Thanks, Mark, for posting for Susan. Tell her we are all rooting for her and will be thinking about her during her second surgery.
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Susan's surgery at UCSF with Dr. Hu on 19 and 22 March, 2013
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Karen
Surgery-Jan. 5, 2011-Dr. Lenke
Fusion T-4-sacrum-2 cages/5 osteotomies
70 degree thoracolumbar corrected to 25
Rib Hump-GONE!
Age-60 at the time of surgery
Now 66
Avid Golfer & Tap Dancer
Retired Kdgn. Teacher
See photobucket link for:
Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
Before and After Picture of back 1/7/11
tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
http://s1119.photobucket.com/albums/k630/pottoff2/
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Susan's Surgery Update Saturday March 23rd
Susan had her first surgery on Tuesday and things went very well except for
getting pain under control in the first 12 hrs after surgery and some
minor issues with some lung congestion and low O2 saturation level.
She did very well with the first surgery overall.
I stayed with her for 2 days till she was taken to her second day surgery
on Friday at about 6:30AM.
Fridays surgery was delayed for several hours while they decided if it was
safe with her lung congestion. This I learned was probably due to her very
sore rib, they harvested bone material during Tuesday's surgery, thus
making it painful for her to breathe deeply. This was the main surgery for
rebuilding much of her spine and per surgeon went very well after the la
te start.
Fridays surgery went well and everything that was planned was successfully
completed. She did not get out of surgery till after 6PM and was then taken
to ICU where she has been since. No real unexpected issues or problems.
Lots of pain control needed and balancing and close monitoring of her lung
status but no real issues. It appears she will also spend tonight in ICU
and be released to a room Sunday.
Hope this helps update everyone. Thanks for your support, prayers and well
wishes. Please pass along to others who might be interested.
Mark CookseyAdult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rod
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Again, thank you Mark. Happy to hear the surgery went well. Now for healing, we will all be praying. Give Susan our love.
TamenaDiagnosed at age 12 with a double major curve
Braced till age 15
SSBOB T12-L2 Anterior age 34. (October 22,2012) Dr. Robert Gaines Jr. ( Columbia, MO)
Revision Surgery T2-Sacrum with Pelvic Fixation Prosterior age 35 (November 13,2013) Dr. Michael Kelly (St. Louis, MO)
Revision Surgery L4/L5 due to BMP Complication age 36 (November 20,2014) Dr. Michael Kelly (St. Louis, Mo)
Revision Surgery due to broken rod scheduled for October 19, 2016 with Dr. Michael Kelly (St. Louis, MO)
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So glad to hear that the surgery went well. It's actually good that they are keeping Susan at ICU - she'll get more attention this way. Give Susan a gentle hug for me, please.I am stronger than scoliosis, and won't let it rule my life!
45 years old - diagnosed at age 7
A/P surgery on March 5/7, 2013 - UCSF
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Hi Mark,
Thank you so much for updating us on Susan--please tell her Gayle from Corvallis is sending best wishes.
These first few days are definitely tough but each day will get a little better. Please tell her we are all thinking of her. Take care of yourself, too.Gayle, age 50
Oct 2010 fusion T8-sacrum w/ pelvic fixation
Feb 2012 lumbar revision for broken rods @ L2-3-4
Sept 2015 major lumbar A/P revision for broken rods @ L5-S1
mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
2010 VBS Dr Luhmann Shriners St Louis
2017 curves stable/skeletely mature
also mom of Torrey, 12 y/o son, 16* T, stable
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Very glad to hear Susan's surgeries are over. Now all she needs do is sleep, eat, walk and heal. No more worries about the upcoming surgery! Everything sounds very normal. The rib will be very sore but hopefully there'll be no further issues. Each day will be another step towards normality. Hope you can get some sleep as well. How trying this is on everyone concerned!Surgery March 3, 2009 at almost 58, now 63.
Dr. Askin, Brisbane, Australia
T4-Pelvis, Posterior only
Osteotomies and Laminectomies
Was 68 degrees, now 22 and pain free
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Thanks for the updates Mark. Please let Susan know that she (and you) are in by thoughts and prayers. It is such a tough surgery, it is amazing to me that our bodies can withstand such an onslaught. Getting the pain under control is so important. Try to get some rest yourself whenever Susan is asleep.
Take care and God Bless, SallyDiagnosed with severe lumbar scoliosis at age 65.
Posterior Fusion L2-S1 on 12/4/2007. age 67
Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
New England Baptist Hospital, Boston, MA
Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/
"In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.
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So glad to hear Susan's surgeries were successful. Please tell her we're all thinking of her and looking forward to hearing from her when she is ready. In the meantime, thanks for keeping us updated!
Evelynage 48
80* thoracolumbar; 40* thoracic
Reduced to ~16* thoracolumbar; ~0* thoracic
Surgery 3/14/12 with Dr. Lenke in St. Louis, T4 to S1 with pelvic fixation
Broken rods 12/1/19; scheduled for revision fusion L1-L3-4 with Dr. Lenke 2/4/2020
Not "confused" anymore, but don't know how to change my username.
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Thanks so much for the info, Mark. So glad the surgeries are over and she's doing reasonably well after such a huge surgery. Many positive thoughts and prayers for a steady and good recovery! JanetJanet
61 years old--57 for surgery
Diagnosed in 1965 at age of 13--no brace
Thoracic Curve: 96 degrees to 35 degrees
Lumbar Curve: 63 degrees to 5 degrees
Surgery with Dr. Lenke in St. Louis--March 30, 2009
T-2 to Pelvis, and hopefully all posterior procedure.
All was posterior along with 2 cages and 6 osteotomies.
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Thanks for posting. I'm glad Susan no longer has to stress over making the decision for surgery and now can devote all of her energy to the healing process. We will be here for her every step of the way. Best wishes for a smooth recovery and a future without pain.Karen
Surgery-Jan. 5, 2011-Dr. Lenke
Fusion T-4-sacrum-2 cages/5 osteotomies
70 degree thoracolumbar corrected to 25
Rib Hump-GONE!
Age-60 at the time of surgery
Now 66
Avid Golfer & Tap Dancer
Retired Kdgn. Teacher
See photobucket link for:
Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
Before and After Picture of back 1/7/11
tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
http://s1119.photobucket.com/albums/k630/pottoff2/
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Hi everyone. I am in rehab on nob hill at a very nice place with views or SF. Had a scare last night with severe chest pain which ended up to be atelectasis.
Happy that I had surgery. Pain from back deceasing.
SusanAdult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rod
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Originally posted by susancook View PostHi everyone. I am in rehab on nob hill at a very nice place with views or SF. Had a scare last night with severe chest pain which ended up to be atelectasis.
Happy that I had surgery. Pain from back deceasing.
SusanI am stronger than scoliosis, and won't let it rule my life!
45 years old - diagnosed at age 7
A/P surgery on March 5/7, 2013 - UCSF
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I had to look up atelectasis.
Very happy to hear you're doing well and that you're glad you had the surgery. All that worry about surgery gone - that's a biggie!
Hope your recovery continues smoothly.Surgery March 3, 2009 at almost 58, now 63.
Dr. Askin, Brisbane, Australia
T4-Pelvis, Posterior only
Osteotomies and Laminectomies
Was 68 degrees, now 22 and pain free
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Collapsed lung? I take it they re-inflated it?
Did you realize you wrote "deceasing" back pain? As in the pain is on it's way to being deceased! No more pain! Let's hope surgery killed the back pain for you. :-)
Best,
Evelynage 48
80* thoracolumbar; 40* thoracic
Reduced to ~16* thoracolumbar; ~0* thoracic
Surgery 3/14/12 with Dr. Lenke in St. Louis, T4 to S1 with pelvic fixation
Broken rods 12/1/19; scheduled for revision fusion L1-L3-4 with Dr. Lenke 2/4/2020
Not "confused" anymore, but don't know how to change my username.
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Thanks everyone for your support. Pain is Slightly decreasing.
Dealing with urinary incontnence.
SusanAdult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rod
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