If this is your first visit, be sure to
check out the FAQ by clicking the
link above. You may have to register
before you can post: click the register link above to proceed. To start viewing messages,
select the forum that you want to visit from the selection below.
Announcement
Collapse
No announcement yet.
Susan's surgery at UCSF with Dr. Hu on 19 and 22 March, 2013
Wow. Hopefully the loose screws and hooks are the reason you are having so much trouble with your legs. My fingers are crossed that as soon as you get your strength back, you will be up and walking, and before you know it, back to you active lifestyle.
Susan- praying that the surgery to correct screws & hook is the solution!
Peg
61 yrs old
75 degree lumbar curve with thoracic kyphosis
T3 - S1 surgery with Dr. Buchowski in St. Louis, on 10/27/14
Working on healing in Columbus, Ohio!
I'm glad you got to Stanford so quickly and had the hardware repaired. Pretty incredible and worrisome that OHSU didn't pick that up on your scans.
Hang in there, rest and I hope things will continue to improve.
-Gayle
Gayle, age 50
Oct 2010 fusion T8-sacrum w/ pelvic fixation
Feb 2012 lumbar revision for broken rods @ L2-3-4
Sept 2015 major lumbar A/P revision for broken rods @ L5-S1
mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
2010 VBS Dr Luhmann Shriners St Louis
2017 curves stable/skeletely mature
Gayle, I am at OHSU. I had surgery here on Thursday night. Dr. Hart is out of town. The emergency surgery was amazing. I cannot believe how quickly I went from having lunch to the OR. Everyone was worried that the loosened screws would do more damage to my spinal cord. Hope that I can make a good recovery. I am so happy that Dr. Hu got everyone mobilized from Stanford to the OHSU surgeon. My OHSU spine surgeon is really great. I am really drugged and my pO2 was 70 percent last night.
Tired. Bye. S.
Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rod
I hope that removing the screws would fix the problem and you walk again soon. I am not a religious person, but I asked my father to say a prayer for you.
I am stronger than scoliosis, and won't let it rule my life!
45 years old - diagnosed at age 7
A/P surgery on March 5/7, 2013 - UCSF
Susan,
Glad you were able to have surgery without traveling. It sure sounds like you're on the right track and will be back to walking soon.
Karen
Surgery-Jan. 5, 2011-Dr. Lenke
Fusion T-4-sacrum-2 cages/5 osteotomies
70 degree thoracolumbar corrected to 25
Rib Hump-GONE!
Age-60 at the time of surgery
Now 66
Avid Golfer & Tap Dancer
Retired Kdgn. Teacher
See photobucket link for:
Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
Before and After Picture of back 1/7/11
tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right. http://s1119.photobucket.com/albums/k630/pottoff2/
Susan
I have been thinking of you a lot. I an sooo glad to hear that they removed those screws I. But where were the loose screws??? Just curious, as my brother in law had a disk in his neck that was herniated and pressing against his spinal cord . The Drs. Said he would be paralyzed for life if they didn't fix it. And ofcourse he had it fixed. He is doing fine now. But that's why I was wondering where the screws were??
It doesn't make any difference as long as it is what makes you walk again. And I truly know you will!! Your strong Susan. Use that strength to recover from this surgery and walk again my friend! These huge back surgeries are tough and sometimes along with them are complications. You have had enough my dear. I pray each day gets better for you! Patience~~~ I hate that word~~ but that's what it takes.
Keep us posted! Linda
Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017
Thinking of you, Susan and hoping for the very best.
Surgery March 3, 2009 at almost 58, now 63.
Dr. Askin, Brisbane, Australia
T4-Pelvis, Posterior only
Osteotomies and Laminectomies
Was 68 degrees, now 22 and pain free
Susan,I hope this will be your answer. We are all praying for you. Please keep us informed.jackie
T10-pelvis fusion 12/08
C5,6,7 fusion 9/10
T2--T10 fusion 2/11
C 4-5 fusion 11/14
Right scapulectomy 6/15
Right pectoralis major muscle transfer to scapula
To replace the action of Serratus Anterior muscle 3/16
Broken neck 9/28/2018
Emergency surgery posterior fusion C4- T3
Repeated 11/2018 because rods pulled apart added T2 fusion
Removal of partial right thoracic hardware 1/2020
Removal and replacement of C4-T10 hardware with C7 and T 1
Osteotomy
I'm so glad to hear they may have found the root of your trouble, Susan. And glad to hear you didn't have to go all the way to Stanford. Wishing you a complete recovery and hope you can begin healing now.
Surgery Jan 6, 2014 at 38 yrs
Posterior Fusion T10-L4, osteotomy 1 lev.
Pre op-Thoracolumbar Curve-50 degrees
Glad to hear you didn’t have to travel, its quite an ordeal if not walking.
We are rooting for you!
Hang in there
Ed
49 yr old male, now 63, the new 64...
Pre surgery curves T70,L70
ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
Dr Brett Menmuir St Marys Hospital Reno,Nevada
great that Dr Hu got it together and got people onto the problem
before things got any worse with the screws...in my mind i
couldn't understand why they didn't reach her immediately for such
a serious emergency...
i hope it was the screws and that this surgery solves it...so you
will be up and walking around soon...
wondering how the problem was not spotted with Xrays, etc at
hospital in Portland, so you didn't have to be as scared about it not
being from the surgery....that is perhaps something to look into later,
after you recover from the surgery.
wishing you rest and healing...and return of feeling and movement
along with healing....and an end to this horrific nitemare!
Susan so happy for you that you did not have to travel for your surgery. And hope this is the solution to your problems and you will be up and about soon.
Thinking of you and wishing you a speedy recovery.(())
Marianne
rotoscoliosis, subluxation and spinal stenosis
Surgery April 15, 2015 at age 67
T11-L5
Decompression with multiple discectomies
Concord cages @ L2-3, L3-4, L4-5
Osteotomies and local bone grafting
Revision Feb.22, 2018
Replaced rods
Took out L5 disk to free up nerves
Used BPM to help with fusing
Fused T10-S1 with screws in pelvis
Comment