    Bending and twisting pics after full fusion
                    http://www.scoliosis.org/forum/showt...on.&highlight=

                    My x-rays
                    http://www.scoliosis.org/forum/attac...2&d=1228779214

                    http://www.scoliosis.org/forum/attac...3&d=1228779258

                    Comment


                    • #11
                      All the very best to you Elizabeth. Your husband's right, get well first and all else will fall into place. You may be surprised at what you can (as opposed to what you can't) do, after healing.

                      Will your husband be able to give us updates? We love to hear how "our" patients are in those first few days/weeks.
                      Surgery March 3, 2009 at almost 58, now 63.
                      Dr. Askin, Brisbane, Australia
                      T4-Pelvis, Posterior only
                      Osteotomies and Laminectomies
                      Was 68 degrees, now 22 and pain free

                      Comment


                      • #12
                        Hi Elizabeth J.,
                        I just had my second surgery on 12/7, the first one was with the Harrington Rod in 1981, and I completely understand what you are going through with the pain, etc. Now I am fused from T-4 to the sacrum and am doing well. It will be four weeks on Tuesday. You will be surprised how you will be able to get out of bed alone, etc. As far as a hospital bed, I did not get one as my bed is very comfortable and have more room than a hospital bed. I completely agree with Ed to have a topper! I have a Tempurpedic, which is like a toper, and it is very comfortable and easy to get out of bed. As others have said, don't worry about anything other than healing. You will be in my thoughts and prayers. All the best, LYNN
                        1981 Surgery with Harrington Rod; fused from T2 to L3 - Dr.Keim (at 26 years old)
                        2000 Partial Rod Removal
                        2001 Right Scapular Resection
                        12/07/2010 Surgical stabilization L3 through sacrum with revision harrington rod instrumentation, interbody fusion and pre-sacral fusion L5-S1 - Dr. Boachie (at 56 years old)
                        06/11/14 - Posterior cervical fusion C3 - T3 (Mountaineer System) due to severely arthritic joints - Dr. Patrick O'Leary (at age 59)

                        Comment


                        • #13
                          My upcoming surgery

                          Thank you all for your replies
                          It is comforting to hear from people who have been there
                          The checklist is great for ideas and things to have
                          I was looking at some of those foam toppers on the internet
                          and I noticed they very in price and there are so many to
                          choose from
                          Does anyone suggest a certain one?

                          Thank you for wanting to keep in touch
                          I will ask my Mom to keep you posted on my
                          recovery.
                          My husbands great but I could never get him to use a home computer.

                          Elizabeth J.

                          Comment


                          • #14
                            Originally posted by Elizabeth J. View Post
                            Thank you all for your replies
                            It is comforting to hear from people who have been there
                            The checklist is great for ideas and things to have
                            I was looking at some of those foam toppers on the internet
                            and I noticed they very in price and there are so many to
                            choose from
                            Does anyone suggest a certain one?

                            Thank you for wanting to keep in touch
                            I will ask my Mom to keep you posted on my
                            recovery.
                            My husbands great but I could never get him to use a home computer.

                            Elizabeth J.
                            I have a 4 inch memory topper and it is so comfortable to use.
                            Good luck
                            Melissa

                            Comment


                            • #15
                              Surgery Tomorrow!

                              Hi All,
                              I can't believe it is finally here.
                              I am off for my surgery tomorrow morning at 7:30 am
                              The surgeon is expecting it to last from 7-11 hrs.
                              My mom Mary said she will keep the forum posted for me
                              Thanks to everyone for your advice & support.
                              I am a little scared but ready to get this over with.
                              Elizabeth

                              Comment

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