Hi - My son has had scoliosis since 2001. We tried bracing. It didn't go to well. Mainly because he has very bad balance. When he fell, he was like a tree with no way to stop himself. We tried it at night, he'd take it off in his sleep. The doc said he was pretty sure he'd need surgery anyway. Then it was 22*. Last check in Feb showed it to be in the 50's.
He has a lot of other problems as well. When he was 4 in 1995 he was diagnosed with a very large malignant brain tumor. It was infiltrating the brainstem. After surgery he developed something called Posterior Fossa Syndrome/CerebellarMutism ... in a nutshell, he lost all abilities and was like a newborn baby, he was essentially 'locked in'. Aware, but unable to respond. Makes me sad remembering. He went through chemo and radiation on his brain and spine. He began growth hormone therapy in 2000, I'm sure that, along with the radition he had contributed greatly to his scoliosis.
He has made great progress since then. Now were dealing with puberty. GAAAAH! A lot of problems in school. Behavior, depression. He hates it. We were going to wait until summer, so he wouldn't miss any school but he didn't want to ruin his summer, he wants to do it sooner. We agree, it won't hurt him to miss all that school.
It is scheduled for April 29th. He's not scared or nervous. He's been through so much - I can see why he's not.
I've learned a lot reading, it's especially helpful to read what the kids that have been through it have to say.
My biggest worry is how this will affect his balance. The doc said he didn't know.
He has a lot of other problems as well. When he was 4 in 1995 he was diagnosed with a very large malignant brain tumor. It was infiltrating the brainstem. After surgery he developed something called Posterior Fossa Syndrome/CerebellarMutism ... in a nutshell, he lost all abilities and was like a newborn baby, he was essentially 'locked in'. Aware, but unable to respond. Makes me sad remembering. He went through chemo and radiation on his brain and spine. He began growth hormone therapy in 2000, I'm sure that, along with the radition he had contributed greatly to his scoliosis.
He has made great progress since then. Now were dealing with puberty. GAAAAH! A lot of problems in school. Behavior, depression. He hates it. We were going to wait until summer, so he wouldn't miss any school but he didn't want to ruin his summer, he wants to do it sooner. We agree, it won't hurt him to miss all that school.
It is scheduled for April 29th. He's not scared or nervous. He's been through so much - I can see why he's not.
I've learned a lot reading, it's especially helpful to read what the kids that have been through it have to say.
My biggest worry is how this will affect his balance. The doc said he didn't know.
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