hey everyone sorry I haven't been active in a while. march of 2010 I had my Spinal Fusion surgery for my scoliosis. it been a tough road from my diagnosis, bracing for a year to stop the progression of the curve but that didn't work. so during my 12 grade year in high school I went under the fusion surgery which I dreaded for 6 years. My recovery was uneventful other then a infection scare. but the stiches was just infected. im still in chronic pain from it. but now i'm suffering from gastrointestinal issues
Announcement
Collapse
No announcement yet.
soon to be 6 years post-op
Collapse
X
-
Hi Kara,
Wow, that's amazing it's 6 years! You are such a trooper, with your sinus surgery and foot surgery also behind you. I am happy for you that all those surgeries are done. But you mention chronic pain...I didn't realize you had chronic pain in your back, and I'm sorry to hear that. Also about your recent gastrointestinal issues. I hope you can find relief from those soon.
Do you have any fun plans for Halloween?
Take care, and congratulations on your almost 6 years!
GayleGayle, age 50
Oct 2010 fusion T8-sacrum w/ pelvic fixation
Feb 2012 lumbar revision for broken rods @ L2-3-4
Sept 2015 major lumbar A/P revision for broken rods @ L5-S1
mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
2010 VBS Dr Luhmann Shriners St Louis
2017 curves stable/skeletely mature
also mom of Torrey, 12 y/o son, 16* T, stable
Comment
-
Kara!
I always look forward to your updates but am so sorry to hear that you now have pain. Can I ask where in your back is the pain? I hope you get some help for that. Maybe some PT can help?
Best regards,
SharonSharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
Comment
-
Originally posted by kennedy View PostThanks everyone. My gastrointestinal issue was dianosed with IBS. My chronic pain is in my lower back under my fusion
I am sorry you are having pain issues. I hope your surgeon can tell you why you are having pain in your lower back and can help you with that.
Good luck.Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
Comment
-
Kara: Yikes! 2016 will hopefully be a better year for you! Follow-up with your surgeon if the pain continues. I have found that I need to call often to give updates on my pain.
Good luck! Sorry that you are in pain. That sucks!
Hugs, Susan....also in pain and tired of my situation also!Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rod
Comment
-
Originally posted by kennedy View Postsharon the thing is the surgeon who did my surgery is now in st louis at washington university.Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
Comment
-
Originally posted by Pooka1 View PostYes but a new set of x-rays or some other tests with a new surgeon might get you an answer as to why you are having pain below your fusion. That is not normal for people with one curve like I think you have. My kids have similar fusions and do not have pain below their fusions. One is almost 8 years out and the other is more than 6 years out. Even people with Harrington rods didn't tend have problems with only a thoracic curve. They should tell you why this is happening and figure out how to help you.Kara
25
Brace 4-15-05-5-25-06
Posterior Spinal Fusion 3-10-10
T4-L2
Before 50T
After 20T
Comment
-
Originally posted by kennedy View PostI had two curves
Did your lower curve decrease to match your fused curve all by itself after surgery? Is it bigger or smaller now than before surgery?Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
Comment
-
Originally posted by kennedy View Postit was 40 degrees before surgery after it was 17 at my last x-ray in 2014 it was 21 degrees for both
Good luck, Kara.Last edited by Pooka1; 12-13-2015, 08:25 PM.Sharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
Comment
-
Originally posted by kennedy View Postgood point sharonSharon, mother of identical twin girls with scoliosis
No island of sanity.
Question: What do you call alternative medicine that works?
Answer: Medicine
"We are all African."
Comment
Comment