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Susan's surgery at UCSF with Dr. Hu on 19 and 22 March, 2013

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  • Good check up, Susan. Glad the fall didn't cause any problems for spine. Hope the neck area pain decreases for you. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

    Comment


    • Nice follow up report on the back. I pray the neck gets better.

      Tamena
      Diagnosed at age 12 with a double major curve

      Braced till age 15

      SSBOB T12-L2 Anterior age 34. (October 22,2012) Dr. Robert Gaines Jr. ( Columbia, MO)

      Revision Surgery T2-Sacrum with Pelvic Fixation Prosterior age 35 (November 13,2013) Dr. Michael Kelly (St. Louis, MO)

      Revision Surgery L4/L5 due to BMP Complication age 36 (November 20,2014) Dr. Michael Kelly (St. Louis, Mo)

      Revision Surgery due to broken rod scheduled for October 19, 2016 with Dr. Michael Kelly (St. Louis, MO)

      Comment


      • Great news, Susan, especially that no damage was done by your fall. I hope the conservative measures help your neck and that no further surgery is required. Good though that Dr. Hu says she can do it if necessary. Signs of fusion - that would have made you happy. Now for the hernia!
        Surgery March 3, 2009 at almost 58, now 63.
        Dr. Askin, Brisbane, Australia
        T4-Pelvis, Posterior only
        Osteotomies and Laminectomies
        Was 68 degrees, now 22 and pain free

        Comment


        • I am now taking care of my brother who had surgery to reattach the bicep tendon that he pulled lose when he tried to help my friend and I get up on the escalator caper. I brought him back from the surgicenter and went out and bought him some Chinese food. On the way to pick up the takeout, I tripped on the curb and landed knees first on the sidewalk. My back is sore right now as i must have stretched something. i am such a klutz. I think that a good night's sleep will help me.

          Susan
          Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

          2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
          2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
          2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
          2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
          2018: Removal L4,5 screw
          2021: Removal T1 screw & rod

          Comment


          • Oh Susan! Take care! Hope you wake up feeling much better!
            Surgery March 3, 2009 at almost 58, now 63.
            Dr. Askin, Brisbane, Australia
            T4-Pelvis, Posterior only
            Osteotomies and Laminectomies
            Was 68 degrees, now 22 and pain free

            Comment


            • NO more falling, Susan!! Happy to hear your dr visit went well. Hope your neck straightens out and the pain lessens. Love the the 'full meal deal' expression!
              Peg
              61 yrs old
              75 degree lumbar curve with thoracic kyphosis
              T3 - S1 surgery with Dr. Buchowski in St. Louis, on 10/27/14
              Working on healing in Columbus, Ohio!

              Comment


              • Hi Susan,

                glad you got a good report overall. Now, NO MORE falling!!! Take it slow and easy.

                A couple of months ago I slipped in my kitchen and fell--the floor was still a little wet from being mopped. I instantly burst into tears because I was so scared of hurting myself. I ended up ok but it was terrifying. I am coming up on the 2-year mark for my revision in January, and still have fears of suffering another broken rod. It is hard for me to entirely put this possibility out of my head, even now, but I am trying.

                Best regards,
                Gayle, age 50
                Oct 2010 fusion T8-sacrum w/ pelvic fixation
                Feb 2012 lumbar revision for broken rods @ L2-3-4
                Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


                mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
                2010 VBS Dr Luhmann Shriners St Louis
                2017 curves stable/skeletely mature

                also mom of Torrey, 12 y/o son, 16* T, stable

                Comment


                • Gayle, I hear you loud and clear and understand completely your and my fear of doing harm to our spinal surgery. I have re-read Your post, "the pop heard round the world" many times trying to figure out what you did wrong and thus prevent problems for me. I cannot find it and that is the fearful unknown in our healing that makes healing precarious. There is a component that is just a craps shoot, that is, just random. While we need to be careful, we need to live and mop floors and go over curbs in the dark or be grabbed by someone on an up escalator who falls. I do not think that I am falling any more than I ever have in my life, it just has a different meaning now for possible consequence. I fell about 8 years ago and fractured by fibula. The surgeon said that I had some osteoporosis in my lower fibula which made her repair difficult. Interesting that I do not have osteoporosis on Traditional bone mineral testing, yet had osteoporosis in my upper spine and fibula. Now I worry, how about the rest of me?

                  So, I will be a little bit more careful and continue to take my calcium and vit D supplements and hope that the stars are aligned just right for me.

                  Thanks for your concern and reinforcing my belief that I am not alone on this journey in the others have the same fears/worries that I do.

                  Wishing you and so many others good fusion and continued healing, Susan
                  Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

                  2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
                  2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
                  2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
                  2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
                  2018: Removal L4,5 screw
                  2021: Removal T1 screw & rod

                  Comment


                  • Susan, Just read up on your thread, so sorry to read about your falls that must have been scary for you. I am glad you did not damage anything . Great follow up report. Be careful when you are out!
                    Marianne
                    rotoscoliosis, subluxation and spinal stenosis
                    Surgery April 15, 2015 at age 67
                    T11-L5
                    Decompression with multiple discectomies
                    Concord cages @ L2-3, L3-4, L4-5
                    Osteotomies and local bone grafting
                    Revision Feb.22, 2018
                    Replaced rods
                    Took out L5 disk to free up nerves
                    Used BPM to help with fusing
                    Fused T10-S1 with screws in pelvis

                    Comment


                    • Second opinion for incisional hernia

                      I am having a second opinion for my incisional hernia from my ALIF incision. Wish me luck. Wonder how much weight this doctor wants me to lose? I hate the bulge in the front. I feel so self-conscious.

                      I was reading about hernias after ALIF and apparently they happen only 1 percent of the time. Why me? Anyone else have one?

                      Susan....and my bummer menopausal pregnancy
                      Last edited by susancook; 11-11-2013, 12:45 AM.
                      Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

                      2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
                      2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
                      2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
                      2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
                      2018: Removal L4,5 screw
                      2021: Removal T1 screw & rod

                      Comment


                      • Good luck Susan. I hope you can get it fixed earlier than expected. It must be no fun at all.
                        Surgery March 3, 2009 at almost 58, now 63.
                        Dr. Askin, Brisbane, Australia
                        T4-Pelvis, Posterior only
                        Osteotomies and Laminectomies
                        Was 68 degrees, now 22 and pain free

                        Comment


                        • Second opinion went well. Both surgeons specialize in hernia repairs and both seem quite capable. This surgeon just tops a little more on personality and information. While he would prefer that I lose 30#s, he said that 15 would be OK. He does 3to4 hernia repairs a month and has only repaired 5 ALIF incisional hernias and said that they are rare. Why me? Just lucky or unlucky, I guess.

                          So, onward to weight loss! Susan....and the bulge
                          Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

                          2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
                          2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
                          2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
                          2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
                          2018: Removal L4,5 screw
                          2021: Removal T1 screw & rod

                          Comment


                          • Hi, Susan

                            I Sam so sorry you are having such a time! I have only had one fall since my June Surg, but it it was at the physical therapy pool. I was drying off and walking, slipped on a puddle. And fell straight backwards. I had enough sense to roll to my side as I fell so I could avoid the fusion. Just wound up with a bump on
                            the side of my head, but the PT's panicked, made me see a doctor. He said ," You have a bump on your head." I said, "Yes." That was it.. Ever after the PTs treated me with kid gloves. I was cleared by them because I was able to walk a mile. My Surgeon ATM my last check had a fit and referred me to another PT, and has directed that the PT "raise the bar" of expectations from me. I have a bulge in my side where the apex of my curve used to be. Don't know if its a hernia or not. It isn't near the incision. Immediately post surgery it was huge. Looked like I was pregnant. It has gotten smaller, but I can feel and hear the rumblings of my intestines in it. Feels strange. My surgeon wants to wait to see what it is, maybe it will go away. Again Susan, I am so sorry...
                            Wendy
                            Fusion T6 to S2 with Dr. Carlos Bagley,
                            Duke Spine Center
                            Surgery Date June 21, 2013

                            Comment


                            • As is human, I have tripped and fallen occasionally in my life. Now, it has such a different meaning and I am so afraid of injuring my fusion. I feel like fine china sometimes in that a fall would shatter me. I suppose that I will gain more confidence in the future that my fusion will not be injured with a slight fall. When I was pulled onto my back on the up escalator, I felt like a turtle on my back. Picture a rapidly up moving escalator and falling on your back and trying to scramble onto your feet. I had to try to roll on my side and push up with my hands as my feet were rapidly moving up the escalator. Not a pretty picture! In retrospect, it was very scary, but it happened so fast, that I did not have much time to think. Fortunately, my brother helped me get up. There is a God!

                              Susan
                              Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

                              2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
                              2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
                              2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
                              2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
                              2018: Removal L4,5 screw
                              2021: Removal T1 screw & rod

                              Comment


                              • Originally posted by susancook View Post
                                Second opinion went well. Both surgeons specialize in hernia repairs and both seem quite capable. This surgeon just tops a little more on personality and information. While he would prefer that I lose 30#s, he said that 15 would be OK. He does 3to4 hernia repairs a month and has only repaired 5 ALIF incisional hernias and said that they are rare. Why me? Just lucky or unlucky, I guess.

                                So, onward to weight loss! Susan....and the bulge
                                Hi Susan,

                                Loosing 15 lb sounds like a more realistic goal to me. I was wondering how your surgeon expected you to lose 30 lb - it's a lot!

                                Have you tried throwing a ball with a partner, just like kids do? Take a light ball and toss it with your husband. My physical therapist had me do that because it's a good exercise to be prepared and react adequately in case of falls. In the beginning she would throw a ball straight at me, then she started doing it a little to the side so that I had to move, while keeping my balance.
                                I am stronger than scoliosis, and won't let it rule my life!
                                45 years old - diagnosed at age 7
                                A/P surgery on March 5/7, 2013 - UCSF

                                Comment

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