After recovering from my surgery, I started losing my taste of food and minor indigestions episodes. My nails started lifting from its bed, my hands were getting dark spots to eventually brown.
Went to a GI local doctor in a small border town who then referred me to UCSD (Univ of Calif - San Diego school). After 3 endoscopy/colonoscopies in 6 months, Dr Savides agreed with Dr Bridwell (possibility of CCS).
Dr Bridwell (surgeon for my scoliosis in ST Louis) Nov 2013 on my anniv visit, mentioned having had 3 patients that sprouted CCS.
CCS is a rare disease like all those GI problems we all face which the medical profession/pharmaceuticals do not have a fix because there is no 'cause' known. Imagine that most of the inflamatory problems are still being fixed by Prednisone (the cure all like Aspirin). CCS is not seriously reported but those found in 1955 about 500 cases.
Fortunately, my case is found early. All the changes, including not eating for a month because I was in bed and going to the toilet - losing muscle toning on my back, I lost about 20+ pounds and I was totally un-nourished.
The doctor in San Diego is referring me to another colleague specializing in IBS who has another case(s) of CCS. I found another patient in a blog that has CCS for the past years seeing the same doctor but amazingly enought had a spinal surgery 2 years ago!!!!
Dr Bridwell thinks that the trauma of the back surgery might have brought on the CCS which consist of over population of eosoniphils and so much inflamation of the digestive system that no nutrients could be absorved. This other lady had been on TPN for a long time and now is getting over it with no indication if it will come back or not.
Left untreated, people decline, guts become cancerous and with a great back we float to the other dimension.
I am doing much better but now the future is an unknowned. After being totally healthy except for pain in back, the digestive system is really in control. One week you feel great and another you are so weak that a step, moving of the eyes, speaking becomes such an effort - debilitating and it makes one realize how energy can be gone in a second. Thus life.
I am on my second period of taking Prednisone for 2 months. The first stage cured some but symptoms returned and the endoscopy/colonoscopy immediately done showed increased or same amount of inflamation.
Just wanted to find if anyone had similar un-related coincidence.
Went to a GI local doctor in a small border town who then referred me to UCSD (Univ of Calif - San Diego school). After 3 endoscopy/colonoscopies in 6 months, Dr Savides agreed with Dr Bridwell (possibility of CCS).
Dr Bridwell (surgeon for my scoliosis in ST Louis) Nov 2013 on my anniv visit, mentioned having had 3 patients that sprouted CCS.
CCS is a rare disease like all those GI problems we all face which the medical profession/pharmaceuticals do not have a fix because there is no 'cause' known. Imagine that most of the inflamatory problems are still being fixed by Prednisone (the cure all like Aspirin). CCS is not seriously reported but those found in 1955 about 500 cases.
Fortunately, my case is found early. All the changes, including not eating for a month because I was in bed and going to the toilet - losing muscle toning on my back, I lost about 20+ pounds and I was totally un-nourished.
The doctor in San Diego is referring me to another colleague specializing in IBS who has another case(s) of CCS. I found another patient in a blog that has CCS for the past years seeing the same doctor but amazingly enought had a spinal surgery 2 years ago!!!!
Dr Bridwell thinks that the trauma of the back surgery might have brought on the CCS which consist of over population of eosoniphils and so much inflamation of the digestive system that no nutrients could be absorved. This other lady had been on TPN for a long time and now is getting over it with no indication if it will come back or not.
Left untreated, people decline, guts become cancerous and with a great back we float to the other dimension.
I am doing much better but now the future is an unknowned. After being totally healthy except for pain in back, the digestive system is really in control. One week you feel great and another you are so weak that a step, moving of the eyes, speaking becomes such an effort - debilitating and it makes one realize how energy can be gone in a second. Thus life.
I am on my second period of taking Prednisone for 2 months. The first stage cured some but symptoms returned and the endoscopy/colonoscopy immediately done showed increased or same amount of inflamation.
Just wanted to find if anyone had similar un-related coincidence.
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