Tomorrow morning at this time I will be preparing my daughter for the trip to the hospital. Some moments I feel like we are all prepared, aside form needing to pack our bag. Other moments I found myself terrified and wondering what I am forgetting or stressing about what could go wrong.
Find it so hard dealing with her having to have this. Her strong desire to feel normal. She is 12 now and knows that she does not look like other kids. She constantly asks if this will make her look more normal, whether her clothes will finally fit like they are supposed to. I am so hopeful that this will give her some of her confidence back.
I also worry or beat myself up because I am taking a child that feels no pain right now and willingly subjecting her to pain. In the end I know it should be worth it, but it still feels wrong. Have others dealt with this?
If there is any last minute suggestions for things to pack, do, prepare for..etc. Please, feel free to let me know. I follow all your stories as much as I can and am always so happy to see the progress you have made. Getting valuable info from those who have walked before us is appreciated.
Thanks....
Jules
Find it so hard dealing with her having to have this. Her strong desire to feel normal. She is 12 now and knows that she does not look like other kids. She constantly asks if this will make her look more normal, whether her clothes will finally fit like they are supposed to. I am so hopeful that this will give her some of her confidence back.
I also worry or beat myself up because I am taking a child that feels no pain right now and willingly subjecting her to pain. In the end I know it should be worth it, but it still feels wrong. Have others dealt with this?
If there is any last minute suggestions for things to pack, do, prepare for..etc. Please, feel free to let me know. I follow all your stories as much as I can and am always so happy to see the progress you have made. Getting valuable info from those who have walked before us is appreciated.
Thanks....
Jules
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