Hi Friends,
We are exhausted. But I wanted to give you an update. Her curves are 48 and 55. Each curve went up 10 degrees in the last five months. She has grown a few inches since we were at Shriner's 14 months ago. When she is straightened out she will be between 5'6 and 5'7, I believe.
The doctor thinks that although she is at a 0, she is not going to continue to progress rapidly. He believes it will be slow, i.e. be in her 60's when she is in her 30's, etc. We could wait until then and see what technology is out there. He didn't think we definitely had to get it done if we really didn't want to.
But we know we really should just take care of this now. She will be fused from T2-L3 or L4. It will be done in the back. It will be a 7 hour surgery. They will use stainless steel screws and not get bone from her. It comes in a package, or something.
We are going to CHOP for a 2nd opinion. Just want to see more than one surgeon before going through this. Not sure who we should try to see at CHOP.
Nicole was amazing. Didn't cry once. We were there for 5 hours. Husband and I didn't cry. I talked to the doctor as if I was asking questions about my car. At this point, I don't know if I am numb or if so much of the emotion has been over the past 2 years. Anyway, please someone who had surgery, tell me your opinions of the things I mentioned. Does everything sound good? What other questions do you think I should ask?
We are exhausted. But I wanted to give you an update. Her curves are 48 and 55. Each curve went up 10 degrees in the last five months. She has grown a few inches since we were at Shriner's 14 months ago. When she is straightened out she will be between 5'6 and 5'7, I believe.
The doctor thinks that although she is at a 0, she is not going to continue to progress rapidly. He believes it will be slow, i.e. be in her 60's when she is in her 30's, etc. We could wait until then and see what technology is out there. He didn't think we definitely had to get it done if we really didn't want to.
But we know we really should just take care of this now. She will be fused from T2-L3 or L4. It will be done in the back. It will be a 7 hour surgery. They will use stainless steel screws and not get bone from her. It comes in a package, or something.
We are going to CHOP for a 2nd opinion. Just want to see more than one surgeon before going through this. Not sure who we should try to see at CHOP.
Nicole was amazing. Didn't cry once. We were there for 5 hours. Husband and I didn't cry. I talked to the doctor as if I was asking questions about my car. At this point, I don't know if I am numb or if so much of the emotion has been over the past 2 years. Anyway, please someone who had surgery, tell me your opinions of the things I mentioned. Does everything sound good? What other questions do you think I should ask?
Comment