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  • #16
    My hubby and I have already decided once I get back on my feet, we recover from all these horrendous medical bills, etc. we're going to go on a cruise! Our gift to us!!!! I can't wait!!!!!
    Rita Thompson
    Age 46
    Milwaukee Brace wearer for 3 years in childhood
    Surgery Mar 1st - 95 degree thoracic curve
    Surgery by Dr. Lenke, St. Louis, MO
    Post-surgery curve 25-30 degree

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    • #17
      Sounds awesome! I'm still waiting on that cruise but we will be taking our first real vacation since surgery down to Orange Beach, Alabama, where we've gone for years. Should be great. I love walking and lying on the beach. The lying part could be rather interesting--especially if anyone watches me get down there! Janet
      Janet

      61 years old--57 for surgery

      Diagnosed in 1965 at age of 13--no brace
      Thoracic Curve: 96 degrees to 35 degrees
      Lumbar Curve: 63 degrees to 5 degrees
      Surgery with Dr. Lenke in St. Louis--March 30, 2009
      T-2 to Pelvis, and hopefully all posterior procedure.

      All was posterior along with 2 cages and 6 osteotomies.

      Comment


      • #18
        Lynette,

        Just remember what many in this thread have said to you. It's all important.
        And know that the weight you are carrying on your shoulders is real.

        We have all had it, and we are helping you carrying the load as well.

        And that black cloud you speak of, it's God's way of blanketing you, and keeping you warm!!!

        I believe evrything happens for a reason. When I found this forum, I didn't think I could mentally, sink any lower.


        Try and keep you chin up, and never feel quilty for feeling down, in a way it is a life changing experience. One for the best!!!

        We are here for you,
        Shari
        Last edited by Shari; 02-23-2010, 07:21 AM.

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        • #19
          Shari you are an amazing lady with really great words of wisdom. I'm feeling much stronger today, and more determined than ever to get through this, and not let my ex destroy me! My mother and attorney suggested I put this whole court battle on hold for a year, so I'll be talking to my attorney today about that in more detail - gotta concentrate on just focusing on staying positive and getting better and healing from this surgery. I really can't put off this surgery as my spine is really bad and rapidly increasing, even though AMAZINGLY my back pain is minimal still - though lately I can feel more twinges and certainly after a shorter period of time standing, it hurts pretty bad.

          So ONWARD AND UPWARD!!!

          Thank you again Shari for all your uplifting advice, and thank you EVERYONE on here who has put up with my whining and moaning
          Lynette - 44 years old.

          Pre-surgery thoracic 55 degrees
          Pre-surgery lumbar 85 degrees

          Post-surgery thoracic 19 degrees
          Post-surgery lumbar 27 degrees

          Surgery April 1st 2010.

          Posterior spinal fusion from T9 to sacrum.
          Dr. Cronen at University Community Hospital - Tampa, FL.

          Comment


          • #20
            Originally posted by LynetteG View Post
            Shari you are an amazing lady with really great words of wisdom. I'm feeling much stronger today, and more determined than ever to get through this, and not let my ex destroy me! My mother and attorney suggested I put this whole court battle on hold for a year, so I'll be talking to my attorney today about that in more detail - gotta concentrate on just focusing on staying positive and getting better and healing from this surgery. I really can't put off this surgery as my spine is really bad and rapidly increasing, even though AMAZINGLY my back pain is minimal still - though lately I can feel more twinges and certainly after a shorter period of time standing, it hurts pretty bad.

            So ONWARD AND UPWARD!!!

            Thank you again Shari for all your uplifting advice, and thank you EVERYONE on here who has put up with my whining and moaning
            I'm glad to hear you sounding better this morning Lynette. We've all had our really low moments with regard to this surgery. The trick is pulling ourselves out and preparing the best that we can. (mentally and physically).
            __________________________________________
            Debbe - 50 yrs old

            Milwalkee Brace 1976 - 79
            Told by Dr. my curve would never progress

            Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
            Pre-Surgury Thorasic: 66 degrees
            Pre-Surgery Lumbar: 66 degrees

            Post-Surgery Thorasic: 34 degrees
            Post-Surgery Lumbar: 22 degrees

            Comment


            • #21
              Ditto to what everyone else has said and it sounds like you're on the upswing a little bit. When I was going through my pre-op "dark cloud" days, I would just think about how much I was missing out on in life because of this chronic back pain. If I didn't do anything, I was going to be this way (or worse) for the rest of my life. I had been terrified of this surgery since I was diagnosed almost 40 years ago and yet I knew I had to move forward. I am a musician and do a lot of choral singing (of course, standing) and the last few concerts I just couldn't enjoy because I was in so much pain. It's hard right now when my husband goes to rehearsal and someone else is singing my solo parts, but I know I will be able to come back a stronger, healthier person. It's a long journey but you just have to keep focused on the final outcome. Lean on the forum folks--they are wonderful and helped me tremendously!


              Anne in PA
              Age 58
              Diagnosed at age 14, untreated, no problem until age 50
              T4 to sacrum fusion
              63 thoracic now 35, 92 lumbar now 53
              Dr. Baron Lonner, 2/2/10
              Am pain-free, balanced, happy & an inch taller !

              Comment


              • #22
                Thanks everyone for your support. Funnily enough it's not so much the surgery that was getting me down as much as my ex and what he continues to do to me, coupled with the surgery. On it's own facing the surgery is really not too bad for me, it's dealing with the other part of my life on top of all of this that makes some days a little hellish. However, I'm determined to not let my ex beat me down anymore - so all is good with the world
                Lynette - 44 years old.

                Pre-surgery thoracic 55 degrees
                Pre-surgery lumbar 85 degrees

                Post-surgery thoracic 19 degrees
                Post-surgery lumbar 27 degrees

                Surgery April 1st 2010.

                Posterior spinal fusion from T9 to sacrum.
                Dr. Cronen at University Community Hospital - Tampa, FL.

                Comment


                • #23
                  Lynette,

                  Once you get your surgery, and well on your way in the recovery process, you just may look back and get a little chuckle.

                  No divorce will ever be as tough as the surgery and recovery. You will be on your way to a life changing experience. You will look beautiful (not deformed), you'll be free from your heavy load (husband), and you will be so empowered with the first hand knowledge of just how strong a woman you really are!!!

                  All my best,
                  Shari

                  Comment


                  • #24
                    Wow Shari that is so powerful and something I can really understand. I LOVED that, and boy that's given me some fantastic drive, thank you Shari!!!
                    Lynette - 44 years old.

                    Pre-surgery thoracic 55 degrees
                    Pre-surgery lumbar 85 degrees

                    Post-surgery thoracic 19 degrees
                    Post-surgery lumbar 27 degrees

                    Surgery April 1st 2010.

                    Posterior spinal fusion from T9 to sacrum.
                    Dr. Cronen at University Community Hospital - Tampa, FL.

                    Comment


                    • #25
                      Lynette, You're relatively young so you should make a fairly quick recovery. Get in as good shape as you can and you'll do fine. In the long run, you'll be able to be a better, healthier mom to your children. All the best, Joy

                      Comment


                      • #26
                        Oooh I love being told that I'm fairly young - hee hee - don't hear THAT too often these days Joy - thank you! Yes I'm actually looking forward now to getting this done, lately my back is hurting more and more, and I'm doing less and less fun stuff with my boys - and THAT'S no fun, so quicker I get this done the quicker I can heal and be a new mommy for my boys
                        Lynette - 44 years old.

                        Pre-surgery thoracic 55 degrees
                        Pre-surgery lumbar 85 degrees

                        Post-surgery thoracic 19 degrees
                        Post-surgery lumbar 27 degrees

                        Surgery April 1st 2010.

                        Posterior spinal fusion from T9 to sacrum.
                        Dr. Cronen at University Community Hospital - Tampa, FL.

                        Comment


                        • #27
                          Lynette, I felt the exact same way! Please feel free to email me directly and get my phone number. I would love to talk to you. I was able to talk to several ladies over the phone that really helped me before my surgery. I really hope you take the time to call.

                          Comment


                          • #28
                            OMG, I feel the same way girl! My boys are 6 & 7 and I've waited this long for them to be a little more self-sufficient. I like you have the same fear, I am not ready to leave my boys and hope I am doing the right thing. I hope I don't become worse off and not able to provide for my family like I'm used to. I too live in the Tampa area, not sure yet if I'm going to UCH or St Joes. My appt. is the same day as your surgery, too funny. I wish you the best of luck!
                            Janet
                            36 year young cardiac RN
                            old curve C 29, T 70, L 50
                            new curve C 7, T 23, L 20
                            Surgery June 11, UCH, Dr. Cronen T2-L5, posterior
                            Revision December 20 L5-S1 with pelvic fixation
                            and Osteotomy to L3 at Tampa General Hospital

                            Comment


                            • #29
                              Janet - that's exactly how I feel - hoping that I'll be able to continue again taking care of my boys just the way I used to, of course not at first I realize that, but after that I sure hope I can. My nine-year-old cried tonight while I was reading him his bedtime story, he said he'll miss me and that on Easter Sunday he wants to stay with me all day and all night (the kids will be visiting me in the hospital that day), poor little guy. It breaks my heart to see them sad, especially as inside I feel so sad too because I'll miss them very much also - I don't let them know this of course - but my sons have never been apart from me for more than a couple of nights. Anyway, it's all for a good reason, and before we all know it, I'll be back home with my babies again . It's hard isn't it doing this surgery when you have little babies that rely on us?
                              Lynette - 44 years old.

                              Pre-surgery thoracic 55 degrees
                              Pre-surgery lumbar 85 degrees

                              Post-surgery thoracic 19 degrees
                              Post-surgery lumbar 27 degrees

                              Surgery April 1st 2010.

                              Posterior spinal fusion from T9 to sacrum.
                              Dr. Cronen at University Community Hospital - Tampa, FL.

                              Comment


                              • #30
                                So sad, I will miss my boys so much. The hospital is almost a hour away.
                                36 year young cardiac RN
                                old curve C 29, T 70, L 50
                                new curve C 7, T 23, L 20
                                Surgery June 11, UCH, Dr. Cronen T2-L5, posterior
                                Revision December 20 L5-S1 with pelvic fixation
                                and Osteotomy to L3 at Tampa General Hospital

                                Comment

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