jrnyc,
I'm going to look into calling Dr. Lonner and a few others for sure.
fandango,
I'm sry to hear it's gotten worse. Look into getting the surgery, i'm 100% going to do it at some point soon. I've had enough as well. Feel free to pm me as we're both in similar situations.
ed,
I'm hoping my digestive issues will calm down with surgery. Mainly i get so bloated, and often indigestion stuff. Bm's are pretty much normal. Gastro tests show slow gastric emptying. No major food sensitivities for me, did all the testing at docs and of course personal experimentation diets. Since everything and the muscles are so outta wack, i'm quite positive this is the cause. I also have gained 10-15 over the last 2 months along with the exhaustion thing. Blood tests are coming back in a day or 2, checking a good range of things. Maybe i'm just sick of being in pain and breathing troubles, my body has had enough, maybe not. I'm happy to hear your digestive issues calmed down with your surgery
jenm,
i'm not sure if the blood tests today check vit d, i'll see in a day or too and if not, get it checked. I don't have any neck issues other than the classic neck that sticks out forward more than normal with kypho people. I don't think i have any nerve issues yet. Sometimes i do get a cold sharp pain in my right shoulder, happens on and off for years. I do have pretty bad carpel tunnel in my right wrist, which i think is from weight lifting when younger and 10 years of guitar. Are you gonna go for the surgery jen?
update on me,
6 corto shots today, i was confused when they said, "Okay, we're doing C-7-T-3 shots today right?" That's way up by my neck and way upper back. Hm. I'm going to call my doctor tommorrow, as another doctor in the same office did the shots today. My kypho is mid-to-upper back. Maybe they start up and work their way down with more rounds of shots. If so, prob a money making thing for them. I'll see tommorrow. Pain is less today, feeling pretty good actually, but can't say if it's because of the corto. Could be the sedation effects, or the mild swelling from the shots taking the focus off of the usual back pain. We'll see in 4-5 days ay? Trying to stay positive on this rollercoaster we all know of, having scoli or kypho!
Looking forward to Hospital for Special Surgery Feb 12
Take care
I'm going to look into calling Dr. Lonner and a few others for sure.
fandango,
I'm sry to hear it's gotten worse. Look into getting the surgery, i'm 100% going to do it at some point soon. I've had enough as well. Feel free to pm me as we're both in similar situations.
ed,
I'm hoping my digestive issues will calm down with surgery. Mainly i get so bloated, and often indigestion stuff. Bm's are pretty much normal. Gastro tests show slow gastric emptying. No major food sensitivities for me, did all the testing at docs and of course personal experimentation diets. Since everything and the muscles are so outta wack, i'm quite positive this is the cause. I also have gained 10-15 over the last 2 months along with the exhaustion thing. Blood tests are coming back in a day or 2, checking a good range of things. Maybe i'm just sick of being in pain and breathing troubles, my body has had enough, maybe not. I'm happy to hear your digestive issues calmed down with your surgery
jenm,
i'm not sure if the blood tests today check vit d, i'll see in a day or too and if not, get it checked. I don't have any neck issues other than the classic neck that sticks out forward more than normal with kypho people. I don't think i have any nerve issues yet. Sometimes i do get a cold sharp pain in my right shoulder, happens on and off for years. I do have pretty bad carpel tunnel in my right wrist, which i think is from weight lifting when younger and 10 years of guitar. Are you gonna go for the surgery jen?
update on me,
6 corto shots today, i was confused when they said, "Okay, we're doing C-7-T-3 shots today right?" That's way up by my neck and way upper back. Hm. I'm going to call my doctor tommorrow, as another doctor in the same office did the shots today. My kypho is mid-to-upper back. Maybe they start up and work their way down with more rounds of shots. If so, prob a money making thing for them. I'll see tommorrow. Pain is less today, feeling pretty good actually, but can't say if it's because of the corto. Could be the sedation effects, or the mild swelling from the shots taking the focus off of the usual back pain. We'll see in 4-5 days ay? Trying to stay positive on this rollercoaster we all know of, having scoli or kypho!
Looking forward to Hospital for Special Surgery Feb 12
Take care
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