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  • #16
    Mobee, You mentioned that you have a huge scar on your stomach from where you had a Keloid Scar removed. You also mentioned that you had a bad scar formation process. I dont know if you had the same scar tissue formation with your surgery for your colon, but that might be an issue to raise with your ortho if and when he considers your spine surgery. If you form much scar tissue, you are going to be at risk to form the same scar tissue along the incision from the fusion. I know that you want to get your spine straightened, but it will also show if you wear a bathing suit and the such. Just remember that once your spine is straightened you will always carry the scars from it and it will not just be over and done with.
    I hope that you start feeling better soon. I know that you have been very depressed recently. Good luck. I am praying for you.
    mandy

    Comment


    • #17
      Many thanks to all of you. Mandy-I do have ascar on my stomach but it went down quite a bit. Is aw a dermatologist for injections to reduce the scar. It isn't that bad. I'd rather have a scar on my back than a hump. Plus, now I know I form keloids and can have a plastic surgeon watch my incision healing.
      28 years old. Dx at age 14.

      1994 20T/20L
      1998 22T/20L
      2002 30T/28L
      2006 34T/28L
      2008 43T/34L

      considering surgery in the near future as the curvature is getting progressively worse and for pain management.

      XRAYS and pics at 28 years old. http://www.freewebs.com/skiergirl24/apps/photos/

      Comment


      • #18
        Well then I guess it's settled then. If you can find a surgeon that wants to perform surgery, and you know that it's not a guarantee for pain and there are post ops risks later down the road(like additional and/or different types of pains and additional surgeries), you (and the surgeon) can only decide what's best for you and you want to do.

        I had a 60 degree curve who didn't progress at all in 10 years(I just checked my x rays last night) before I had surgery for pain only and I never cared about it, it was back there, and I wore tight clothes and most of my close friends knew of it, and never thought it was gross or something. Never had problems with having men physically attracted to me, even the "superficial" ones. I was asked to be a model many times, and declined b/c I'm a make up artist and prefer being behind the camera, and I'm also an introvert. I still have a hump btw. But I know how physical perception is personal. I'm sorry about how you feel and all you have been through, hang in there.

        Good luck.
        Last edited by sweetness514; 05-20-2006, 02:23 PM.
        35 y/old female from Montreal, Canada
        Diagnosed with scoliosis(double major) at age 12, wore Boston brace 4 years at least 23 hours a day-curve progressed
        Surgery age 26 for 60 degree curve in Oct. 1997 by Dr.Max Aebi-fused T5 to L2
        Surgery age 28 for a hook removal in Feb. 1999 by Dr.Max Aebi-pain free for 5 years
        Surgery age 34 in Dec.2005 for broken rod replacement, bigger screws and crosslinks added and pseudarthrosis(non union) by Dr. Jean Ouellet

        Comment


        • #19
          sweetness,

          my rib hump is noticeable even when i am standing or sitting. it's not just when i bend over. i have such a horrible body image of myself due to child abuse etc. ive been in therapy all my life for it so that plays a part. im sure most of the people on these boards think i'm vain or crazy for wanting it fixed, but i've had too many things worng with me and too many struggles already...this scoliosis will just get worse having this rib hump is knocking me down day by day. therapy can help, but it is up to me to decide what i need to do for myself. i've had strangers ask me if i have scoliosis so yes, it is noticeable. having depression, ocd, body image issues etc. and having scoliosis on top of that is too much for me to bear. im not looking at surgery this year, not even next year. i just want to know that if i cannot deal with it anymore that i can get it fixed.
          28 years old. Dx at age 14.

          1994 20T/20L
          1998 22T/20L
          2002 30T/28L
          2006 34T/28L
          2008 43T/34L

          considering surgery in the near future as the curvature is getting progressively worse and for pain management.

          XRAYS and pics at 28 years old. http://www.freewebs.com/skiergirl24/apps/photos/

          Comment


          • #20
            I do not think you're vain at all, and I haven't seen your hump, but I hope for your sake you get more counseling and with everything that you have been through, try to see that this hump is not as bad and doesn't represent you. Maybe if you try to concentrate on what you have physically and emotionally that you like, it can help.

            I wanted to post my experiences about the surgeries and pain just to say that sometimes surgery doesn't fix all and can cause other problems, and I didn't know this before I had surgery(wish I had been told), and I had a great surgeon. I also wanted to prove that so many people don't care about the hump, like some of us do(although I personally didn't, and I'm very shy), and that there are models who have scoliosis.

            I have seen profiles of people who didn't have a big hump and it really bothered them, and that concerns me.

            I hope you feel better with time, whatever you do
            Last edited by sweetness514; 05-21-2006, 02:04 PM.
            35 y/old female from Montreal, Canada
            Diagnosed with scoliosis(double major) at age 12, wore Boston brace 4 years at least 23 hours a day-curve progressed
            Surgery age 26 for 60 degree curve in Oct. 1997 by Dr.Max Aebi-fused T5 to L2
            Surgery age 28 for a hook removal in Feb. 1999 by Dr.Max Aebi-pain free for 5 years
            Surgery age 34 in Dec.2005 for broken rod replacement, bigger screws and crosslinks added and pseudarthrosis(non union) by Dr. Jean Ouellet

            Comment


            • #21
              Long hair

              Forgot to say this...but it covered my hump, do you have long hair?
              35 y/old female from Montreal, Canada
              Diagnosed with scoliosis(double major) at age 12, wore Boston brace 4 years at least 23 hours a day-curve progressed
              Surgery age 26 for 60 degree curve in Oct. 1997 by Dr.Max Aebi-fused T5 to L2
              Surgery age 28 for a hook removal in Feb. 1999 by Dr.Max Aebi-pain free for 5 years
              Surgery age 34 in Dec.2005 for broken rod replacement, bigger screws and crosslinks added and pseudarthrosis(non union) by Dr. Jean Ouellet

              Comment


              • #22
                Originally posted by sweetness514
                I also wanted to prove that so many people don't care about the hump, like some of us do(although I personally didn't, and I'm very shy), and that there are models who have scoliosis.
                That reminded me, Sarah Michelle Galler has scoliosis and her rib hump is actually noticible... I picked it pu watching Buffy one day and did a search on google and turns out..yep
                30 something y.o.

                2003 - T45, L???
                2005 - T50, L31
                bunch of measurements between...

                2011 - T60, L32
                2013 - T68, L?

                Posterior Fusion Sept 2014 -- T3 - L3
                Post - op curve ~35


                Comment


                • #23
                  We are not our scoliosis. It plays a big role in our lives but it is not what makes us who we are. We determine how we are perceived and how we perceive ourselves.
                  I don't find anyone with scoliosis to be ugly or deformed. It is a deformity but we are not monsters and most certainly not ugly.
                  There are many beautiful actress and actors and athletes with it. They are accomplished and happy and have not let this get in the way of their hopes and dreams and life.

                  Just a small list of famous and beautiful people with it:

                  Isabella Rossellini Actress Model
                  Renee Russo Actress Model
                  Sarah Michelle Gellar Actress Model
                  Karie Webb Pro Womans Golfer
                  Jo Beth Williams Actress
                  Jon Olson Olympic Swimmer
                  Janet Evans Olympic Swimmer
                  Alexandra Marinescu Olympic Gymnast
                  Jeanette Lee Professional Pool Player
                  Jillian Weise Actress
                  Alexandra Marinescu World Champion Gymnast
                  Melanie Blatt All Saints Star
                  Jon Olsen Olympic Swimmer
                  Liza Minnelli Famous Actor and Singer
                  Lisa Howard Actress
                  Chloe Sevigny Actress
                  Sarah Polley Actress
                  Laura Dern Actress
                  Kurt Cobain Famous Rock Singer
                  Catherine Oxenburg Actress/Model
                  Jessica Andrews Country Singer
                  Dudley Hart Golf Player
                  Robert Loudermilk Tennessee Football Player
                  Linda Blair Actress
                  Daryl Hannah Famous Actress
                  John Lydon Lead Singer of Sex Pistols (Johnny Rotten)
                  Yo-Yo Ma Cellist
                  Jenny Thompson Swimmer
                  Rowena Wallace Actor


                  "If you look at what you have in life, you'll always have more. If you look at what you don't have in life, you'll never have enough." -Oprah Winfrey
                  36 year old single mom of teens ages 14 & 15.
                  Anterior/posterior spinal fusion on February 9th & 16th 2006 with Dr. Anthony Moreno who now has his own practice.
                  Fused from T-3 to S-1 (sacrum)
                  Curve pre-op = 70 degrees
                  Curve post op = 20 degrees
                  No pain anymore!!
                  Google is your friend

                  I am not a doctor and will never give medical advice. I will support and answer questions from personal experience only.

                  Comment


                  • #24
                    Good for you! My curves have continued to progress and I am 48 years old. Living with a deformity this long is hard to handle. I am now comtemplating surgery. I went for my first surgical consult last Tuesday and am looking forward to my first MRI.

                    Comment


                    • #25
                      Only someone who hasn't had a spine MRI would actually look forward to it. ;-)

                      Actually, it's not painful... just long and loud. If I were to have to go through it again, I would call the imaging center and ask if they could arrange for at least a strong tranquilizer.

                      --Linda
                      Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
                      ---------------------------------------------------------------------------------------------------------------------------------------------------
                      Surgery 2/10/93 A/P fusion T4-L3
                      Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

                      Comment


                      • #26
                        Ditto on that, Linda. I never considered myself claustrophobic til I got a load of the tight fit in that thing. Definitely going for the Valium next round...
                        Chris
                        A/P fusion on June 19, 2007 at age 52; T10-L5
                        Pre-op thoracolumbar curve: 70 degrees
                        Post-op curve: 12 degrees
                        Dr. Boachie-adjei, HSS, New York

                        Comment


                        • #27
                          Originally posted by Singer
                          Ditto on that, Linda. I never considered myself claustrophobic til I got a load of the tight fit in that thing. Definitely going for the Valium next round...
                          Head MRIs are the worse thanks to the Darth Vadar esq head coil. I've yet to request any sedatives for MRIs.. I should have played my cards right so I could get some valium :-p. Oh well.. too late for that all my records state I am not clausterphobic.
                          30 something y.o.

                          2003 - T45, L???
                          2005 - T50, L31
                          bunch of measurements between...

                          2011 - T60, L32
                          2013 - T68, L?

                          Posterior Fusion Sept 2014 -- T3 - L3
                          Post - op curve ~35


                          Comment


                          • #28
                            Interestingly, I also had a head MRI and it didn't bother me nearly as much as the spine. For the spine MRI, I was in the tube for about an hour and a half. The head MRI was a much shorter amount of time.

                            --Linda
                            Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
                            ---------------------------------------------------------------------------------------------------------------------------------------------------
                            Surgery 2/10/93 A/P fusion T4-L3
                            Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

                            Comment


                            • #29
                              Before I go for my MRI, I'm calling to get something to take. That's the only test I have to do that's a pain....My back killed me on the last one I had.. My chart said only lower MRI but I bet they'll need the whole thing done. I will check to see if they have an open one at HSS.

                              Comment


                              • #30
                                I was hoping that now that i've had surgery and contain all the hardware, rods, screws, and cages that i couldn't have MRI's anymore.... Is that a false hope?

                                Comment

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